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Comments (756)

I do have celiac and I am vigilant about no gluten and it's not hard because...

https://connect.mayoclinic.org/comment/70306/

He says I have Amyloidosis and my husband

Discussion: I feel like I'm dying

Support Group: Digestive Health

Posted: Aug 26, 2018

@tracyann Just a quick note. My sister is in the final stages of life with Crohn's....

https://connect.mayoclinic.org/comment/137325/

close family with various types of amyloidosis

Discussion: Undiagnosed auto immune disease, put on Leflunomide

Support Group: Autoimmune Diseases

Posted: Jul 5, 2017

I’ve been on Tramadol since 2008 about a year after my stem cell transplant…. Per trauma...

https://connect.mayoclinic.org/comment/1209556/

being able to use nsaids because of my amyloidosis

Discussion: What are your experiences with tramadol ?

Support Group: Chronic Pain

Posted: Jan 12 7:02am

I had the same issue when I started PT. I had COVID February 2020. My Pulmonary...

https://connect.mayoclinic.org/comment/688075/

My Amyloidosis returned and spread,

Newsfeed Post: Early Care Tips for COVID Longhaulers

Blog: Post-COVID Recovery

Posted: Mar 10, 2022

@rvickert I am still not sure I know the size of bumps you speak of, but...

https://connect.mayoclinic.org/comment/313062/

Gelsolin and perhaps other forms of Amyloidosis

Discussion: Extreme fatigue and pain

Support Group: Spine Health

Posted: Jun 12, 2020

This isn't going to be much help, I'm afraid. I don't have arachnoiditis, but I do...

https://connect.mayoclinic.org/comment/103294/

but I do have Primary Systemic AL Amyloidosis

Discussion: Arachnoiditis: Trying to find a specialist

Support Group: Spine Health

Posted: Jan 23, 2020

I have an appt coming up in March at Mayo. I received some interesting literature yesterday....

https://connect.mayoclinic.org/comment/147195/

explanation: a person has Familial amyloidosis

Discussion: This and That and Talk - My Transplant

Support Group: Transplants

Posted: Feb 15, 2018

Hello @soonerfan, How did your appointment on the 29th of March turn out? Were you able...

https://connect.mayoclinic.org/comment/1048610/

still think you have both HOCM and Amyloidosis

Discussion: Does any one have HOCM & Systemic Amyloidosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10, 2024

This is interesting, and potentially very helpful. The real point is that if you feel the...

https://connect.mayoclinic.org/comment/900332/

A have been found to have Crohns, Amyloidosis

Discussion: Possible Al Amylodiois

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2023

Just a few small things. First, exactly where in your chest do you hurt, and what...

https://connect.mayoclinic.org/comment/103844/

Morie Gertz, of Mayo-MN, in "Amyloidosis

Discussion: Pacemaker recipients: Looking for support from others

Support Group: Pacemaker & ICDs

Posted: Mar 28, 2020

just found out my so called cysts are plantar fibroma cysts on the bottom of both...

https://connect.mayoclinic.org/comment/194232/

really do think amyloidosis could very

Discussion: Zero appetite, not getting adequate nutrition

Support Group: Autoimmune Diseases

Posted: Mar 31, 2018

I was quite healthy until I suddenly started getting short of breath when I exercised 12...

https://connect.mayoclinic.org/comment/1062971/

when I exercised 12 years ago… But my Amyloidosis ... the bone marrow that can accompany Amyloidosis ... I was concerned in March that the Amyloidosis

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2024

@lorraine06 - I debated for a while whether or not to share my experience. I'm sharing...

https://connect.mayoclinic.org/comment/896747/

minutes, he diagnosed I have Macular Amyloidosis ... to take .it Looks like Macular Amyloidosis ... this pill can be used for Macular Amyloidosis

Discussion: Macular Amyloidosis and skin rash

Support Group: Skin Health

Posted: Jul 16, 2023

Oh, thank you! I'll check that out. I'm scheduled for Dec. 1. Am sick with COVID...

https://connect.mayoclinic.org/comment/969673/

The suspicion is AL amyloidosis.

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

@Techi Hi, Lisa. You really said what's real in your note to @brie. Doctors who work...

https://connect.mayoclinic.org/comment/108661/

And as I noted in my Amyloidosis Dossier