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1,147 total results
Comments (1,037)
Was diagnosed Nov 2023. I was sent to Boston Mass General as my GI dr. hadn't...
https://connect.mayoclinic.org/comment/1295427/
shrinking bile duct, bridging fibrosis, lupus ... flight because my legs were so bad I couldn
Discussion: hair thinning
Support Group: Autoimmune Diseases
Posted: May 3, 2025
I went through this treatment the whole process has left me destroyed. Before the IV amakacin-Rifapin-Azithromicin-Clofazimine...
https://connect.mayoclinic.org/comment/1277916/
Ciprofloxacin which caused “drug induced lupus ... Knowing what I know now I would never ... have started treatment instead I would ... have done everything I could to boost
Discussion: Inhaled Amikacin and Clofazimine
Support Group: MAC & Bronchiectasis
Posted: Apr 9, 2025
I am so sorry you went through this. I guess I must have had mono at...
https://connect.mayoclinic.org/comment/1273122/
once the half was removed, everything would ... wanted to research it at the time, I couldn ... I went to my MD and told him I could ... symptoms, and my cheeks are red, maybe Lupus
Discussion: Does EBV cause Neurological Symptoms?
Support Group: Infectious Diseases
Posted: Apr 3, 2025
I was diagnosed in 2015 with primary APS, no lupus, falling an ischemic stroke with no...
https://connect.mayoclinic.org/comment/1294429/
diagnosed in 2015 with primary APS, no lupus ... This would mean a big change and to ... the fact that I have primary APS, No lupus
Discussion: Anyone have experience with Antiphospholipid syndrome (APS)?
Support Group: Autoimmune Diseases
Posted: May 1, 2025
Did you know that the NIH and many other institutions started trialing PAXLOVID on Jan. 23rd,...
https://connect.mayoclinic.org/comment/896538/
viruses in patients...HIV, herpes, lupus ... I would love to drive, think, eat, ... dismissively and inappropriately because I couldn
Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?
Support Group: Post-COVID Recovery & COVID-19
Posted: Jul 16, 2023
Hello @samflow, Welcome to Connect. Venting is OK. I would think with all you have been...
https://connect.mayoclinic.org/comment/1258799/
I would think with all you have been ... after seeing many different doctors would ... search=sjogren%27s -- "Lupus SLE ... search=Lupus%20SLE I know you have
Discussion: Pulmonologist says I should be dead by now
Support Group: Autoimmune Diseases
Posted: Mar 15, 2025
So sorry you are going through this, and it is very possible that it not anything...
https://connect.mayoclinic.org/comment/1217017/
Along the way I had a lupus diagnosis ... were in a field of tall weeds that we couldn
Discussion: Does anyone have any insight?
Support Group: Brain & Nervous System
Posted: Jan 20, 2025
I am in the process of being diagnosed with some type of lymphoma. I late February,...
https://connect.mayoclinic.org/comment/1264252/
recommendations: Wait a week and recheck, could ... At this point, thinking my doctor would ... from the jump with: ‘You thought you could ... keeping all of it from my wife who has lupus ... care of her parents and usually has a lupus
Discussion: I may have low grade lymphoma or it could be from inflammation
Support Group: Blood Cancers & Disorders
Posted: Mar 22, 2025
im sorry u r going thru it-the difficulty getting a dx, as well as dealing with...
https://connect.mayoclinic.org/comment/1258778/
of not getting the correct dx 4 her lupus ... get satisfaction from this doc, i would
Discussion: Possible Sjogrens Disease
Support Group: Autoimmune Diseases
Posted: Mar 15, 2025
I feel for you and know how frustrating it is to have all these symptoms and...
https://connect.mayoclinic.org/comment/1240416/
I lived with classic lupus symptoms ... Mixed Connective Tissue Disease and I would ... I would also ask to be started on a
Discussion: Not sure what to do? ANA negative but RNP repeatedly high
Support Group: Autoimmune Diseases
Posted: Feb 19, 2025
I have to apologize to anyone that may have reached out and commented on any posts...
https://connect.mayoclinic.org/comment/1271387/
As if anyone would WANT to be stricken ... because she had labs done first I couldn ... your Benlysta medication for your Lupus
Discussion: Bone marrow biopsy and/or blood tests for MGUS
Support Group: Blood Cancers & Disorders
Posted: Mar 31, 2025
Hello @britb88, Welcome to Connect. Sorry to hear you have to wait until December to see...
https://connect.mayoclinic.org/comment/1262398/
discussions and comments by members on Lupus ... search=could%20this%20be%20lupus. ... The Lupus Foundation of America has ... I did see that not everyone with Lupus ... /resources/common-symptoms-of-lupus.
Discussion: Need Help
Support Group: Autoimmune Diseases
Posted: Mar 20, 2025