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651 total results
Comments (610)
Had similar experiences with exercise. Most rheumatologists seem to prescribe this. They also seem to forget...
https://connect.mayoclinic.org/comment/731793/
malaise is a typical symptom of the ME ... /CFS. ... If my body tells me to stop, I stop. ... If you truly have ME/CFS, you won&#39
Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Support Group: Just Want to Talk
Posted: Jul 28, 2022
Hello! I found this post because like everyone else here, my labs are wonky and don't...
https://connect.mayoclinic.org/comment/1049716/
My Neurologist recently diagnosed me ... with Myalgic Encephalomyelitis (ME/ ... CFS), and I was referred to an Infectious ... From what I read about ME/CFS, there
Discussion: Epstein Barr Nuclear AG AB IGG result of over 600
Support Group: Infectious Diseases
Posted: Apr 12, 2024
Yes, I have. I was diagnosed at 18. I was in pain almost daily for 45...
https://connect.mayoclinic.org/comment/1412371/
treatment for fibromyalgia, as well as ME ... /CFS. ... was an absolute MIRACLE medicine for me ... A loved one even said to me, "Hey
Discussion: New alarming symptoms
Support Group: Fibromyalgia
Posted: Oct 10 5:51am
I have had ME/CFS fibromyalgia for 20+ years. LDN (low dose naltrexone) keeps the pain under...
https://connect.mayoclinic.org/comment/1327723/
I have had ME/CFS fibromyalgia for 20 ... Dr is trying me on Modafinil, a stimulant ... which my dr says is same symptoms as ME ... /CFS, but can't see him until Jan ... theory is, would also help us with ME
Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments
Support Group: Just Want to Talk
Posted: Jun 15 12:13pm
@jw9 yes! We do share so many of the same comorbid conditions and I am convinced...
https://connect.mayoclinic.org/comment/1429323/
One has been disabled with ME/CFS for ... The other doesn’t have ME but has several ... Canadian friends knew to call this ME ... one of the diagnostic hallmarks of ME ... PEM is marked by ME symptoms that are
Discussion: What to expect/do having ME/CFS?
Support Group: Autoimmune Diseases
Posted: Nov 2 5:37pm
Hello @christine32, Welcome to Connect. I know it must be difficult trying to find clothing that...
https://connect.mayoclinic.org/comment/977963/
Distinct Type of Pain in Fibromyalgia and ME ... /CFS: https://www.verywellhealth.com
Discussion: Clothing & Allodynia Help
Support Group: Neuropathy
Posted: Dec 10, 2023
@pluckyn welcome to the group!! Mals... well it is a significant surgery and one that is...
https://connect.mayoclinic.org/comment/131197/
controlled after the surgery, for me ... contributes to a lot of symptoms but so does ME ... /CFS.
Discussion: Median Arcuate Ligament Syndrome (MALS)
Support Group: Digestive Health
Posted: Mar 18, 2018
@theressa None of this has been my experience with the Mayo LC program. 1) I'm a...
https://connect.mayoclinic.org/comment/1385111/
M.D. who specializes in treating LC, ME ... /CFS, fibromyalgia, and POTS, in their ... /CFS) and Fibromyalgia. ... She spent over an hour with me and my ... The doctor wrote me a 12-page report
Discussion: Anyone have any success with going to an LC clinic?
Support Group: Post-COVID Recovery & COVID-19
Posted: Sep 2 1:42pm
To me, the hardest part of LC is the lack of recognition from doctors that it...
https://connect.mayoclinic.org/comment/1029939/
To me, the hardest part of LC is the ... It really throws me that now, 4 years ... POTS, orthostatic intolerance, PEM, ME ... /CFS, cognitive impairment as well as
Discussion: Long Covid Awareness Day D.C. March 15, 2024 - Join the Demonstration
Support Group: Post-COVID Recovery & COVID-19
Posted: Mar 8, 2024