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833 total results

Comments (763)

I assume the stiffening of your heart is on the outside of your heart, and you...

https://connect.mayoclinic.org/comment/1099290/

If so, this is (Cardiac Amyloidosis)

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 4, 2024

Jim, I know that finding the right MD is the toughest part of chronic illness. My...

https://connect.mayoclinic.org/comment/95088/

stomach, esophagus, thyroid, and proven amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 28, 2017

mikee and Jewel8888, yes, these are tough nuts to crack, and getting legitimate treatment is very...

https://connect.mayoclinic.org/comment/128397/

quite expensive, and in the case of amyloidosis

Discussion: Fibromyalgia and autonomic peripheral neuropathy

Support Group: Autoimmune Diseases

Posted: Jan 20, 2017

I’ve been on Tramadol since 2008 about a year after my stem cell transplant…. Per trauma...

https://connect.mayoclinic.org/comment/1209556/

being able to use nsaids because of my amyloidosis

Discussion: What are your experiences with tramadol ?

Support Group: Chronic Pain

Posted: Jan 12 7:02am

I had the same issue when I started PT. I had COVID February 2020. My Pulmonary...

https://connect.mayoclinic.org/comment/688075/

My Amyloidosis returned and spread,

Newsfeed Post: Early Care Tips for COVID Longhaulers

Blog: Post-COVID Recovery

Posted: Mar 10, 2022

@rvickert I am still not sure I know the size of bumps you speak of, but...

https://connect.mayoclinic.org/comment/313062/

Gelsolin and perhaps other forms of Amyloidosis

Discussion: Extreme fatigue and pain

Support Group: Spine Health

Posted: Jun 12, 2020

This isn't going to be much help, I'm afraid. I don't have arachnoiditis, but I do...

https://connect.mayoclinic.org/comment/103294/

but I do have Primary Systemic AL Amyloidosis

Discussion: Arachnoiditis: Trying to find a specialist

Support Group: Spine Health

Posted: Jan 23, 2020

I have an appt coming up in March at Mayo. I received some interesting literature yesterday....

https://connect.mayoclinic.org/comment/147195/

explanation: a person has Familial amyloidosis

Discussion: This and That and Talk - My Transplant

Support Group: Transplants

Posted: Feb 15, 2018

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

when I exercised 12 years ago… But my Amyloidosis ... the bone marrow that can accompany Amyloidosis ... I was concerned in March that the Amyloidosis

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

@lorraine06 - I debated for a while whether or not to share my experience. I'm sharing...

https://connect.mayoclinic.org/comment/896747/

minutes, he diagnosed I have Macular Amyloidosis ... to take .it Looks like Macular Amyloidosis ... this pill can be used for Macular Amyloidosis

Discussion: Macular Amyloidosis and skin rash

Support Group: Skin Health

Posted: Jul 16, 2023

To follow up on my post 3 days ago. I am the 70-year-old that was diagnosed...

https://connect.mayoclinic.org/comment/1250436/

She ended up with Amyloidosis (AL) and

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 4 3:06pm

sharonryanbless Have you checked the Blood Cancers & Disorders Group? That is where you will find...

https://connect.mayoclinic.org/comment/113487/

for someone with such conditions as: amyloidosis