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712 total results
Comments (667)
@db72 Phoenix Rising member also. 33 years with ME/CFS for me .. I have much respect...
https://connect.mayoclinic.org/comment/1466218/
Rising member also. 33 years with ME ... /CFS for me .. ... For me, it's the opposite of that ... intention of presuming that what works for me
Discussion: Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Support
Support Group: Fibromyalgia
Posted: Dec 23, 2025
@prn2016 - I've had ME/CFS since 1986 and have been on LDN for 6 years. LDN...
https://connect.mayoclinic.org/comment/845798/
@prn2016 - I've had ME/CFS since ... has helped lesson the pain from FM, CFS ... back down to find the sweet spot for me
Discussion: Low dose Naltrexone for POTS helping alot
Support Group: Post-COVID Recovery & COVID-19
Posted: Apr 19, 2023
Yes. I deal with very dry eyes since I was a teen and it has gotten...
https://connect.mayoclinic.org/comment/757004/
been diagnosed with fibromyalgia and ME ... /CFS since 2011, but I suspect these
Discussion: How do you deal with dry eyes?
Support Group: Eye Conditions
Posted: Oct 4, 2022
Our brains are working exactly the same. I’m tired of the bloodwork that reveals nothing. I’m...
https://connect.mayoclinic.org/comment/690026/
and they can both run circles around me ... No treatment for me, and no one cares ... author of Seabiscuit and Unbroken has ME ... /CFS.
Discussion: Do other long haulers suffer with brain changes? Seen any improvement?
Support Group: Post-COVID Recovery & COVID-19
Posted: Mar 16, 2022
Hi, and thanks! The ME/CFS diagnosis doesn’t really fit because I am not really fatigued. The...
https://connect.mayoclinic.org/comment/1112628/
The ME/CFS diagnosis doesn’t really ... linked to long covid, which landed me ... The engineer in me wants to solve it
Discussion: Long haul Covid tremors and muscle spasms
Support Group: Post-COVID Recovery & COVID-19
Posted: Jul 27, 2024
I have been a long hauler since April 2022. Because of Me/CFS, I started LD Naltrexone...
https://connect.mayoclinic.org/comment/898716/
Because of Me/CFS, I started LD Naltrexone ... That titration was too quick for me, ... times and that seems to be helping me
Discussion: LDN dosing for fibromyalgia and ME/CFS
Support Group: Fibromyalgia
Posted: Jul 19, 2023
It’s very frustrating when doctors give conflicting directions. Post-exertional malaise, Chronic Fatigue Syndrome (CFS) and Exercise...
https://connect.mayoclinic.org/comment/1456372/
malaise, Chronic Fatigue Syndrome (CFS ... and Immunology, who is now referring me ... /CFS "fatigue" is not normal ... /CFS and Long-COVID https://youtu.be ... /CFS and long COVID (Very informative
Discussion: Long Covid relapse advice
Support Group: Post-COVID Recovery & COVID-19
Posted: Dec 8, 2025
@tls5alex Not sure if this will help... 10/19/2023 - Harlan Krumholz and Akiko Iwasaki (Rishi Shiah,...
https://connect.mayoclinic.org/comment/1404785/
8/25/2025 - Immunologist: Hope for ME ... /CFS and post-Covid, research needed ... those affected by conditions such as ME ... /CFS and long/post-COVID. ... She sharply rejected views that ME/CFS
Discussion: Yale study reports chronic symptoms after Covid vaccine.
Support Group: Post-COVID Recovery & COVID-19
Posted: Sep 29, 2025
Thank you everyone for your posts. I really appreciate feedback because I don’t feel like I...
https://connect.mayoclinic.org/comment/716188/
It seems to be similar to ME/CFS. ... My symptoms seem to fit more with ME ... /CFS partly because I don’t have the ... I have read a lot about ME/CFS and watched ... in my head, I’m like no that’s not me
Discussion: Need advice on multiple symptoms (*long post*)
Support Group: Just Want to Talk
Posted: Jun 10, 2022