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Comments (2,425)

Would any or all of you who have lupus pain tell me more about what type...

https://connect.mayoclinic.org/comment/953722/

Would any or all of you who have lupus ... I am new to lupus but have other illnesses

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 25, 2023

It made a huge difference for me to find a caring and non-conservative approach when testing....

https://connect.mayoclinic.org/comment/838157/

Initially, they thought it was Lupus ... Prednisone after he was told it was not Lupus

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2023

@pollyann Welcome to Connect. We’re not doctors on this site but we all try to share...

https://connect.mayoclinic.org/comment/275009/

mentioned in your treatment of discoid lupus ... is what is suggested by the lupus foundation

Discussion: Scalp and hair problems possibly from discoid lupus

Support Group: Autoimmune Diseases

Posted: Sep 6, 2019

bless ur heart!!!!!!!! dang, u been thru it! don't even know where to start to respond,...

https://connect.mayoclinic.org/comment/1258786/

saw had to have labs to confirm my lupus ... (VERY disabled, as my lupus is difficult

Discussion: Pulmonologist says I should be dead by now

Support Group: Autoimmune Diseases

Posted: Mar 15 4:02pm

I have Sjogren’s Disease, RA, and lupus. Have had many weird symptoms which were finally diagnosed...

https://connect.mayoclinic.org/comment/1322291/

I have Sjogren’s Disease, RA, and lupus

Discussion: Autoimmune - Advice?

Support Group: Autoimmune Diseases

Posted: Jun 7 12:08pm

Lupus and RA are auto-immune diseases so it seems like an immunologist would understand it best....

https://connect.mayoclinic.org/comment/996393/

Lupus and RA are auto-immune diseases

Discussion: How to get wife transferred to Mayo Clinic in Phoenix Az

Support Group: Visiting Mayo Clinic

Posted: Jan 12, 2024

Here is a list of labs to have run by a rheumatologist. See a neuromuscular neurologist....

https://connect.mayoclinic.org/comment/1244905/

doctor diagnosed with Sjogrens and Lupus ... from there it’s was one of two things Lupus

Discussion: Invisible illness how do you cope?

Support Group: Autoimmune Diseases

Posted: Feb 24 7:13pm

I get those and despite having neuropathy and a lupus diagnosis, have always blamed those cracks...

https://connect.mayoclinic.org/comment/988651/

and despite having neuropathy and a lupus

Discussion: PN and painful cracks on fingertips

Support Group: Neuropathy

Posted: Dec 30, 2023

Thank you for these recipes. I have not been actually diagnosed with an autoimmune disease as...

https://connect.mayoclinic.org/comment/974391/

The bloodwork came back suggesting Lupus

Discussion: CAN A SPECIAL DIET BE THE ANSWER?

Support Group: Autoimmune Diseases

Posted: Dec 3, 2023

I was first diagnosed at 78. Have positive ANA but repeated tests find no related specific...

https://connect.mayoclinic.org/comment/909402/

specific autoimmune conditions like lupus

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Aug 8, 2023

Yes he has, but I'm waiting for a second opinion from another pulmonologist before I make...

https://connect.mayoclinic.org/comment/837400/

my Rumatologist who is treating the Lupus

Discussion: I have Lupus and Mac..has anyone been treated for both?

Support Group: MAC & Bronchiectasis

Posted: Apr 4, 2023

Hi @blindeyepug, At times life throws us some serious curve-balls, and I want you to know...

https://connect.mayoclinic.org/comment/149845/

whether you have a certain type of lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 15, 2017

I have had fibromyaglia and questionable Lupus or MCTD. The summers are brutal with the high...

https://connect.mayoclinic.org/comment/931765/

had fibromyaglia and questionable Lupus

Discussion: MCTD, Fibromyalgia, and Hot Weather - Oh My!

Support Group: Autoimmune Diseases

Posted: Sep 18, 2023

jerrysgirl3, God Bless You! I do know you can run fever with Lupus and have wrist...

https://connect.mayoclinic.org/comment/890341/

I do know you can run fever with Lupus ... your autoimmune markers were high for Lupus ... with my pain and inflammation from Lupus

Discussion: Lupus Medication

Support Group: Autoimmune Diseases

Posted: Jul 5, 2023

There is autoimmune neuropathy which is caused by an autoimmune diseases lupus,, Rheumatoid Arthritis, MS ,...

https://connect.mayoclinic.org/comment/1322340/

caused by an autoimmune diseases lupus ... Where did the lupus come from? ... I was diagnosed with Sjogrens Lupus

Discussion: Connection to Epstein Barr Virus or PN as autoimmune disease

Support Group: Neuropathy

Posted: Jun 7 1:22pm

I have lupus and I when I was having almost daily migraines, I did Botox for...

https://connect.mayoclinic.org/comment/254228/

I have lupus and I when I was having

Discussion: Botox for chronic migraines: is it safe(ish) for MCTD person?

Posted: Mar 9, 2019

I have had Raynauds since the 1970’s. I buy packaged hand warmers in bulk. They keep...

https://connect.mayoclinic.org/comment/1259472/

says Raynauds is often connected to Lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Mar 16 11:46am

Try to keep positive thoughts. Especially with breathing issues, stress causes anyone with Lupus to have...

https://connect.mayoclinic.org/comment/1103659/

issues, stress causes anyone with Lupus

Discussion: If you suspect Lupus or MCTD, be sure

Support Group: Autoimmune Diseases

Posted: Jul 11, 2024

@geegie, I'm tagging fellow members @janett18 @joanelle77 and @odockbarbie who have mentioned being treated with Rituxan...

https://connect.mayoclinic.org/comment/221451/

mentioned being treated with Rituxan for lupus

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Sep 5, 2020

I had the exact same result. First I was told the doctor was 95% sure I...

https://connect.mayoclinic.org/comment/167806/

Then the doctors opinion was Lupus.

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Mar 3, 2019