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927 total results
Comments (883)
@zwieper @efgh1020 @gracen22 @kmst1994 @collierga @dbeshears1 @julbpat and anyone else I missed in this thread. Here's...
came here originally to learn about Small ... Fiber Neuropathy. ... I live on small wins too, I live on ... breathing techniques and relaxation to help ... learned and how they can support and help
Support Group: Neuropathy
Posted: Jun 8, 2022
Hello Cindy @sav4 welcome! Thank you for joining the conversation. Chilblains....nasty!!! I am sorry you are...
chilblains and did not have a clue what ... in, I had just been diagnosed with small ... fiber neuropathy. ... understanding that CSS was present, helped ... Maybe CSS helps to explain that weird
Greetings to you @drorvick. What a strong and aggressive (in a good way) patient you are....
What a strong and aggressive (in a good ... with the pain and discomfort of SFN (small ... fiber neuropathy). ... Connect will do everything we can to help
Support Group: Neuropathy
Posted: May 19, 2022
Good evening @miserable and welcome to Connect. Everyone on Connect learns by sharing. We all try...
condition(s) so that we can not only help ... Neuropathy is a condition without a ... For example, I have SFN (small fiber ... responses in this group to find out what ... Other than gabapentin, what else have
Support Group: Neuropathy
Posted: May 14, 2022
Good evening @wake and @clcaey. I am @artscaping and am responding to your inquiries about reflexology...
the process of diagnosing my SFN....small ... fiber neuropathy. ... In the small village where I lived, ... suggested that I let her try and see what ... What do you think would be most helpful
Support Group: Neuropathy
Posted: May 12, 2022
Hi @kmst1994, Welcome to Connect. You will notice that we merged your discussion with another discussion...
notification it will take you to the Small ... Fiber Neuropathy where you can meet ... fiber neuropathy. ... integrative therapies that you might find helpful ... comment/310341/ Do you mind sharing what
Support Group: Neuropathy
Posted: Apr 28, 2022
Hi Michael @mikeamazur, Welcome to Connect. I used to love a glass of wine or a...
and what treatments may help provide ... few discussions that you might find helpful ... on neuropathy and alcohol: --- Small ... fiber peripheral neuropathy and alcohol ... /connect.mayoclinic.org/discussion/small-fiber-peripheral-neuropathy-and-alcohol
Support Group: Neuropathy
Posted: Feb 19, 2023
Does support hose help the burning or pain sensations of small fiber neuropathy? What benefits might...
Does support hose help the burning or ... pain sensations of small fiber neuropathy ... What benefits might I experience by
Support Group: Neuropathy
Posted: Jan 29, 2023
Hi Kim @kim555, Welcome to Connect. I have idiopathic small fiber peripheral neuropathy along with PMR...
I have idiopathic small fiber peripheral ... neuropathy along with PMR and a few ... What has been helping me is being more ... article from the Sleep Foundation helpful ... Can you let me know what you find out
Posted: Jan 28, 2023
Hi! Wondering if you’ve had a punch biopsy? A punch biopsy can help determine whether you...
you have small fiber neuropathy. ... fiber neuropathy is diabetes, and even ... fiber neuropathy.” ... Small fiber neuropathy is considered ... happy to have MS, I’m relieved to know what
Support Group: Neuropathy
Posted: Sep 10, 2022
In have come to think of insomnia, as an old acquaintance. Last night I was thinking,...
I had to find another doctor to help ... those medications that didn't help ... Plus, I still will battle small fiber ... neuropathy. ... What a cruel cruel practioner.
Support Group: Neuropathy
Posted: Sep 4, 2022
Hi! Thx for sharing all the invaluable info! Questions - Are you diabetic? - if not,...
you had a punch biopsy that confirms small ... fiber neuropathy? ... My wisdom … We know our body best + what ... After a negative small fiber punch biopsy ... You may help yourself or someone you
Support Group: Neuropathy
Posted: Aug 26, 2022
@sdykema Hi Steve - Wow, great news that you will soon be headed to Mayo and...
about migraines, eye conditions and small ... fiber neuropathy, etc... ... Perhaps his video will help you understand ... post-Covid clinic for long-haulers to help ... PRC was an amazing program and helped
@tom01255 I take most of the supplements listed on page 5 & 6 of this document...
I do feel like it's helped slow ... possibly stopped the progression of my small ... fiber PN. ... Journey Stories: What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Aug 22, 2022
i have small fiber neuropathy caused by Igm mgus and tshds antibody which is an immune...
i have small fiber neuropathy caused ... alpha lipoic acid and turmeric but what ... helps for a little while is cayenne
Support Group: Neuropathy
Posted: Sep 22, 2022
Hi @vash - Did your neurologist perform a skin punch biopsy to diagnose small fiber neuropathy?...
perform a skin punch biopsy to diagnose small ... fiber neuropathy? ... That would certainly help explain your ... What small tasks can you keep busy with
Are you under the care of a neurologist? Do you have any past problems taking opioids?...
Since I switched to Tegretol for my neuropathy ... office today and tell them exactly what ... The doctor can’t help you if he doesn ... I have idiopathic length-dependent small ... fiber poly neuropathy, and (maybe)
Support Group: Neuropathy
Posted: Mar 27, 2023
Hello @pmom, my name is Chris and I certainly understand your point. The fact that there...
I was diagnosed with SFN (small fiber ... neuropathy) in 2013. ... And when we know that neuropathy is ... So....what I have learned is that it ... What is your most challenging symptom
Support Group: Neuropathy
Posted: Oct 22, 2022
Hello @lenaybrown, it is frustrating not knowing what to do when you have neuropathy symptoms along...
lenaybrown, it is frustrating not knowing what ... which turned out to be idiopathic small ... fiber peripheral neuropathy. ... main symptoms you are looking for what ... doctor given you any suggestions for what
I never had Covid but the boosters almost killed me. Besides the chest pain all that...
that you have described sounds like small ... fiber sensory neuropathy. ... But I’m not sure if it’s from the small ... fiber sensory issues or the Autonomic ... works and what does not.
Support Group: Neuropathy
Posted: Nov 7, 2022