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410 total results

Comments (378)

Cathy, Dr. Arce's number is 904-383-1022. He's with Shands, Univerity of Florida, in Jacksonville. Talk to...

https://connect.mayoclinic.org/comment/214479/

I got Dystonia from my Mom's side

Discussion: Monthly shaking episodes that continue to progress. Anyone else?

Support Group: Brain & Nervous System

Posted: Nov 16, 2018

Hi Gabe, I haven't and I don't know if I will post on CrowdMed, their fees...

https://connect.mayoclinic.org/comment/672294/

Because I have Dystonia as well, I am

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 18, 2022

@258068802 Hi, I’ve suffered from debilitating migraines for most of my life. It seems that if...

https://connect.mayoclinic.org/comment/1469886/

I have cervical dystonia - which causes

Discussion: Headache and Migraine Group: Let’s connect

Support Group: Headache & Migraine

Posted: Dec 29, 2025

I have not been diagnosed but I believe I have had this for 10 years. I...

https://connect.mayoclinic.org/comment/1321834/

When I got home I researched pelvic dystonia ... (I was diagnosed with generalized dystonia

Discussion: Pelvic pain - Persistent genital arousal disorder (PGAD)?

Support Group: Chronic Pain

Posted: Jun 6, 2025

Hello Maxine and Walt Your story is very similar to ours ( my wife Kari) like...

https://connect.mayoclinic.org/comment/1365898/

journey Gary and (Kari with focal dystonia ... Kari was diagnosed in 2016 with Focal dystonia

Discussion: Our journey w/DBS for Parkinson's

Support Group: Parkinson's Disease

Posted: Aug 7, 2025

Thanks. Went down Dystonia path, I don't have that I believe. Or at least I had...

https://connect.mayoclinic.org/comment/992080/

Went down Dystonia path, I don't

Discussion: Functional (neurological) Movement Disorder: Next steps?

Support Group: Brain & Nervous System

Posted: Jan 5, 2024

Hello @d13 I see that you are interested in learning more about this rare disorder. Here...

https://connect.mayoclinic.org/comment/669768/

connect.mayoclinic.org/discussion/i-have-generalized-dystonia-and-hnpp-paraxial-vocal-cord-disorder-dysphagia-advanced

Discussion: Primary Progressive Aphasia

Support Group: Brain & Nervous System

Posted: Jan 10, 2022

I was given a tentative diagnosis last week of abdominal dystonia. When I stand erect, the...

https://connect.mayoclinic.org/comment/163077/

tentative diagnosis last week of abdominal dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Nov 12, 2019

I am happy to find this group. After over 6 years of seeking help, I was...

https://connect.mayoclinic.org/comment/200375/

consult with a new neuro: diagnosed with Dystonia

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: May 17, 2018

Hi Gabe, I just came across your post and read it thoroughly. I haven't read the...

https://connect.mayoclinic.org/comment/670121/

know if VCD is considered a type of Dystonia ... but I also have Dystonia. ... My Dystonia is "multifocal"

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 11, 2022

Hi hope everyone is well, I haven't found many people on here with cervical dystonia. I...

https://connect.mayoclinic.org/comment/193098/

many people on here with cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Nov 20, 2020

I took clonazepam 1mg at bedtime for almost 20 years. As soon as I turned 65,...

https://connect.mayoclinic.org/comment/1007619/

sleepless nights, anxiety, and my focal dystonia

Discussion: Trazadone use for insomnia for seniors

Support Group: Depression & Anxiety

Posted: Feb 1, 2024

I do not want this to influence your decision. I have a Stimwave in my upper...

https://connect.mayoclinic.org/comment/234656/

Seizure or dystonia type activity began

Discussion: Has anyone had the Stimwave spine stimulator installed?

Support Group: Spine Health

Posted: Mar 25, 2021

Yes, think that's it. I was concerned that the tubing caring the dulatid to his neck/shoulder...

https://connect.mayoclinic.org/comment/255359/

He has dystonia, pain all over his body

Discussion: Pain pump, I have one, how about one for you?

Support Group: Chronic Pain

Posted: Dec 5, 2020

Lisa, When I was teaching I was not depressed or anxious. I loved teaching and enjoyed...

https://connect.mayoclinic.org/comment/152028/

developed anxiety and head tremor (dystonia

Discussion: Working with an employer once diagnosed with depression

Support Group: Depression & Anxiety

Posted: Feb 21, 2020

Hi Nancy, I'm sorry to hear of your difficulty with muscle spasms. It seems that the...

https://connect.mayoclinic.org/comment/287476/

It seems that the dystonia diagnosis

Discussion: undiagnosed movement disorder

Support Group: Brain & Nervous System

Posted: Dec 29, 2019

Long covid for 2+ years now. My taste buds have changed. I no longer can tolerate...

https://connect.mayoclinic.org/comment/1311998/

I have POTs, MCAS and dystonia ...

Discussion: Taste and depression from long covid

Support Group: Post-COVID Recovery & COVID-19

Posted: May 24, 2025

Hello. I’m new here and wish to say thank you for being here. I guess I’m...

https://connect.mayoclinic.org/comment/1268098/

poor proprioception and trunk and leg dystonia

Discussion: Sensory Ganglionopathy help!!

Support Group: Neuropathy

Posted: Mar 27, 2025

Thank you for posting the nih website. The information was helpful. I have PD and "something...

https://connect.mayoclinic.org/comment/182551/

different diagnostic names: abdominal dystonia

Discussion: Camptocormia (bent spine syndrome or BSS): Looking for others

Support Group: Spine Health

Posted: Jun 24, 2020

Hi, I was diagnosed with Spasmodic Torticollis in 1992, at the Medical College of GA. I...

https://connect.mayoclinic.org/comment/163061/

Howard Thiel, president of Dystonia ... uncles and many cousins show signs of Dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Jun 1, 2018