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257 total results
Comments (238)
Reading through some of these stories is very humbling. Unlike most of you, I'm extremely lucky...
https://connect.mayoclinic.org/comment/1036521/
chronic inflammatory demyelinating polyneuropathy ... if my methylprednisolone treatment helped ... and to see what they make of my phrenic ... team at Mayo Clinic doesn't know what
Good morning, @pain3relief, and welcome to Connect! I, too, have peripheral neuropathy, or, after a year...
https://connect.mayoclinic.org/comment/1013021/
of motor and autonomic) multifocal polyneuropathy—a ... called EB-N5, telling me it would help ... which is water soluble and non-toxic (what
Cymbalta was original developed for depression. The reason why most doctors use this for pain management...
https://connect.mayoclinic.org/comment/994779/
Serotonin is a chemical that helps cut ... This helps to control my anxiety. ... developed diabetic autonimic peripheral polyneuropathy ... detail why you need this medication and what ... doctors to brainstorm and track down what
Hello @darina, Welcome to Connect. There is another discussion on the electric cell-signaling treatment (EcST) and...
https://connect.mayoclinic.org/comment/965516/
(EcST) and also several others on polyneuropathy ... that you might find helpful to learn ... what others have shared:
--- Does ... /discussion/polyneuropathy-2/. ... s=polyneuropathy.
I have small and large fiber polyneuropathy. Still not quite sure what the polyneuropathy part is...
https://connect.mayoclinic.org/comment/935677/
I have small and large fiber polyneuropathy ... Still not quite sure what the polyneuropathy ... Nothing seems to help and no apparent
@bobc2 hi Bob I promise you that everyone here understands what you are experiencing. If you...
https://connect.mayoclinic.org/comment/932329/
you that everyone here understands what ... can take more Gabapentin, it should help ... Lyrica are the only drugs that can help ... with the pain of polyneuropathy.
When I first started suffering with small fiber polyneuropathy 8 years ago, I didn’t know why...
https://connect.mayoclinic.org/comment/919105/
started suffering with small fiber polyneuropathy ... The Dr Teal’s products are what I used ... It soothed my painful muscles and helped
Welcome to Mayo Connect, @maggiejay People with POEMS syndrome have an increased number of plasma cells,...
https://connect.mayoclinic.org/comment/909940/
POEMS is the acronym for Polyneuropathy ... I also found a number of helpful conversations ... the diagnosis and management of the polyneuropathy ... – https://www.foundationforpn.org/what-is-peripheral-neuropathy
Welcome @sunflowergirl050710, It's difficult not to worry about a treatment when you are not sure of...
https://connect.mayoclinic.org/comment/854530/
have any medical training but from what ... couple of discussions that might be helpful ... for learning what others have shared ... Chronic Inflammatory Demyelinating Polyneuropathy ... Do you mind sharing what kind of neuropathy
Hello Glenn @cgrogers, Welcome to Connect. You will find members talking about CIDP in the Autoimmune...
https://connect.mayoclinic.org/comment/786104/
Chronic Inflammatory Demyelinating Polyneuropathy ... cidp-chronic-inflammatory-demylinating-polyneuropathy ... Chronic Inflammatory Demyelinating Polyneuropathy ... Please Help Me:
https://connect.mayoclinic.org ... What is your CIDP story?
Hi Nancy, I am sorry that you having this problem. I don't know if it will...
https://connect.mayoclinic.org/comment/781601/
I don't know if it will help but ... neurologist #3, who said he didn't know what ... it is definitely not C.I.D.P but a polyneuropathy
Yes, I do stretching, actually throughout the day. I'm terrible at keeping a routine. My chiropractor...
https://connect.mayoclinic.org/comment/713158/
Baclofen surprisingly helps, especially ... I only take what I need, and am always ... Also, my length-dependent small fiber polyneuropathy
Hello I'm truly terrified to get even the first shot. I have suffered from SFN for...
https://connect.mayoclinic.org/comment/661590/
yrs or so I attempted to get medical help ... tendon pain, random piercing pain, polyneuropathy ... this point, my life had been hell for what ... So when a friend asked what was worse ... one if the vaccines might not even help
@cindy66 as I read your post from several years ago, it was as if my husband...
https://connect.mayoclinic.org/comment/1428561/
therapy, nerve testing indicating “polyneuropathy ... would like to know how it went and what ... It’s time we get help from somebody ... who may be able to help him if they ... were able to help you.
Welcome @bfm, Here's some information on the condition. "A polyneuropathy is a diffuse peripheral nerve disorder...
https://connect.mayoclinic.org/comment/1405882/
.
"A polyneuropathy is a diffuse ... severity of the disorder and thus help ... search=polyneuropathy. ... If you don't mind sharing, what ... symptoms do you have with your polyneuropathy
Lisa I don’t have restless legs or Parkinson’s. What I do have is tremors in my...
https://connect.mayoclinic.org/comment/1345477/
What I do have is tremors in my hands ... severe axonal sensorimotor peripheral polyneuropathy ... I am on IVIG that is helping with dizziness
My itching just started and I have had Idiopathic Progressive Polyneuropathy for a while and Lupus...
https://connect.mayoclinic.org/comment/1287184/
I have had Idiopathic Progressive Polyneuropathy ... getting worse I just don't know what ... Sorry I couldn't be of help 🙏
Hi, With both CSVD and Autonomic polyneuropathy both having similar symptoms it is difficult to know...
https://connect.mayoclinic.org/comment/1284830/
Hi,
With both CSVD and Autonomic polyneuropathy ... difficult to know which is causing what ... issues going on and little medical help ... I do what ever I find suits me best ... This may not be helping my health issues
Hi, Dysautonomia is to do with all the controlling nerves of the body that do what...
https://connect.mayoclinic.org/comment/1207886/
controlling nerves of the body that do what ... My particular bent is Autonomic polyneuropathy ... have a good heart although enlarged helps ... It helps being retired and doing what ... I have found keeping moving helps more
This is a very helpful conversation. After lots of tests and specialists, the working diagnoses have...
https://connect.mayoclinic.org/comment/1190129/
This is a very helpful conversation. ... something like long Covid, small fiber polyneuropathy ... However, part of what’s been going on ... appreciate these conversations because it helps ... great - very respectful and believe what
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