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861 total results
Comments (787)
My husband has been diagnosis with wild amyloidosis. We live in NJ. I would like to...
https://connect.mayoclinic.org/comment/380266/
husband has been diagnosis with wild amyloidosis
You definitely need alcohol septal ablation surgery. I had HOCM and had the surgery. I still...
https://connect.mayoclinic.org/comment/1162426/
I also have cardiac amyloidosis (stiff
Had Rituxan and Bendamustine for MZL ,and was discontinued after two cycles due tom intolerance. Oncologist...
https://connect.mayoclinic.org/comment/845626/
for persistent Afib with cardiac amyloidosis
Yes. The physicians are looking for the type of Amyloid my husband has. He was diagnosed...
https://connect.mayoclinic.org/comment/910069/
He was diagnosed with Cardiac Amyloidosis
Thank you - I just got the results on the heart biopsy and it says "no...
https://connect.mayoclinic.org/comment/1197939/
the heart biopsy and it says "no amyloidosis
@ling123 Actually, all the diseases I mentioned are part of the Amyloidosis Light Chain system. There...
https://connect.mayoclinic.org/comment/212565/
diseases I mentioned are part of the Amyloidosis
At the end of the presentation you mentioned there are possible toxicity issues with long term...
https://connect.mayoclinic.org/comment/381188/
My concern is that for relapsed AL Amyloidosis
My husband has been suffering of weakness in whole body, edema in legs dizziness, low heart...
https://connect.mayoclinic.org/comment/871029/
where he was diagnosed with Cardiac Amyloidosis ... anyone being diagnosed with Cardiac Amyloidosis
@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...
https://connect.mayoclinic.org/comment/74558/
pvc's and lots of pain, are typical amyloidosis ... Morey Gertz of Mayo, and the Amyloidosis
Hello! Countrygirlusa here! It has been a while since I have written anything on this forum....
https://connect.mayoclinic.org/comment/1282662/
I received my SCT for AL Amyloidosis ... anyone who has been diagnosed with Amyloidosis
I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....
https://connect.mayoclinic.org/comment/88301/
had a diagnosis in April 2011 of AL amiloidosis ... a great pathologist who suspected amyloidosis ... has led to my diagnostic of amyloidosis
I took camzyos for HCM, and lost taste. I was later diagnosed with AL Amyloidosis systemic....
https://connect.mayoclinic.org/comment/1468463/
I was later diagnosed with AL Amyloidosis
Hi I am on a similar treatment for AL amyloidosis kappa light chain. My treatment includes...
https://connect.mayoclinic.org/comment/1205328/
I am on a similar treatment for AL amyloidosis
@nanook1970 Just a little addition. Diarrhea and constipation swapping with each other are a very common...
https://connect.mayoclinic.org/comment/50839/
common symptom of several forms of Amyloidosis
I am having tremors in the hands, arms and legs which leads to falling down. I...
https://connect.mayoclinic.org/comment/104728/
have tremors and falling issues with Amyloidosis
NavyLady, I recognize your problem, but I cannot do much about it but give some simple...
https://connect.mayoclinic.org/comment/209975/
samples to Mayo-MN to have it tested for Amyloidosis ... decisions that Mayo had confirmed I had no Amyloidosis ... could not rule out other Light Chain Amyloidosis
@grokking LA Sorry to hear about what you have, but don't be too upset. Truth is,...
https://connect.mayoclinic.org/comment/194230/
available from Mayo, NIH, Alnylam, Boston Amyloidosis ... at https://www.bit.Ly/1w7j4j8 "Amyloidosis ... about 10 years old, and expensive, is Amyloidosis
@ske22 Looks very much like my Gelsolin (AKA Finnish Amyloidosis) and/or Fukatin Limb Girdle Muscular Dystrophy.....
https://connect.mayoclinic.org/comment/337577/
much like my Gelsolin (AKA Finnish Amyloidosis
I have been recently diagnosed with AL Amyloidosis in March 2019. I was experiencing swelling of...
https://connect.mayoclinic.org/comment/88329/
have been recently diagnosed with AL Amyloidosis ... The diagnosis of Amyloidosis was made
@fransav .. I went hunting .. I do NOT know if this related .. I am...
https://connect.mayoclinic.org/comment/60908/
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo ... http://www.amyloidosis.org/
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