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364 total results

Comments (338)

I realllllllly shouldnt post this, because I don’t want to be a downer. But. My immunologist...

https://connect.mayoclinic.org/comment/899233/

And Yes, I had told his MA about the MCAS

Discussion: Continued Post-Nasal Drip and Constant Mucus in Throat

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 20, 2023

Hello, I too was diagnosed end of March of ‘22 following suspected Covid infection from march...

https://connect.mayoclinic.org/comment/1233387/

chronic fatigue, anxiety, sleeplessness, mcas

Discussion: Anyone else has been diagnosed with central sensitization syndrome?

Support Group: Chronic Pain

Posted: Feb 10 4:51am

Hi..I’m 72 and have a number of disorders and immunity issues and syndromes…..while discovering my cure...

https://connect.mayoclinic.org/comment/798505/

syndromes…..while discovering my cure for MCAS

Discussion: High B12 bloodwork of 1859pg/ml and High ANA

Support Group: Autoimmune Diseases

Posted: Jan 18, 2023

Hi there. I also have anxiety issues, tachycardia & palpitations. I’m extremely sensitive to medications &...

https://connect.mayoclinic.org/comment/864028/

Syndrome, EDS or hyper mobility & MCAS

Discussion: What to use for anxiety with higher heart rate and a sensitive body.

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21, 2023

I hear you about being disappointed after being sick for frickin years! Questions I have for...

https://connect.mayoclinic.org/comment/1211388/

t tolerate medication well with my MCAS

Discussion: I feel like I’m slowly dying and nobody is helping

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 14 1:42pm

Hello. I'm sorry to hear you're suffering from internal tremors. I know how uncomfortable and scary...

https://connect.mayoclinic.org/comment/1335730/

and Mast Cell Activation Syndrome (MCAS

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: Jun 26 1:28pm

Hi, I’m really curious… how is everyone getting diagnosed with microclots? Although I have read so...

https://connect.mayoclinic.org/comment/905779/

I was checked for MCAS and supposedly

Discussion: I’m SO worried fiance 26 month LONG Covid - declining - ALONE

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 1, 2023

For context, I have MCAS (Mast Cell), and a history of ovarian cysts and SIBO.A few...

https://connect.mayoclinic.org/comment/887015/

For context, I have MCAS (Mast Cell)

Discussion: Pain after appendectomy

Support Group: Digestive Health

Posted: Jun 29, 2023

Finding what helps people with mast cell disorders either with mastocytosis or mcas or the newly...

https://connect.mayoclinic.org/comment/134335/

disorders either with mastocytosis or mcas

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2018

YES. There are many of us who have healed from long haul. You will not get...

https://connect.mayoclinic.org/comment/904899/

You can also research MCAS (mast cell

Discussion: Does anyone know of anyone who has gotten over Long Covid Condition?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 31, 2023

Thank you so much for the advice @lisag03! Because my diverticulitis is uncomplicated, even though I've...

https://connect.mayoclinic.org/comment/724153/

But, with the EDS, the MCAS, the lupus

Discussion: Problems months after colon resection surgery: What Helps?

Support Group: Colorectal Cancer

Posted: Jul 6, 2022

Dang, you’re going through a lot too! Have you done the Radiance Diagnostics test that tests...

https://connect.mayoclinic.org/comment/1251755/

have severe gut dysbiosis and have MCAS ... to tolerate the Maraviroc due to my MCAS

Discussion: Mestinon for Long Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 6 11:26am

Oh wonderful about the doctor! And yes, self educate and be the detective for yourself!…..it’s really...

https://connect.mayoclinic.org/comment/826584/

disorders are often comorbid conditions w MCAS

Discussion: How do you deal with oral allergy syndrome and histamine intolerance?

Support Group: Autoimmune Diseases

Posted: Mar 15, 2023

I got Covid in Feb 2020 so I've been dealing with all this for 2 1/2...

https://connect.mayoclinic.org/comment/742370/

Not true MCAS but Mast Cell related.

Discussion: I was diagnosed with Medically Induced Lupus but I don’t take any meds

Support Group: Autoimmune Diseases

Posted: Aug 27, 2022

Hi @tls5alex. Tracy I am so sorry you've gone thru so much. Your story so mimics...

https://connect.mayoclinic.org/comment/1269833/

rashes, fevers, body pains/ changes, mcas

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 30 7:46am

I would say you have Mast Cell Activation just like I do. All the things you...

https://connect.mayoclinic.org/comment/782155/

collagen deficiency ….but 40% of us have MCAS ... common co-morbid condition w EDS and MCAS

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Dec 7, 2022

Thankyou so much for responding!Someone else had mentioned MCAS too.It is definitely possible that it is...

https://connect.mayoclinic.org/comment/1015392/

Someone else had mentioned MCAS too.It ... feeling of being poisoned could be the MCAS.I

Discussion: No Doctor can figure out what is wrong with me

Support Group: Infectious Diseases

Posted: Feb 13, 2024

Hey guys! Just thought I’d add my experience with INF here as well, in case anyone...

https://connect.mayoclinic.org/comment/917701/

It seems I have a minor form of MCAS

Discussion: My Experience with Neuropathic Therapy Center at Loma Linda University

Support Group: Neuropathy

Posted: Aug 23, 2023

12ish years ago, I had a C-Diff infection…a few years before a ruptured appendix. Both took...

https://connect.mayoclinic.org/comment/1142004/

cell activation syndrome, also called MCAS

Discussion: Allergy to B vitamins

Support Group: Neuropathy

Posted: Sep 15, 2024

Have you looked into Mast cell activation syndrome (disease)? After 2 years of no-diagnoses for my...

https://connect.mayoclinic.org/comment/309947/

procedure in the book) our research found MCAS

Discussion: No diagnosis chronic pain

Support Group: Chronic Pain

Posted: May 8, 2020