Botox for chronic migraines: is it safe(ish) for MCTD person?

Posted by tedwiden @tedwiden, Mar 9, 2019

My wife has battled with autoimmune disease(s) for several years, and tried dozens of medications. She is facing Botox injections to counter her chronic migraines. We are wondering if other people with similar conditions can give us any insight??? Thanks.

I have lupus and I when I was having almost daily migraines, I did Botox for it. The number of (tiny) injections at one time made me feel sick and I felt pretty bad the rest of that day, but it did work.

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@jcather

I have lupus and I when I was having almost daily migraines, I did Botox for it. The number of (tiny) injections at one time made me feel sick and I felt pretty bad the rest of that day, but it did work.

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Thank you, JCather. Our research hasn't found a problem for autoimmune sufferers so far. Thanks for getting back to us.

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@jcather

I have lupus and I when I was having almost daily migraines, I did Botox for it. The number of (tiny) injections at one time made me feel sick and I felt pretty bad the rest of that day, but it did work.

Jump to this post

I have had unexpected success with this for optical migraine (a visual field disturbance in the brain that does not create pain)…the injections last for about 4-5 months. Unfortunately other headaches/ migraine due to severe cervical stenosis especially c-7 don't seem diminished. As you would expect, injections can have a bit of pain due to the process even though the needle is small diameter, but in a few minutes it dissipates, no ill effect whatsoever on me except where we tried one shot deeper to counter pain at one side of c-7/shoulder; it worsened the nuisance ache at that particular muscle for about two weeks. In worse case any negative effect of Botox does wear away, it is not permanent and you are left with the same problem you started with. In other words, I think it is worth the try.

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