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4,144 total results
Comments (3,929)
I'm not medically trained at all, just echoing some thoughts from discussions I've read here and...
tingling (Chemo-induced peripheral neuropathy ... hypersensitive state, overexposure to what ... might cause further damage -- like what ... well as icing have been reported to help ... hard to tell if they're really helping
Support Group: Pancreatic Cancer
Posted: Jan 14 1:43pm
Hello, wheelerma and fafsfat. I've been on this fibromyalgia roller-coaster for 35+ years, when it wasn't...
at a video I saw on youtube about what ... , RLS, neuropathy, and overall pain. ... Gabapantin helped also. ... What a wonderful experience that was ... What a joy to know what's happening
Support Group: Fibromyalgia
Posted: Jan 17, 2021
its 3am here and I could scream with excruciating pain everywhere---the pn nerve pain does not...
around either----there is no med to help ... thing--My feet are like cement from neuropathy ... hynotic cd for chronic pain but no help ... What did I do? God forgive me.
Support Group: Fibromyalgia
Posted: Dec 8, 2019
I am so confused -----last night I wanted to log on to post and I could...
, no for pusental neuralgia,no for neuropathy ... I finally found "help" and they ... Please explain what I am doing wrong
Support Group: Fibromyalgia
Posted: Dec 7, 2019
I’m not familiar with your condition or autoimmunity, but I have FGFR3 positive small fiber neuropathy...
I have FGFR3 positive small fiber neuropathy ... research that has suggested IVIG has helped ... ” to use IVIG to tread small fiber neuropathy ... others who did it at Johns Hopkins for what
Support Group: Neuropathy
Posted: Mar 4 12:47am
I am talking about my journeys and frustrations hoping. No one has to endure what I...
No one has to endure what I am going ... to find out instead it’s related to neuropathy ... Why hasn’t anyone treated me for neuropathy ... journey and the doctors finally find out what ... is wrong with me then maybe it will help
Support Group: Neuropathy
Posted: May 2 9:07am
Hi @susieqmf, I thought I would tag you in the discussion I linked in my first...
experience with small fiber sensory neuropathy ... and can share what has helped them.
Support Group: Neuropathy
Posted: May 10 4:03pm
There are no cures for my condition, in fact, it gets progressively worse as I age....
I have axonal sensory neuropathy - it ... is not like peripheral neuropathy - ... Gabapentin helps with epilepsy and neuropathy ... people who don't have epilepsy or neuropathy ... and so would anyone else who felt what
Support Group: Chronic Pain
Posted: Jan 6 7:09pm
I did the cold socks and mittens, and ice in the mouth for the first treatment....
This is what worked for me - If after ... a treatment, your neuropathy is such ... , I had terrible jaw pain, and the neuropathy ... Now, 8 weeks post-surgery, my neuropathy ... treatments of gem/abraxane really helped
Hi all! Brand new MGUS IgA here, with severe neuropathic foot itch (bottom balls of feet)...
Brand new MGUS IgA here, with severe neuropathic ... fenofibrate, Velcade) also slow or help ... with neuropathy. ... What's worked for me thus far: ice ... What didn't work: alpha lipoic acid
Posted: Sep 17, 2023
I wish I had the answer to that question because I’m in the same boat as...
of the other meds they give out for neuropathy ... and they didn’t help either. ... IVIG for 8 months, and they didn’t help ... So now I’m at an impasse, as what’s
Support Group: Neuropathy
Posted: Mar 23 2:18pm
It depends somewhat on which chemo recipe you're getting. If you're getting Folfirinox, the ingredient Oxaliplatin...
pretty notorious for causing both neuropathy ... , but only a fraction of what Abraxane ... I got over the Folfirinox neuropathy ... compression has also been found to be helpful ... What I've done (not consistently
Welcome @catbeth57, Thanks for sharing what helps with your neuropathy symptoms. I also have neuropathy but...
Welcome @catbeth57, Thanks for sharing what ... helps with your neuropathy symptoms ... one of the best things we can do to help ... and what treatments are available. ... the learning part and figuring out what
Support Group: Neuropathy
Posted: May 22 7:26am
Sadly there seems to be little research done about neuropathy partly because so far there is...
seems to be little research done about neuropathy ... cure or even safe drugs to to treat what ... It showed that I had sensory neuropathy ... The pro Tens helps some people giving ... Acupuncture may help some sufferers
Posted: May 23 8:41pm
Can you see if they can modify your seizure meds to accommodate the neuropathy med. Gabapentin...
your seizure meds to accommodate the neuropathy ... I’m perplexed about what it is, but ... neurologist’s diagnosis that it wasn’t neuropathy ... Hope you can find some treatment to help
Support Group: Neuropathy
Posted: May 24 7:41pm
in reply to @soccer1477 I am so sorry! I understand chronic pain and could write a...
and the short course of it may be helpful ... While it can be very helpful, like many ... everyday, as does my sister who has neuropathy ... Yoga can be very helpful for the body ... horrible pain, saying, "this must be what
Support Group: Neuropathy
Posted: Mar 15 7:38am
It was all very confusing when the foot drop happened. The pain was the worst part...
This is what happened after the acute ... , I would like to obtain an EMG to help ... is consistent with some intrinsic neuropathy
Support Group: Spine Health
Posted: Mar 16 1:37pm
Same thing happened with my Trigeminal and occipital neuralgias and vaccines. I’m so sorry you had...
is real and no way to check to see what ... ’t warned me about these shots and neuropathies ... Please share if you find help.
Support Group: Neuropathy
Posted: Mar 20 9:28am