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Comments (2,407)

"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...

https://connect.mayoclinic.org/comment/1057041/

haven't ever been diagnosed with GCA

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

One would hope PMR patients of the future will have better options than prednisone. I took...

https://connect.mayoclinic.org/comment/892625/

being the only option for PMR and GCA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2023

@charann2000 - Hi - I have floaters that started a few years ago. They don’t seem...

https://connect.mayoclinic.org/comment/197166/

They don’t seem to be related to my GCA

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2018

I like the sound of a 50/30 split. I'm partial to 2/3 of the dose in...

https://connect.mayoclinic.org/comment/1026223/

I have never tapered for GCA.

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2, 2024

@johnbishop, and all...John, I had bloodwork and tests Monday, and very high urine protein, other kidney...

https://connect.mayoclinic.org/comment/1002840/

taking 10mg Prednisone now for PMR/GCA

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2024

It is interesting that you are off prednisone and your doctor is considering starting Actemra. I...

https://connect.mayoclinic.org/comment/989895/

However, Actemra is FDA approved for GCA

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 1, 2024

I think my PMR started with a hamstring tear in Dec. What? I have long hamstrings...

https://connect.mayoclinic.org/comment/848336/

retina last summer, worried about Gca

Discussion: Muscle tears and PMR and/or pred?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2023

I have been on 15mg of Prednisone since July for PMR. I get my health care...

https://connect.mayoclinic.org/comment/821074/

Dr. on what to watch for as far as GCA

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5, 2023

My husband was diagnosed w GCA 1.5 years ago. Prior to biopsied diagnosis, he began 60mg...

https://connect.mayoclinic.org/comment/197390/

My husband was diagnosed w GCA 1.5 years

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 28, 2020

I totally get the "Sweet Tooth" topic, and have found myself with a spoon in the...

https://connect.mayoclinic.org/comment/1151801/

diagnosis of PMR, possible progression to GCA

Discussion: PMR Diet: Foods to eat and avoid

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 4, 2024

My quick take: If you and your husband aren’t comfortable with adding a statin while he’s...

https://connect.mayoclinic.org/comment/1075030/

while he’s continuing to manage the GCA

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2024

I was never diagnosed with GCA but Actemra was offered to me almost 5 years ago...

https://connect.mayoclinic.org/comment/925365/

I was never diagnosed with GCA but Actemra

Discussion: What's your experience with Actemra for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6, 2023

@stageivsurvivor , THANK YOU for posting that link to Gould's paper. It's a goldmine full of...

https://connect.mayoclinic.org/comment/876630/

statistics, responding better to the GCA

Discussion: Struggling with my MD's style

Support Group: Pancreatic Cancer

Posted: Jun 11, 2023

I totally agree that a Mediterranean diet, focusing on anti-inflammatory foods, is super helpful. I have...

https://connect.mayoclinic.org/comment/934137/

I am also concerned about GCA so I will

Discussion: Diet & PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 22, 2023

Hi @cindyjane and @richardab, PMR and GCA are autoimmune disorders with genetic markers that afflict, most...

https://connect.mayoclinic.org/comment/813067/

@cindyjane and @richardab, PMR and GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17, 2023

You know, I hurt all over all the time to some extent, so I'm not one...

https://connect.mayoclinic.org/comment/1219594/

I have Sarcoid, PMR, GCA, Osteo -Arthritis

Discussion: Aging

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 9:40am

@charlotte61 I just read your post and will share our experience. It is my husband who...

https://connect.mayoclinic.org/comment/1029430/

It is my husband who has GCA. ... not believe me that he could have GCA ... these new symptoms consistent with GCA

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

I had self diagnosed myself with PMR and started on Dexamethasone. Worked in 4 hrs. Pain...

https://connect.mayoclinic.org/comment/1118012/

Just PMR no GCA.

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

I did go to the emergency also when I was having sever temple pain & visual...

https://connect.mayoclinic.org/comment/1091718/

still investigating the possibility of GCA

Discussion: Cytokine Release Syndrome/Polymyalgia Rheumatica

Support Group: Autoimmune Diseases

Posted: Jun 22, 2024

Thank you thank you thank you for creating this group! I feel a little less crazy...