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Comments (2,205)

Glad this is helpful. There is another advocacy group as well: Sjogren’s Adbicate: https://www.sjogrensadvocate.com/disclaimers Wishing you...

https://connect.mayoclinic.org/comment/1183112/

is another advocacy group as well: Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Dec 2, 2024

How long have you been on the IvIg? I have been on it for Sjogren's (SFN)...

https://connect.mayoclinic.org/comment/1181798/

I have been on it for Sjogren's ... is one of the favorite things the Sjogren

Discussion: Just developed signs of IGA vasculitis ( Henoch Schonlein purpura).

Support Group: Autoimmune Diseases

Posted: Nov 29, 2024

Welcome @bboomer, Thanks for sharing what has helped you manage your Sjogren's symptoms. It really helps...

https://connect.mayoclinic.org/comment/1181655/

sharing what has helped you manage your Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 29, 2024

The best treament for systemic Sjogren's seems to be IvIg which can be very expensive if...

https://connect.mayoclinic.org/comment/1180991/

The best treament for systemic Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Nov 27, 2024

Have you had a Sjogren's work up? It is a big cause of SFN although, mostly...

https://connect.mayoclinic.org/comment/1180710/

Have you had a Sjogren's work up

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Nov 27, 2024

Please have your B12 and B3 (niacin) levels checked. I have been battling with B deficiency...

https://connect.mayoclinic.org/comment/1175838/

described are consistent along with Sjogrens

Discussion: Complex Patient seeking answers

Support Group: Autoimmune Diseases

Posted: Nov 18, 2024

The neurologist does the biopsy. Since, Ihave lupus with neuropathy and Sjohrens my neurologist orders the...

https://connect.mayoclinic.org/comment/1172096/

Since, Ihave lupus with neuropathy and Sjohrens

Discussion: Small fiber neuropathy?

Support Group: Neuropathy

Posted: Nov 12, 2024

I may not experience it to the extent that you do, but I am quite familiar...

https://connect.mayoclinic.org/comment/1168567/

It might be wise to rule out Sjogren

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 5, 2024

Even though you don't have Sjogrens, you could still do some of the treatments that we...

https://connect.mayoclinic.org/comment/1164445/

Even though you don't have Sjogrens ... My husband doesn't have Sjogrens

Discussion: Severe dry tongue and mouth, burning lips, cheeks, and nose

Support Group: Brain & Nervous System

Posted: Oct 29, 2024

I have been tested for Sjogrens as per my request! Results were negative Thank you for...

https://connect.mayoclinic.org/comment/1164074/

I have been tested for Sjogrens as per

Discussion: Severe dry tongue and mouth, burning lips, cheeks, and nose

Support Group: Brain & Nervous System

Posted: Oct 28, 2024

Good morning, Other than extensive fatigue, I had no other symptoms associated with the AH. Sjogren's...

https://connect.mayoclinic.org/comment/1203651/

Sjogren's was and is another story ... contributor to the cancer was the Sjögren

Discussion: Autoimmune Hepatitis and remission?

Support Group: Autoimmune Diseases

Posted: Jan 4 10:26am

I ask because I came at it the other way, with negative EMG and then (very)...

https://connect.mayoclinic.org/comment/1241396/

I had Sjogren's Disease (determined ... Some progress on the Sjogren's,

Discussion: Living With Large-Fiber Neuropathy

Support Group: Neuropathy

Posted: Feb 20 10:17am

Hi 👋 I was diagnosed with Raynauds about 10 years ago. My rheumatologist thought I also...

https://connect.mayoclinic.org/comment/1178546/

also possibly had either lupus or Sjögren ... and in 2021, I was diagnosed with Sjögren

Discussion: Anyone living with Raynaud's?

Support Group: Autoimmune Diseases

Posted: Nov 23, 2024

I've had Sjogren's for 30 years and in 2023, I was diagnosed with Extranodal Marginal Zone...

https://connect.mayoclinic.org/comment/1241539/

I've had Sjogren's for 30 years ... So yes, if you have Sjogren's, ... Disease which is also associated with Sjogren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 20 12:39pm

John, I'm tagging a few people here. @jyth takes modfinil to help manage fibromyalgia. I'm not...

https://connect.mayoclinic.org/comment/104337/

have recently posted about having Sjogren's

Discussion: Sjogren's and headache

Posted: Jun 5, 2016

I have Sjogren's and migraines. I've been taking Cevimeline for years for the Sjogren's. It seems...

https://connect.mayoclinic.org/comment/104340/

I have Sjogren's and migraines. ... taking Cevimeline for years for the Sjogren's

Discussion: Sjogren's and headache

Posted: Jun 6, 2016

God bless you you've had one liver transplant and another I'm suffering from cirrhosis but I...

https://connect.mayoclinic.org/comment/1220861/

showed that I tested positive for Sjogren ... but I don't have the symptoms of Sjogren

Discussion: Body making too much Vitamin B6

Support Group: Chronic Pain

Posted: Jan 24 7:00pm

@SusanEllen66 I was thought to have been diabetic back in 2016 now a few years later...

https://connect.mayoclinic.org/comment/1234101/

armrest full on my recliner ) With Sjögren

Discussion: Can’t seem to stay awake throughout the day!

Support Group: Brain & Nervous System

Posted: Feb 11 12:46am

I have posted alot about my SFN caused by Sjogren's and Its effect on my balance...

https://connect.mayoclinic.org/comment/1235220/

posted alot about my SFN caused by Sjogren

Discussion: Leg Weakness! And how to recover? And success with movement

Support Group: Neuropathy

Posted: Feb 12 11:10am

Hi Do you have sjorgrens?

https://connect.mayoclinic.org/comment/1235449/

Hi Do you have sjorgrens?

Discussion: Low Level Light Therapy - BMS - Any Success

Support Group: Skin Health

Posted: Feb 12 4:43pm