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875 total results
Comments (796)
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
https://connect.mayoclinic.org/comment/994501/
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis-maybe
Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...
https://connect.mayoclinic.org/comment/687248/
WM patient and knowing other WM and Amyloidosis ... specialist who specializes in both WM and Amyloidosis ... Clinic, specializes in both WM and Amyloidosis
Sorry that happened but your doc didn’t order PYP scan to rule out Amyloidosis first? Can’t...
https://connect.mayoclinic.org/comment/1258561/
didn’t order PYP scan to rule out Amyloidosis ... be treated with Camzyos if you have Amyloidosis
Hi @newtosohcm, here is a link to amyloidosis - https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178. If you have a chance to...
https://connect.mayoclinic.org/comment/945923/
Hi @newtosohcm, here is a link to amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... through that, you may learn that "amyloidosis ... system and digestive tract."
Amyloidosis ... comfortable sharing, were you diagnosed with amyloidosis
@amyinsc, I can only imagine how concerned you are for your father and to see him...
https://connect.mayoclinic.org/comment/1411996/
connect.mayoclinic.org/discussion/al-amyloidosis ... -2/
- Peripheral neuropathy and amyloidosis ... discussion/peripheral-neuropathy-and-amyloidosis ... /
- Amyloidosis and Polyneuropathy? ... /connect.mayoclinic.org/discussion/amylodosis
@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis...
https://connect.mayoclinic.org/comment/732564/
I could not open that link about Amyloidosis ... even though I have no experience with Amyloidosis ... Here is the link to information about Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and
Welcome to Connect, @bensondexter I'm confident that you will get response about Keppra from members sharing...
https://connect.mayoclinic.org/comment/164994/
know that members are talking about amyloidosis ... blood-cancers-disorders/
- Current diagnosis is Amyloidosis ... what-a-shocker/
- Diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... seizures a recent development related to amyloidosis
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
https://connect.mayoclinic.org/comment/164376/
with all your incredible research on Amyloidosis ... 'open' studies, with respect to AL amyloidosis ... hereditary transthyretin-mediated amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Lab" which focuses on light chain amyloidosis
@gala75, @oldkarl, @cgarcia56 and others. I thought you might find the following upcoming webinar interesting and...
https://connect.mayoclinic.org/comment/1152023/
Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis, ... mean that they will develop hATTR amyloidosis
Hello, @shookercooker. I've added your conversation to the Blood Cancers and Disorders group, where there are...
https://connect.mayoclinic.org/comment/1544716/
talked about their experiences with amyloidosis ... anyone with this specific type of amyloidosis
Is cardiomypathy connected to amyloidosis???
https://connect.mayoclinic.org/comment/836049/
Is cardiomypathy connected to amyloidosis
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
https://connect.mayoclinic.org/comment/824887/
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis
@lily2013 Hi Again, Lily. I have just done some study on your facial swelling, and I...
https://connect.mayoclinic.org/comment/182120/
some say it is a primary systemic amyloidosis ... "Localized Cutaneous Amyloidosis. ... therapy will depend on the form of amyloidosis ... There is a lot more on this on "Amyloidosis ... It is a "Lichen Amyloidosis", while
This is one of the newest type of amyloid described. it is not considered primary amyloidosis...
https://connect.mayoclinic.org/comment/381215/
described. it is not considered primary amyloidosis ... with is the old name for AL amyloidosis
what happens after you have tested positive for amyloidosis and just had the bone marrow biopsy?...
https://connect.mayoclinic.org/comment/1471032/
after you have tested positive for amyloidosis ... Looks like I have AL Amyloidosis
@coug42, you may also be interested in these related discussions: - Diagnosed with MGUS/Amyloidosis https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/ -...
https://connect.mayoclinic.org/comment/1103249/
discussions:
- Diagnosed with MGUS/Amyloidosis ... Diagnosed with both multiple myeloma and amyloidosis
Hi @nick0820, I want to add my welcome. You may be interested in this video by...
https://connect.mayoclinic.org/comment/88333/
Grogan is a leading specialist in amyloidosis ... + Video Q&A about Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
@karendam Mine is not shrinking, but filling up with dead protein Fibrils. I have hereditary Gelsolin...
https://connect.mayoclinic.org/comment/104446/
I have hereditary Gelsolin Amyloidosis ... etc.: https://bit.Ly/1w7j4j8 under Amyloidosis
Many biopsies coming up at Mayo, for Amyloidosis.
https://connect.mayoclinic.org/comment/950564/
Many biopsies coming up at Mayo, for Amyloidosis
Hi @tomholder, welcome. There are several discussions about AL Amyloidosis that you may wish to review:...
https://connect.mayoclinic.org/comment/958685/
There are several discussions about AL Amyloidosis ... review:
- Recently diagnosed with AL Amyloidosis ... -2/
- Diagnosed with AL Amyloidosis ... search=Amyloidosis+&pg=1
It' ... ;s not uncommon for amyloidosis to affect
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