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861 total results
Comments (787)
My husband has been suffering of weakness in whole body, edema in legs dizziness, low heart...
where he was diagnosed with Cardiac Amyloidosis ... anyone being diagnosed with Cardiac Amyloidosis
Support Group: Heart & Blood Health
Posted: Jun 2, 2023
I had a diagnosis in April 2011 of AL amiloidosis with one organ involved, my liver....
had a diagnosis in April 2011 of AL amiloidosis ... a great pathologist who suspected amyloidosis ... has led to my diagnostic of amyloidosis
Posted: Mar 13, 2016
NavyLady, I recognize your problem, but I cannot do much about it but give some simple...
samples to Mayo-MN to have it tested for Amyloidosis ... decisions that Mayo had confirmed I had no Amyloidosis ... could not rule out other Light Chain Amyloidosis
Support Group: MAC & Bronchiectasis
Posted: Mar 5, 2020
@grokking LA Sorry to hear about what you have, but don't be too upset. Truth is,...
available from Mayo, NIH, Alnylam, Boston Amyloidosis ... at https://www.bit.Ly/1w7j4j8 "Amyloidosis ... about 10 years old, and expensive, is Amyloidosis
Support Group: Autoimmune Diseases
Posted: Mar 30, 2018
@fransav .. I went hunting .. I do NOT know if this related .. I am...
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo ... http://www.amyloidosis.org/