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Comments (2,480)

This sounds very similar to my 14year old daughter after Covid. Get tested for APS. She...

https://connect.mayoclinic.org/comment/858047/

She now has APS, Lupus, PE, DVT &amp

Discussion: Autoimmune symptoms continuing for 12 months post Covid - no answers

Support Group: Autoimmune Diseases

Posted: May 11, 2023

@nikohl7 @johnbishop Previousely I was diagnosed with Fibro.I have few symptoms but not sure they are...

https://connect.mayoclinic.org/comment/219468/

symptoms but not sure they are due to LUPUS

Discussion: Lung Nodule, D-Dimer elevation and ANA +VE

Support Group: Autoimmune Diseases

Posted: Oct 13, 2018

Well i am heading back to MCV tomorrow morning. I normally go every 3 months for...

https://connect.mayoclinic.org/comment/197569/

every 3 months for bloodwork for my lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: May 7, 2018

I was diagnosed with Grave's Disease. I had side affects from the medication I was on....

https://connect.mayoclinic.org/comment/1214687/

But during this time I hade Lupus and ... The Lupus damaged my nerves.

Discussion: Anyone have radiation iodine (RAI) Therapy after Thyroid Lobectomy?

Support Group: Thyroid Cancer

Posted: Jan 17 5:43am

Bless You. I have long covid and am scheduled to be seen in a long covid...

https://connect.mayoclinic.org/comment/872642/

I am being treated for lupus since having ... I never had borderline Lupus until having

Discussion: How many people do you know that have Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 5, 2023

I too have Tumid Lupus and what I’ve found out is that it’s so rare that...

https://connect.mayoclinic.org/comment/117631/

I too have Tumid Lupus and what I’ve ... interesting information about Tumid Lupus

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 2, 2018

I get those and despite having neuropathy and a lupus diagnosis, have always blamed those cracks...

https://connect.mayoclinic.org/comment/988651/

and despite having neuropathy and a lupus

Discussion: PN and painful cracks on fingertips

Support Group: Neuropathy

Posted: Dec 30, 2023

Thank you for these recipes. I have not been actually diagnosed with an autoimmune disease as...

https://connect.mayoclinic.org/comment/974391/

The bloodwork came back suggesting Lupus

Discussion: CAN A SPECIAL DIET BE THE ANSWER?

Support Group: Autoimmune Diseases

Posted: Dec 3, 2023

I was first diagnosed at 78. Have positive ANA but repeated tests find no related specific...

https://connect.mayoclinic.org/comment/909402/

specific autoimmune conditions like lupus

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Aug 8, 2023

Yes he has, but I'm waiting for a second opinion from another pulmonologist before I make...

https://connect.mayoclinic.org/comment/837400/

my Rumatologist who is treating the Lupus

Discussion: I have Lupus and Mac..has anyone been treated for both?

Support Group: MAC & Bronchiectasis

Posted: Apr 4, 2023

Hi @blindeyepug, At times life throws us some serious curve-balls, and I want you to know...

https://connect.mayoclinic.org/comment/149845/

whether you have a certain type of lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 15, 2017

I don't think I was misdiagnosed with PMR in May 2023. Back then I didn't have...

https://connect.mayoclinic.org/comment/1392407/

that my new diagnosis might have been Lupus ... Lupus was certainly mentioned.

Discussion: Change of diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 5 days ago

I was taking hydroxychloroquine for lupus in June. Was having hand swelling issues when I first...

https://connect.mayoclinic.org/comment/932372/

was taking hydroxychloroquine for lupus ... Almost as if the meds started the lupus ... Seeing lupus doc on Thursday.

Discussion: Anyone stopping immuno suppressing drug had a flare up?

Support Group: Autoimmune Diseases

Posted: Sep 19, 2023

I have Lupus. Was diagnosed in 2017. I have a partial that does not fit because...

https://connect.mayoclinic.org/comment/842888/

I have Lupus.

Discussion: Autoimmune Issues and Dental Problems

Support Group: Autoimmune Diseases

Posted: Apr 13, 2023

That's reassuring, I hope I can keep calm :D That is all in the head haha!...

https://connect.mayoclinic.org/comment/709932/

no link with the brain eg: EBV or Lupus

Discussion: Low T-Cell - Bone Marrow Biopsy

Support Group: Blood Cancers & Disorders

Posted: May 20, 2022

My long covid internist treats my covid with antihistamine famotidine, anti-stomach acid fexofinidine, and low dose...

https://connect.mayoclinic.org/comment/1345184/

which I have taken for 30 years for lupus

Discussion: Treating Long Covid as Inflamation Based

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 10 12:17pm

Try hydroxychloroquine. It takes awhile to kick in but worth it. I had such awful muscle...

https://connect.mayoclinic.org/comment/891952/

It was mimicking lupus.

Discussion: Post Covid Symptoms and what has helped me.

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 8, 2023

@buzz23 My lupus is a fairly mild condition, in my opinion. I have severe joint pain,...

https://connect.mayoclinic.org/comment/927880/

@buzz23 My lupus is a fairly mild condition

Discussion: Relationships: How do you form and maintain them when ill?

Support Group: Just Want to Talk

Posted: Sep 10, 2023

I too am at my wits end, every morning (2am) I get up and shortly thereafter...

https://connect.mayoclinic.org/comment/1367425/

RA and Sjogrens but think it's Lupus ... niece at 13 years old passed away from Lupus

Discussion: Internal body vibrations upon waking

Support Group: Sleep Health

Posted: Aug 10 4:52am

I know this post was made several years ago, but I get the same rash, anytime...

https://connect.mayoclinic.org/comment/991499/

was told that I tested positive for Lupus ... But the Lupus rash itches, and it’s

Discussion: Autoimmune rash

Support Group: Autoimmune Diseases

Posted: Jan 4, 2024