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820 total results
Comments (749)
Hi @mkempson42, Welcome to Mayo Connect where members come together to offer support and encouragement to...
https://connect.mayoclinic.org/comment/869204/
couple of members who also have MM and Amyloidosis ... Diagnosed with both multiple myeloma and amyloidosis ... multiple-myelomaamyloidosis/ —Treatment for amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... / – Current diagnosis is Amyloidosis
Discussion: Diagnosed with both multiple myeloma and amyloidosis
Support Group: Blood Cancers & Disorders
Posted: May 30, 2023
I am not aware of any more accurate tests for Amyloidosis. Do you? I have had...
https://connect.mayoclinic.org/comment/754607/
aware of any more accurate tests for Amyloidosis ... have had fat pad once to rule out Amyloidosis
Discussion: What’s the science on diet and MGUS/SMM?
Support Group: Blood Cancers & Disorders
Posted: Sep 27, 2022
@packgb19 Hello Patrick: We do have some members on Connect who are discussion Amyloidosis. Here is...
https://connect.mayoclinic.org/comment/282773/
members on Connect who are discussion Amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... Clinic website that explains more about Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Discussion: Does anyone have amyloidosis?
Support Group: Blood Cancers & Disorders
Posted: Nov 12, 2019
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
https://connect.mayoclinic.org/comment/164376/
with all your incredible research on Amyloidosis ... 'open' studies, with respect to AL amyloidosis ... hereditary transthyretin-mediated amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Lab" which focuses on light chain amyloidosis
Discussion: Amyloidosis. Diagnosis, treatment, frustration. AL, hATTR, etc.
Support Group: Autoimmune Diseases
Posted: Aug 25, 2017
@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis...
https://connect.mayoclinic.org/comment/732564/
I could not open that link about Amyloidosis ... even though I have no experience with Amyloidosis ... Here is the link to information about Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Jul 30, 2022
I would like to invite @oldkarl back to this discussion as he has amyloidosis and has...
https://connect.mayoclinic.org/comment/213108/
back to this discussion as he has amyloidosis ... may have some insight on ESRD and amyloidosis
Discussion: AL amyloidosis
Support Group: Blood Cancers & Disorders
Posted: Nov 12, 2018
Welcome to Connect, @bensondexter I'm confident that you will get response about Keppra from members sharing...
https://connect.mayoclinic.org/comment/164994/
know that members are talking about amyloidosis ... blood-cancers-disorders/ - Current diagnosis is Amyloidosis ... what-a-shocker/ - Diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... seizures a recent development related to amyloidosis
Discussion: Have you taken levetiracetam (Keppra)?
Support Group: Epilepsy & Seizures
Posted: Jul 4, 2018
@lily2013 Hi Again, Lily. I have just done some study on your facial swelling, and I...
https://connect.mayoclinic.org/comment/182120/
some say it is a primary systemic amyloidosis ... "Localized Cutaneous Amyloidosis. ... therapy will depend on the form of amyloidosis ... There is a lot more on this on "Amyloidosis ... It is a "Lichen Amyloidosis", while
Discussion: Facial Swelling - no diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 23, 2018
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
https://connect.mayoclinic.org/comment/824887/
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis
Discussion: AL Amyloidosis maybe?
Support Group: Blood Cancers & Disorders
Posted: Mar 12, 2023
Hi @nick0820, I want to add my welcome. You may be interested in this video by...
https://connect.mayoclinic.org/comment/88333/
Grogan is a leading specialist in amyloidosis ... + Video Q&A about Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Jun 23, 2019
Welcome to Connect @sseats. Since Amyloidosis can affect multiple areas/organs in the body getting the right...
https://connect.mayoclinic.org/comment/1061952/
Since Amyloidosis can affect multiple ... Do you know which type of Amyloidosis ... in the forum with members who have Amyloidosis ... a little informative article about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Discussion: Amyloidosis: What kind of specialist to see for a second opinion?
Support Group: Blood Cancers & Disorders
Posted: May 4 9:26am
Hi @tomholder, welcome. There are several discussions about AL Amyloidosis that you may wish to review:...
https://connect.mayoclinic.org/comment/958685/
There are several discussions about AL Amyloidosis ... review: - Recently diagnosed with AL Amyloidosis ... -2/ - Diagnosed with AL Amyloidosis ... search=Amyloidosis+&pg=1 It&#39 ... ;s not uncommon for amyloidosis to affect
Discussion: Treatment for AL Amyloidosis with severe heart failure
Support Group: Blood Cancers & Disorders
Posted: Nov 3, 2023