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833 total results

Comments (763)

My ANA is elevated. Not terribly high, but enough to be a little+- worrisome. Most of...

https://connect.mayoclinic.org/comment/615434/

myeloma family of issues, such as Amyloidosis

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Jul 10, 2021

@marklg57 Criminy. Just had a beautiful note all set to go to you, when something happened...

https://connect.mayoclinic.org/comment/207934/

Learning that my hereditary Gelsolin Amyloidosis

Discussion: Rotator cuff surgery

Support Group: Bones, Joints & Muscles

Posted: Sep 14, 2018

Prayers For Clarification & Peace….After my diagnosis of amyloidosis & talking with my local doctors &...

https://connect.mayoclinic.org/comment/705230/

& Peace….After my diagnosis of amyloidosis

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 4, 2022

Good morning Free spirit. I was diagnosed IgM Kappa in 2012. I was stable until 2023...

https://connect.mayoclinic.org/comment/1353132/

watched closely for a disease called amyloidosis

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21 9:48am

I would like to view the video but receive a message that it is not available....

https://connect.mayoclinic.org/comment/1337037/

Central PA.... have any experience with Amyloidosis

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 28 11:19am

@jen12 Hi, Jen. Sad to hear when someone gets shafted as you have. But it happens,...

https://connect.mayoclinic.org/comment/212572/

downloaded from https://bit.Ly/1w7j4j8, Amyloidosis ... , Amyloidosis and Old Karl.

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Aug 20, 2018

@jkellyjones One of most serious consequences of Crohn's and nearly all the other variations and mutations...

https://connect.mayoclinic.org/comment/176477/

other variations and mutations of Amyloidosis ... Anyway, the diagnosis of any form of amyloidosis

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Inflammatory Bowel Disease (IBD)

Posted: Dec 1, 2017

@jkellyjones Just read your not again about not having any skin ulcerations, etc. All of these...

https://connect.mayoclinic.org/comment/176479/

at my story HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... not have any form of FreeLiteChain Amyloidosis

Discussion: Diagnosed with Crohn's but having weird symptoms

Support Group: Inflammatory Bowel Disease (IBD)

Posted: Dec 1, 2017

@fortyisyoung I have a thought which might or might not apply to you. When I was...

https://connect.mayoclinic.org/comment/91018/

being tested for various types of Amyloidosis ... Martha Grogan's video on diagnosing Amyloidosis

Discussion: Has anyone been diagnosed with Central Sensitization?

Support Group: Chronic Pain

Posted: Sep 7, 2018

@so1frustrated...You sound like me, but I have finally figured out what my problem. I have both...

https://connect.mayoclinic.org/comment/334475/

I have both Gelsolin (Finnish Amyloidosis ... Positron Emission Tomagraphy) program for Amyloidosis

Discussion: Almost pure blood and blood clots in urine

Support Group: Kidney & Bladder

Posted: Feb 21, 2021

@gailkattouf The constant swapping diarrhea and constipation, with prostate cancer, gives a strong clue. This combination,...

https://connect.mayoclinic.org/comment/132562/

sent to ARUP or Mayo-Quant, or Boston Amyloidosis ... sent to ARUP or Mayo-Quant, or Boston Amyloidosis

Discussion: Anyone out there with Thymoma/Thymic Carcinoma

Support Group: Cancer

Posted: Sep 11, 2018

the "Stiff Heart" can be a sign of a variety of ailments. One that is fairly...

https://connect.mayoclinic.org/comment/102944/

fairly easy to check out is cardiac amyloidosis ... Gertz at Mayo MN, or get his book, "Amyloidosis

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Jan 7, 2017

The bone marrow biopsy is used rarely enough that it reveals whatever the hematologist says it...

https://connect.mayoclinic.org/comment/723439/

means lots of protein, which means Amyloidosis

Discussion: High protein in urine, unsure of the results

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

@katie215 Don't let it get you down. This is not the worst I have seen in...

https://connect.mayoclinic.org/comment/97540/

spending $10,000 to be tested for Amyloidosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Sep 3, 2018

i like the title of this thread... Anyone here dealing with PN? Well, PN is making...

https://connect.mayoclinic.org/comment/92103/

bones as well, due to the hATTRwt amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 30, 2017

I am so sorry for both you and your husband. I cannot imagine what you are...

https://connect.mayoclinic.org/comment/89036/

actually I can somewhat as my wife has Amyloidosis

Discussion: Complex regional pain syndrome or reflex sympathetic dystrophy

Support Group: Chronic Pain

Posted: Apr 16, 2016

@michele34, This is the easy part. Gelsolin is also known as GSN, or AGEL, or Finnish...

https://connect.mayoclinic.org/comment/268002/

known as GSN, or AGEL, or Finnish Amyloidosis

Discussion: Does surgery work for Laryngopharyngeal Reflux (LPR)?

Support Group: Digestive Health

Posted: Feb 20, 2021

Thank you, Colleen for your input. Yes, I talked to my Dr last week, and she...

https://connect.mayoclinic.org/comment/1118745/

and wait, not knowing whether I have amyloidosis

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

@barbarn Ya gotta remember there are thousands of diseases and disorders and accidents that can and...

https://connect.mayoclinic.org/comment/92404/

fact, there are almost 2000 known Amyloidosis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Sep 9, 2018

My husband is 42 and in heart failure. It went undiagnosed for several months until he...

https://connect.mayoclinic.org/comment/192432/

recently been diagnosised with AL Amyloidosis

Discussion: Heart failure and enlarged heart

Support Group: Heart & Blood Health

Posted: Mar 25, 2018