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Comments (2,480)

Pain as an adolescent, they called it growing pains. 2003 diagnosed with Fibromyalgia but never tested...

https://connect.mayoclinic.org/comment/1059959/

Lupus they said . ... Lupus not showing now, remission?

Discussion: Fibromyalgia..Is It an autoimmune disease?

Support Group: Fibromyalgia

Posted: Apr 30, 2024

It made a huge difference for me to find a caring and non-conservative approach when testing....

https://connect.mayoclinic.org/comment/838157/

Initially, they thought it was Lupus ... Prednisone after he was told it was not Lupus

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2023

@pollyann Welcome to Connect. We’re not doctors on this site but we all try to share...

https://connect.mayoclinic.org/comment/275009/

mentioned in your treatment of discoid lupus ... is what is suggested by the lupus foundation

Discussion: Scalp and hair problems possibly from discoid lupus

Support Group: Autoimmune Diseases

Posted: Sep 6, 2019

bless ur heart!!!!!!!! dang, u been thru it! don't even know where to start to respond,...

https://connect.mayoclinic.org/comment/1258786/

saw had to have labs to confirm my lupus ... (VERY disabled, as my lupus is difficult

Discussion: Pulmonologist says I should be dead by now

Support Group: Autoimmune Diseases

Posted: Mar 15 4:02pm

Would any or all of you who have lupus pain tell me more about what type...

https://connect.mayoclinic.org/comment/953722/

Would any or all of you who have lupus ... I am new to lupus but have other illnesses

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 25, 2023

I have been on Duloxetine for fibromyalgia, lupus and arthritis pain for 10 years. Without it...

https://connect.mayoclinic.org/comment/1292069/

been on Duloxetine for fibromyalgia, lupus

Discussion: Has anyone ever been on Duloxetine (Cymbalta) for nerve pain?

Support Group: Chronic Pain

Posted: Apr 28 2:01pm

Lupus and RA are auto-immune diseases so it seems like an immunologist would understand it best....

https://connect.mayoclinic.org/comment/996393/

Lupus and RA are auto-immune diseases

Discussion: How to get wife transferred to Mayo Clinic in Phoenix Az

Support Group: Visiting Mayo Clinic

Posted: Jan 12, 2024

I went to Stage 4, then went on Cellcept for Lupus Nephritis -- got back to...

https://connect.mayoclinic.org/comment/597823/

Stage 4, then went on Cellcept for Lupus

Discussion: Intermittent Fasting with Chronic Kidney Disease

Support Group: Kidney & Bladder

Posted: Apr 28, 2021

I had two ANA tests over the time I was diagnosed with Transverse Myelitis. Each time...

https://connect.mayoclinic.org/comment/1213246/

and it was decided I did not have lupus

Discussion: Autonomic? Or issues with the brain?

Support Group: Brain & Nervous System

Posted: Jan 15 8:31am

APS...I had a stroke in my eye then diagnosed with Lupus Anticoagulation. I have a Hematologist...

https://connect.mayoclinic.org/comment/1237266/

stroke in my eye then diagnosed with Lupus

Discussion: LA Antibody and Antiphospholipid Syndrome

Support Group: Autoimmune Diseases

Posted: Feb 15 7:37am

Here is a list of labs to have run by a rheumatologist. See a neuromuscular neurologist....

https://connect.mayoclinic.org/comment/1244905/

doctor diagnosed with Sjogrens and Lupus ... from there it’s was one of two things Lupus

Discussion: Invisible illness how do you cope?

Support Group: Autoimmune Diseases

Posted: Feb 24 7:13pm

I had to go off Methotrexate completely because of the horrible mouth ulcers and pain. I...

https://connect.mayoclinic.org/comment/1370494/

I was taking it for lupus. ... and I don’t feel like it has made my Lupus

Discussion: oral and vulva lichen planus for years with no long term relief

Support Group: Autoimmune Diseases

Posted: Aug 14 11:18am

I have lupus …. I also have 27,000 ectopic heart thuds a day so every fourth...

https://connect.mayoclinic.org/comment/1145314/

I have lupus …. ... feel so depleted because if it is lupus

Discussion: Looking for Afib or Flutter with Autoimmune Systemic Scleroderma Help

Support Group: Heart Rhythm Conditions

Posted: Sep 22, 2024

jerrysgirl3, God Bless You! I do know you can run fever with Lupus and have wrist...

https://connect.mayoclinic.org/comment/890341/

I do know you can run fever with Lupus ... your autoimmune markers were high for Lupus ... with my pain and inflammation from Lupus

Discussion: Lupus Medication

Support Group: Autoimmune Diseases

Posted: Jul 5, 2023

I have had fibromyaglia and questionable Lupus or MCTD. The summers are brutal with the high...

https://connect.mayoclinic.org/comment/931765/

had fibromyaglia and questionable Lupus

Discussion: MCTD, Fibromyalgia, and Hot Weather - Oh My!

Support Group: Autoimmune Diseases

Posted: Sep 18, 2023

I have lupus and I when I was having almost daily migraines, I did Botox for...

https://connect.mayoclinic.org/comment/254228/

I have lupus and I when I was having

Discussion: Botox for chronic migraines: is it safe(ish) for MCTD person?

Posted: Mar 9, 2019

I have had Raynauds since the 1970’s. I buy packaged hand warmers in bulk. They keep...

https://connect.mayoclinic.org/comment/1259472/

says Raynauds is often connected to Lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Mar 16 11:46am

Try to keep positive thoughts. Especially with breathing issues, stress causes anyone with Lupus to have...

https://connect.mayoclinic.org/comment/1103659/

issues, stress causes anyone with Lupus

Discussion: If you suspect Lupus or MCTD, be sure

Support Group: Autoimmune Diseases

Posted: Jul 11, 2024

@geegie, I'm tagging fellow members @janett18 @joanelle77 and @odockbarbie who have mentioned being treated with Rituxan...

https://connect.mayoclinic.org/comment/221451/

mentioned being treated with Rituxan for lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 5, 2020

I had the exact same result. First I was told the doctor was 95% sure I...

https://connect.mayoclinic.org/comment/167806/

Then the doctors opinion was Lupus.

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Mar 3, 2019