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568 total results
Comments (533)
Hi, Thank you for sharing your experience. Curious, what symptoms were you experiencing with diverticulitis? And...
https://connect.mayoclinic.org/comment/1102876/
significant that Rifaximin helped me ... This to me points to gut infections ... hypothesis-matrix-metalloproteinase-inhibition-with-low-dose-doxycycline-in-long-covid-and-me-cfs-pghj-issue1
Hello @nlangmack, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
https://connect.mayoclinic.org/comment/629279/
Distinct Type of Pain in Fibromyalgia and ME ... /CFS: https://www.verywellhealth.com
Hi Mar2a, Although my symptoms are different than ours I wanted to reach out. My illness...
https://connect.mayoclinic.org/comment/183093/
basket of disorders often designated as ME ... /CFS and fibromyalgia. ... overriding, unifying diagnostic that all ME ... us current with developments in the ME
I hear you. I feel your pain. In 2009 -2009 I participated in a 2nd Stage...
https://connect.mayoclinic.org/comment/183056/
I was consequently diagnosed with ME ... /CFS. ... corroborated my conviction that my ME ... interferon syndrome, specifically, and ME ... /CFS, in general, I feel we must do
Hi, I am also glad to have found this post! I have the same result as...
https://connect.mayoclinic.org/comment/733117/
functional medicine MD that wants to treat me ... But he is willing to stick with me and ... your and your wife's journey with ME ... /CFS?
Yes, mine has been this high since Covid, early 2020 or before. I had mono as...
https://connect.mayoclinic.org/comment/899079/
could figure out what was wrong with me ... long-haul Covid, reactivated EBV, ME ... /CFS, Fibromyalgia, dysautonomia, POTS ... care still has the nerve to say to me ... because every one is tired of taking me
So, interesting. I came to share. I have long Covid or I get it about 9...
https://connect.mayoclinic.org/comment/1175422/
#39;22 insist on imaging and tapered me ... me back to my primary who I ended up ... can't get anyone to listen to me ... /CFS at .70 and then at .5 I get deathly ... They gave me 10 .25 Xanax it worked
Thanks for your info Jill! I appreciate your sharing how much went into your lengthy run...
https://connect.mayoclinic.org/comment/131202/
concerned at how he hasn't met me ... in Canada 35 years ago, my GP told me ... funny bruit in my abdomen and told me ... fatigue, food intolerances, allergies, ME ... /CFS etc. ever since.
Hi @thenazareneshul, I can help with the 3 different aspects of your post: 1. Regarding following...
https://connect.mayoclinic.org/comment/1137435/
called myalgic encephalomyelitis or ME ... /CFS) vs fibromyalgia
There are overlapping
Hi, I was only on 2x5mg /day but for 20 years. I first tapered too quickly...
https://connect.mayoclinic.org/comment/120834/
Neuro put me on Baclofen which was disastorous ... 22 years of illness (diagnosed with ME ... /CFS in ‘96), also hypermobility Syndrome ... - the feel/ sound of it frightens me
Becky, As always you are there to add great advice! It will be three years in...
https://connect.mayoclinic.org/comment/335957/
he is now in orthopedics and treats me ... right hip, but has been working with me ... to what was and still is wrong with me ... /CFS and its symptoms. ... My body just gave up on me!)
I know what you mean; I just can’t get comfortable with taking it…. If I wasn’t...
https://connect.mayoclinic.org/comment/1145882/
generally well tolerated” does not help me ... used for central sensitization, POTS, ME ... /CFS, etc. ... frameworks for treatment aren’t foreign to me
Hello Amy, I feel for you as I have been through this no-man’s-land of diagnosis. I...
https://connect.mayoclinic.org/comment/729711/
I know this is not about me but by outlining ... The doctor agreed, then called me back ... few days later needing to ‘talk to me ... post infectious syndromes such as ME ... /CFS can certainly occur after EBV and
@plucky you sure have had your share as well. Good for you to get out of...
https://connect.mayoclinic.org/comment/131208/
money, they were not happy my dad left me ... Also you can blame so much on the CFS ... /CFS. ... If you know one let me know. ... here, I am on a lot or just message me
Hi Dunnamac, So sorry to hear you are caught in the clutches of this nasty, under...
https://connect.mayoclinic.org/comment/921071/
It took six months for me to find that ... lot of "mix and match" with ME ... /CFS. ... Some (including me) believe that CFS ... GP did not know, but ran them
for me
I’m not sure the care at Rochester would differ much either, if they’d even see you…...
https://connect.mayoclinic.org/comment/1144169/
their 2-day treatment programs told me ... She even gave me a copy of the Mayo ... could extrapolate from that, that the CFS ... /CFS, but it seems to me that Mayo has ... This wasn’t a good fit for me because
Dang, you’re going through a lot too! Have you done the Radiance Diagnostics test that tests...
https://connect.mayoclinic.org/comment/1251755/
Things that have helped me are definitely ... and this really moved the needle for me ... these have also moved the needle for me ... He’s a ME/CFS, LC, chronic illness specialist ... For me, I’m not able to tolerate the
Hi Everyone. I went to my PCP in May 2021 because I had 2 lumps on...
https://connect.mayoclinic.org/comment/751181/
Felt like someone kicked me there with ... steel toed cowboy boots and burned me ... He sent me for an abdominal CT scan ... and other unrelated tests and told me ... I was eventually diagnosed with ME/CFS
++++++++++++++++++++ One prescribed seizure medication & the other prescribed migraine shots. Neither of these meds worked....
https://connect.mayoclinic.org/comment/1106927/
him I didn’t want meds prescribed to me ... inundated with patients like you, like me ... ; was told “no specialist will see me ... I’ve even looked into ME/CFS & asked
I was first seen at Mayo Rochester in 2017? Can't quite remember... And later, I was...
https://connect.mayoclinic.org/comment/1144294/
collectively unfortunately misdiagnosed me ... (a) delayed treatment and (b) made me ... framework for pacing that worked for me ... I didn't attend the ME/CFS program ... It just wasn't a good fit for me
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