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181 total results
Comments (160)
Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...
https://connect.mayoclinic.org/comment/1067446/
question about new treatments for AL ... amyloidosis to this existing discussion ... : ~ Recently diagnosed with AL Amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis AL (primary) amyloidosis
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: May 13, 2024
Hi @suebridges123. From my understanding, Al Amyloidosis is caused by a bone marrow disorder. In AL...
https://connect.mayoclinic.org/comment/1107012/
From my understanding, Al Amyloidosis ... In AL patients, some plasma cells in ... what organs are involved with your Al ... Amyloidosis?
Discussion: What is the current protocol for al Amyloidosis?
Support Group: Blood Cancers & Disorders
Posted: Jul 17, 2024
@tayleebuzz Hello and welcome to Mayo Clinic Connect. This is a caring community where members share...
https://connect.mayoclinic.org/comment/593973/
so sorry your dad is dealing with AL ... in the Connect community regarding AL ... > Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... > Mayo Clinic website regarding AL
Discussion: AL Amyloidosis: Where were you treated?
Support Group: Blood Cancers & Disorders
Posted: Apr 13, 2021
@amyinsc, I can only imagine how concerned you are for your father and to see him...
https://connect.mayoclinic.org/comment/1411996/
discussions: - Recently diagnosed with AL ... Amyloidosis: Any advice? ... /connect.mayoclinic.org/discussion/al-amyloidosis ... -2/ - Peripheral neuropathy and amyloidosis ... / - Amyloidosis and Polyneuropathy?
Discussion: AL Amyloidosis types and Neuropathy
Support Group: Blood Cancers & Disorders
Posted: Oct 9, 2025
My plasma cells from my bone marrow biopsy are 15% so the doc thinks I now...
https://connect.mayoclinic.org/comment/1151172/
No test results yet for AL amyloidosis ... He said kappa amyloidosis is rare, but ... it just less common than lambda amyloidosis
Discussion: What was your experience with bone marrow biopsy?
Support Group: Blood Cancers & Disorders
Posted: Oct 3, 2024
The ONLY symptom I had that brought me to a doctor was that I had the...
https://connect.mayoclinic.org/comment/88314/
other symptoms are for sure related to AL ... Amyloidosis because I’ve had them for ... I was diagnosed with AL Amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Feb 23, 2019
Welcome to Connect, @bensondexter I'm confident that you will get response about Keppra from members sharing...
https://connect.mayoclinic.org/comment/164994/
know that members are talking about amyloidosis ... /what-a-shocker/ - Diagnosed with AL ... Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what ... seizures a recent development related to amyloidosis
Discussion: Have you taken levetiracetam (Keppra)?
Support Group: Epilepsy & Seizures
Posted: Jul 4, 2018
@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...
https://connect.mayoclinic.org/comment/88325/
existing one titled, "diagnosed with AL ... amyloidosis, what can I expect? ... posted about facing the diagnosis of amyloidosis ... the following discussions on both AL ... amyloidosis and Multiple Myeloma:
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 19, 2019
Hi, @larryl - I'd like to add my welcome to Mayo Clinic Connect. Since you mentioned...
https://connect.mayoclinic.org/comment/92594/
Since you mentioned an interest in amyloidosis ... /connect.mayoclinic.org/discussion/al-amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Jan 4, 2019
If it is SMM then likely waiting to see if it morphs to MM. I don't...
https://connect.mayoclinic.org/comment/1151734/
If I have AL amyloidosis then it will ... dr doesn't think I have kappa AL ... amyloidosis, but my GI doc does (I
Discussion: What was your experience with bone marrow biopsy?
Support Group: Blood Cancers & Disorders
Posted: Oct 4, 2024
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
some current conversations regarding amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022