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632 total results
Comments (542)
Churg Strause, Heart condition and Diabetes Sister, Ehlers-Danlos syndrome and lupus. Daughter and niece, POTS daughter...
https://connect.mayoclinic.org/comment/1407179/
Heart condition and Diabetes Sister, Ehlers-Danlos
I have had the exact same problem for years on the right side of my neck....
https://connect.mayoclinic.org/comment/921196/
I have Ehlers-Danlos Syndrome (EDS)
@jodyvick If you are interested in coming to Dallas, TX you may want to get in...
https://connect.mayoclinic.org/comment/1439720/
husband needed plastic surgery for his Ehlers
@curiousgirl2468 I feel for you and can empathize with your experience. You do have a lot...
https://connect.mayoclinic.org/comment/1273069/
testing for connective tissue disease/Ehlers ... •thin stretchy skin…Sounds like Ehlers ... •terrible scar healing…Sounds like Ehlers ... It is hypermobile Ehlers Danlos Syndrome ... out of place frequently…hypermobile Ehlers
@hopeful33250 Paracetamol is the brand name for Acetaminophen. I've heard multiple people state that Gabapentin causes...
https://connect.mayoclinic.org/comment/99601/
I have Ehlers Danlos Syndrome along
Thanks so much for the reply. I can't believe it's taken you 20 years to get...
https://connect.mayoclinic.org/comment/739605/
as I suggested the possibility of ehlers
So disappointing to be at The Mother Ship and feel unheard. Don't know if this is...
https://connect.mayoclinic.org/comment/860170/
He heads up their Ehlers Danlos specific
My daughter is 49. She was diagnosed about 6 or 7 years ago. I may be...
https://connect.mayoclinic.org/comment/1337024/
trifecta"--mast cell activation, Ehlers
Sherri, Just wondering, do his MRI's happen to note perineural cysts or Tarlov cysts on his...
https://connect.mayoclinic.org/comment/245662/
testing, and revealed that I also have Ehlers
All these symptoms can be many things, do not get overly scared, talk only to a...
https://connect.mayoclinic.org/comment/217841/
I have ehlers-danlos syndrome, was
I've been taking nsaids (aleeve) for almost 40 years. Only issue I have had is when...
https://connect.mayoclinic.org/comment/716112/
due to an inherited condition called Ehlers
Hello @pamelars60 -- welcome to Connect. Thank you for posting and sharing here on Mayo Connect....
https://connect.mayoclinic.org/comment/96857/
MCAS is often found in patients with Ehlers–Danlos
Please investigate Mast Cell Activation. Most physicians do not know anything about it. My daughter was...
https://connect.mayoclinic.org/comment/1377242/
He also diagnosed POTS and Ehlers Danlos
I’ve had over 40 surgeries in my life for Ehlers Danlos so I have learned all...
https://connect.mayoclinic.org/comment/801382/
had over 40 surgeries in my life for Ehlers
@alex30 Her main Mast Cell med is Cromolyn Sodium. It is in small clear plastic vials,...
https://connect.mayoclinic.org/comment/1524877/
Have you been diagnosed with POTS or Ehlers
I am 72 and have had all ten toes corrected w titanium pins! They were all...
https://connect.mayoclinic.org/comment/846354/
the fat in the feet, well, I have Ehlers-Danlos
@happyat76 I just happen to come across your post a few minutes ago. I am not...
https://connect.mayoclinic.org/comment/281052/
where I was diagnosed with Hypermobile Ehlers
Hello Dear, I'm so sorry for your hard conditions! I have an Adrenal Adenoma it's non...
https://connect.mayoclinic.org/comment/1481781/
I also have EDS, (Ehlers-Danlos Syndrome
I'm relatively new to this. I've had symptoms since last fall, finally got an appointment w/...
https://connect.mayoclinic.org/comment/1075992/
mother had lupus and my daughter has Ehlers-Danlos
Hello @@danmlee, Thank you for sharing your story; I'm truly sorry that you are going through...
https://connect.mayoclinic.org/comment/134285/
MCAS is often found in patients with Ehlers–Danlos
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