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Comments (704)

@grandmal65 Sorry, to hear about your symptoms. I will share more of my history. My scleroderma...

https://connect.mayoclinic.org/comment/1466543/

I also have vasculitis - purple fingers

Discussion: Anyone with Systemic Sclerosis or Scleroderma?

Support Group: Autoimmune Diseases

Posted: Dec 23, 2025

Hi @juneh I think it's possible that the pain under your arms is related to your...

https://connect.mayoclinic.org/comment/678417/

." PMR is a form of vasculitis and

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7, 2022

Hi @susank2020, I add my welcome to @ruthnz's response. So glad you were able to join...

https://connect.mayoclinic.org/comment/52624/

Arizona that specializes in livedoid vasculitis

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2020

Hi @marilyncarkner, You will notice that we merged your post back to the previous discussion you...

https://connect.mayoclinic.org/comment/303753/

Vasculitis Foundation - FDA Approves

Discussion: What's your experience with Actemra (tocilizumab) for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2020

@patriciam2021 Welcome to Mayo Clinic Connect, a place to give and get support. In order for...

https://connect.mayoclinic.org/comment/333749/

You said that you have "vasculitis

Discussion: Vitamin D3 5000 UI daily safe?

Support Group: Skin Health

Posted: Jan 29, 2021

GCA from my understanding is vasculitis condition which can lead to blindness. PMR in itself is...

https://connect.mayoclinic.org/comment/887113/

GCA from my understanding is vasculitis

Discussion: Question about PMR in addition to other autoimmune disorders?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 29, 2023

pre-COVID and now I get Prolia injections. Injections were paused during the COVID and T-scores got...

https://connect.mayoclinic.org/comment/1338802/

does-prolia-affect-cholesterol/] I have a cutaneous vasculitis

Discussion: Anyone with autoimmune issues taking Evenity for osteoporosis?

Support Group: Autoimmune Diseases

Posted: Jun 30, 2025

Thanks Kate. Sorry no reply for a while, but t took a long time to work...

https://connect.mayoclinic.org/comment/66790/

because I now get hypersensitivity vasculitis

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Feb 22, 2020

Hi Janieben, It's curious you were prescribed twice the Estradiol dosage and 3 times the Progesterone...

https://connect.mayoclinic.org/comment/1295417/

dose Naltrexone for my autoimmune vasculitis

Discussion: HRT Safety

Support Group: Osteoporosis & Bone Health

Posted: May 2, 2025

A doctor should evaluate and from superficial take looking at photos: The photo on the right...

https://connect.mayoclinic.org/comment/811666/

inflammation of the blood vessels (vasculitis

Discussion: Not convinced it's eczema

Support Group: Skin Health

Posted: Feb 15, 2023

Thanks for posting this. All along I've been uncomfortable with the idea that PMR primarily affects...

https://connect.mayoclinic.org/comment/702279/

don't know what pain caused by vasculitis

Discussion: Is PMR a form of vasculitis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2022

What a roller coaster ride. Thought I had GPA vasculitis but just found out after retaking...

https://connect.mayoclinic.org/comment/635879/

Thought I had GPA vasculitis but just

Discussion: Just got second CT Scan says probably MAC. I am a K teacher

Support Group: MAC & Bronchiectasis

Posted: Sep 16, 2021

Thank you I will read the articles. I've read many in the journals. I have hope...

https://connect.mayoclinic.org/comment/170543/

Vasculitis and joint involvement is

Discussion: Behcet's Syndrome: What treatment has worked for you?

Support Group: Autoimmune Diseases

Posted: Oct 7, 2019

Currently, my symptoms are skin lesions on lower legs bilaterally. They had become necrotic but have...

https://connect.mayoclinic.org/comment/167495/

My GPA so far is limited to the vasculitis

Discussion: Anyone have granulomatosis with polyangiitis (GPA) or Wegener's?

Support Group: Autoimmune Diseases

Posted: Oct 2, 2017

@retiredphil - Doctor’s orders post blood work. I tried to avoid Prednisone through diet and supplements...

https://connect.mayoclinic.org/comment/1455862/

untreated inflammation: it can lead to vasculitis

Discussion: How are you tapering prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 8, 2025

I'm a 52 year old male. Originally diagnosed with High Grade Urothelial Carcinoma In Situ in...

https://connect.mayoclinic.org/comment/1230943/

that I had Central Nervous System Vasculitis ... living person with BCG induced CNS Vasculitis

Discussion: Bladder Cancer Group: Introduce yourself and connect with others

Support Group: Bladder Cancer

Posted: Feb 6, 2025

On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis - GPA....

https://connect.mayoclinic.org/comment/167497/

years of age, I was diagnosed with vasculitis ... told I had a very aggressive form of vasculitis

Discussion: Anyone have granulomatosis with polyangiitis (GPA) or Wegener's?

Support Group: Autoimmune Diseases

Posted: Jan 13, 2018

Thank you for asking. I’m not certain how to respond- dealt with this for seven years....

https://connect.mayoclinic.org/comment/787443/

blessing considering my sister has ANCA vasculitis

Discussion: Prednisone and Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2022

I am experiencing the same leg burning, I am 76 and in my 40's diagnosed with...

https://connect.mayoclinic.org/comment/1343480/

passed away from undiagnosed Rheumatoid vasculitis

Discussion: Burning sensation in lower legs

Support Group: Autoimmune Diseases

Posted: Jul 8, 2025

Firstly, that is a lovely photo. You look great! Secondly, I am going to suggest getting...

https://connect.mayoclinic.org/comment/1083515/

tissue disorders and some kinds of vasculitis

Discussion: Dealing with multiple aneurysms.

Support Group: Aortic Aneurysms

Posted: Jun 9, 2024