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302 total results

Comments (281)

YES. There are many of us who have healed from long haul. You will not get...

https://connect.mayoclinic.org/comment/904899/

You can also research MCAS (mast cell

Discussion: Does anyone know of anyone whom has gotten over Long Covid Condition

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 31, 2023

Thank you so much for the advice @lisag03! Because my diverticulitis is uncomplicated, even though I've...

https://connect.mayoclinic.org/comment/724153/

But, with the EDS, the MCAS, the lupus

Discussion: Problems months after colon resection surgery: What Helps?

Support Group: Colorectal Cancer

Posted: Jul 6, 2022

Oh wonderful about the doctor! And yes, self educate and be the detective for yourself!…..it’s really...

https://connect.mayoclinic.org/comment/826584/

disorders are often comorbid conditions w MCAS

Discussion: How do you deal with oral allergy syndrome and histamine intolerance?

Support Group: Autoimmune Diseases

Posted: Mar 15, 2023

I would say you have Mast Cell Activation just like I do. All the things you...

https://connect.mayoclinic.org/comment/782155/

collagen deficiency ….but 40% of us have MCAS ... common co-morbid condition w EDS and MCAS

Discussion: Facial Swelling - no diagnosis

Support Group: Autoimmune Diseases

Posted: Dec 7, 2022

I got Covid in Feb 2020 so I've been dealing with all this for 2 1/2...

https://connect.mayoclinic.org/comment/742370/

Not true MCAS but Mast Cell related.

Discussion: I was diagnosed with Medically Induced Lupus but I don’t take any meds

Support Group: Autoimmune Diseases

Posted: Aug 27, 2022

So, interesting. I came to share. I have long Covid or I get it about 9...

https://connect.mayoclinic.org/comment/1175422/

have accumulated with long Covid (MCAS

Discussion: Having long COVID, how is your mental health?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 18 9:04am

Thankyou so much for responding!Someone else had mentioned MCAS too.It is definitely possible that it is...

https://connect.mayoclinic.org/comment/1015392/

Someone else had mentioned MCAS too.It ... feeling of being poisoned could be the MCAS.I

Discussion: No Doctor can figure out what is wrong with me

Support Group: Infectious Diseases

Posted: Feb 13 11:32pm

Hey guys! Just thought I’d add my experience with INF here as well, in case anyone...

https://connect.mayoclinic.org/comment/917701/

It seems I have a minor form of MCAS

Discussion: My Experience with Neuropathic Therapy Center at Loma Linda University

Support Group: Neuropathy

Posted: Aug 23, 2023

12ish years ago, I had a C-Diff infection…a few years before a ruptured appendix. Both took...

https://connect.mayoclinic.org/comment/1142004/

cell activation syndrome, also called MCAS

Discussion: Allergy to B vitamins

Support Group: Neuropathy

Posted: Sep 15 1:11pm

@jpearo Are any of your doctors treating the breathing problems? Like with inhalers or steroids? Regardless...

https://connect.mayoclinic.org/comment/134363/

even if you have the diagnosis of MCAS

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2019

Have you looked into Mast cell activation syndrome (disease)? After 2 years of no-diagnoses for my...

https://connect.mayoclinic.org/comment/309947/

procedure in the book) our research found MCAS

Discussion: No diagnosis chronic pain

Support Group: Chronic Pain

Posted: May 8, 2020

I believe in my case yes 😓it’s progressing really fast. I was first having dumping syndrome...

https://connect.mayoclinic.org/comment/773772/

from the removal, other malignancy, MCAS

Discussion: Does anyone know if gastroparesis is progressive over time?

Support Group: Digestive Health

Posted: Nov 16, 2022

Hey, rhawk/Robert! Delighted to share what has worked for me. 2 capsules of DAO enzyme with...

https://connect.mayoclinic.org/comment/742123/

strictly cutaneous masto escalated to MCAS

Discussion: Mast Cell Activation Syndrome: What treatments help you?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2022

Hi Erin….well I am older!….I’m 72 now but had it at I think 60 or so....

https://connect.mayoclinic.org/comment/772442/

This year I was flattened by MCAS so

Discussion: Prolapse bowel surgery: What was your recovery like?

Support Group: Digestive Health

Posted: Nov 12, 2022

Thank you for highlighting this topic. I've definitely found that the stress of managing chronic pain...

https://connect.mayoclinic.org/comment/899797/

condition that affects this population (MCAS

Newsfeed Post: The Impact on Mental Health: Living with EDS/HSD

Blog: Ehlers-Danlos Syndrome

Posted: Jul 21, 2023

Not replying to anyone in particular but a huge "thank you!" to everyone! Due to the...

https://connect.mayoclinic.org/comment/739725/

cutaneous mastocytosis escalated to MCAS-GI

Discussion: Magnesium and heart rhythm problems

Support Group: Heart Rhythm Conditions

Posted: Aug 20, 2022

Your experience sounds a lot like mine with having to be your own advocate and trialing...

https://connect.mayoclinic.org/comment/1041700/

Lyme’s or bad cases of EBV, CMV, have MCAS

Discussion: Long Covid and Doxycycline: Inflammation Theory

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 28 1:04pm

Hi @kariulrich , I have been meaning to pm you for so long. Things have been...

https://connect.mayoclinic.org/comment/169911/

He thought mcas, and pots.

Discussion: Post-MALS surgery

Support Group: Digestive Health

Posted: Sep 11, 2018

Hi there- Your post caught my eye because I have POTS, HSD (the subclinical version of...

https://connect.mayoclinic.org/comment/1022899/

version of EDS) and am suspected of MCAS

Discussion: Low back, Hip, & Leg Pain

Support Group: Chronic Pain

Posted: Feb 26 9:02am

Hi everyone, This will be my fourth year of having long covid (I’ve had it 11...

https://connect.mayoclinic.org/comment/1048174/

Look up MCAS, in short your body is

Discussion: What am I actually supposed to be doing to get better?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 10 12:24am