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Comments (780)
@oldkarl All bronchiectasis cases are chronic and incurable. But I have trouble understanding how bronchiectasis and...
understanding how bronchiectasis and amyloidosis ... But I know I don't have amyloidosis ... Besides, Gelsolin amyloidosis is mostly
Support Group: MAC & Bronchiectasis
Posted: Aug 20, 2018
Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...
couple of members who also have MM and Amyloidosis ... Diagnosed with both multiple myeloma and amyloidosis ... multiple-myelomaamyloidosis/ —Treatment for amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... / – Current diagnosis is Amyloidosis
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis-maybe
Support Group: Chronic Pain
Posted: Jan 9, 2024
Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...
WM patient and knowing other WM and Amyloidosis ... specialist who specializes in both WM and Amyloidosis ... Clinic, specializes in both WM and Amyloidosis
Hi @newtosohcm, here is a link to amyloidosis - https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178. If you have a chance to...
Hi @newtosohcm, here is a link to amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... through that, you may learn that "amyloidosis ... system and digestive tract." Amyloidosis ... comfortable sharing, were you diagnosed with amyloidosis
Posted: Oct 11, 2023
Welcome to Connect, @bensondexter I'm confident that you will get response about Keppra from members sharing...
know that members are talking about amyloidosis ... blood-cancers-disorders/ - Current diagnosis is Amyloidosis ... what-a-shocker/ - Diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... seizures a recent development related to amyloidosis
Support Group: Epilepsy & Seizures
Posted: Jul 4, 2018
@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis...
I could not open that link about Amyloidosis ... even though I have no experience with Amyloidosis ... Here is the link to information about Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and
Posted: Jul 30, 2022
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
with all your incredible research on Amyloidosis ... 'open' studies, with respect to AL amyloidosis ... hereditary transthyretin-mediated amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Lab" which focuses on light chain amyloidosis
@gala75, @oldkarl, @cgarcia56 and others. I thought you might find the following upcoming webinar interesting and...
Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis, ... mean that they will develop hATTR amyloidosis
Support Group: Autoimmune Diseases
Posted: Oct 4, 2024
@lily2013 Hi Again, Lily. I have just done some study on your facial swelling, and I...
some say it is a primary systemic amyloidosis ... "Localized Cutaneous Amyloidosis. ... therapy will depend on the form of amyloidosis ... There is a lot more on this on "Amyloidosis ... It is a "Lichen Amyloidosis", while
Support Group: Autoimmune Diseases
Posted: Jan 23, 2018
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis
Posted: Mar 12, 2023
Hi @nick0820, I want to add my welcome. You may be interested in this video by...
Grogan is a leading specialist in amyloidosis ... + Video Q&A about Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
Posted: Jun 23, 2019