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319 total results

Comments (299)

Yes - please keep us posted. It is horrible @ yes agree total Hell. Pristiq has...

https://connect.mayoclinic.org/comment/69598/

system disorders –Syncope, convulsion, dystonia

Discussion: Side effects of Pristiq

Support Group: Depression & Anxiety

Posted: Dec 29, 2018

Hello, and thank you for your wonderful, insightful discussion. You have said so well what I...

https://connect.mayoclinic.org/comment/599862/

#39;t diagnosed for over 5 years, as dystonia ... neurologist at Mayo who specializes in dystonia

Discussion: Pain pump, I have one, how about one for you?

Support Group: Chronic Pain

Posted: May 6, 2021

Hello. This all sounds identical to what I have been going through for many years now....

https://connect.mayoclinic.org/comment/895952/

They believe it is cervical dystonia

Discussion: Nuchal Tendon Occification/Calcification

Support Group: Spine Health

Posted: Jul 14, 2023

@gardengal33, @babette, @lynettegable and all...My son has extreme pain from 20 years with dystonia. He's in...

https://connect.mayoclinic.org/comment/725508/

has extreme pain from 20 years with dystonia

Discussion: Who Here Has Had Nerve Ablation/Radioactive Neurotomy (same thing)?

Support Group: Bones, Joints & Muscles

Posted: Jul 10, 2022

What a nice message from you, Fiesty76. Thank you. I'm only now feeling the huge lift...

https://connect.mayoclinic.org/comment/328271/

helping my disabled 53 year old son - dystonia

Discussion: As the Pandemic Spreads, So Can Our Thanks

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 6, 2020

Your experience is not uncommon for individuals with spasmodic dysphonia. While Botox can be a very...

https://connect.mayoclinic.org/comment/932629/

system causing tremors in the body, dystonia

Discussion: Speech Difficulty (dysarthria) - Autoimmune Cerebellar Ataxia

Support Group: Brain & Nervous System

Posted: Sep 19, 2023

Hello, daphn47. Does youre muscle tightness cause pain all over? Cramping or spasms or constant contractions?...

https://connect.mayoclinic.org/comment/329736/

He's diagnosed with dystonia.

Discussion: I have extremely tight muscles. Nothing seems to help. Advice?

Support Group: Chronic Pain

Posted: Dec 13, 2020

@southtexas, @johnbishop, and all...I'm feeling poorly at the moment, with extreme fatigue...went to bed for the...

https://connect.mayoclinic.org/comment/1002423/

m researching this oil for my son, Dystonia

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 11:21am

So sorry to hear all this. I work at Mayo Clinic and my husband was diagnosed...

https://connect.mayoclinic.org/comment/49557/

As for dystonia, he does not have that

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Jan 19, 2018

@justinmcclanahan, @johnbishop, @ingritamoreno, and all...I just found your site and your messages by mistake and am...

https://connect.mayoclinic.org/comment/909658/

diagnosed for 20+ years with Cervical Dystonia

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Aug 8, 2023

I have not been diagnosed with MS. However, one of my symptoms of PD seems to...

https://connect.mayoclinic.org/comment/118554/

similar to the ms hug: Diaphragmatic dystonia

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Jan 18, 2020

Hi, Ginger. I had the Maderna vaccine. Interesting timing on your bloodwork. I wonder if they'd...

https://connect.mayoclinic.org/comment/332754/

alone and disabled for 20 years w/dystonia

Discussion: "Quality of life"......a gift that just keeps on giving.

Support Group: Aging Well

Posted: Feb 7, 2021

omg I have had what I call internal vibrations that rarely go away, I was told...

https://connect.mayoclinic.org/comment/214451/

pain every day nurse said looks like dystonia

Discussion: Monthly shaking episodes that continue to progress

Support Group: Brain & Nervous System

Posted: Nov 4, 2018

@ch47, @emo, and all...Well, wonderful news! I'm so pleased your procedure went well. My son has...

https://connect.mayoclinic.org/comment/906050/

maximum Botox injections for Cervical Dystonia

Discussion: Topical creams and lotions for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Aug 1, 2023

@kimcvi Kim, sorry I missed your first response. Maybe the text got lost, that seems to...

https://connect.mayoclinic.org/comment/316673/

person just today described having dystonia

Discussion: Myotonia Congenita

Support Group: Neuropathy

Posted: Dec 13, 2020

@joannemm30809 and all...Hello, Joanne. I live in Jacksonville, Fl, and have been going to Mayo Florida...

https://connect.mayoclinic.org/comment/676980/

son sees a movement specialist for Dystonia

Discussion: Anyone been to Neurology at Mayo Clinic in Jacksonville, FL?

Support Group: Visiting Mayo Clinic

Posted: Feb 1, 2022

@loribmt, I hope they bring some fun and smiles to folks feeling the cold and closeted...

https://connect.mayoclinic.org/comment/679254/

use of stem cell therapy for my son, dystonia

Discussion: What's outside of your picture window today?

Support Group: Just Want to Talk

Posted: Feb 9, 2022

Hi...my name is Jill!! I have suffered from chronic pain from my late teens on!! Its...

https://connect.mayoclinic.org/comment/733206/

just meant PAIN to me ie: Torsion Dystonia

Discussion: Chronic pain - Let's talk

Support Group: Chronic Pain

Posted: Aug 1, 2022

Last year all doctors stopped prescribing me Klonopin, and sent me to a psychiatrist to monitor...

https://connect.mayoclinic.org/comment/1041453/

taking it for sleep and laryngeal dystonia

Discussion: How to ween off Klonopin (or any Benzodiazapeme)

Support Group: Depression & Anxiety

Posted: Mar 28 7:15am

Hello, fiesty76. You are such a joy. Your thoughts and prayers have buoyed me and given...

https://connect.mayoclinic.org/comment/333707/

He saw the Mayo dystonia specialist,

Discussion: Assisted Living and DNR (Do Not Resuscitate)

Support Group: Caregivers

Posted: Feb 20, 2021