Muscle tears and PMR and/or pred?

Posted by njtodctode @njtodctode, Sep 20 5:47pm

Hi. I was diagnosed May and since that time I have tried to learn how to manage this bleedin' disease. My rheumy told to take 20 mg. for I think it was 3 or 4 weeks. Then things improved so she said I could go to b 15 mg for 2 weeks and then down to 10. Well things did not go well. She has been booked so I am doing my own thing. I did 20 again then 16 for weeks but symptoms would just hang on. Then I tried 17.25., finally 3 days ago I went to 20 again. It's helping some but I don't think enough. Today ended up being a very painful day. I might go up a few more mgs.
So this is my question…last week I was doing something minor And moved my arm and felt seering pain in my bicep. I could hear and feel something rip. I saw stars. Then two days ago I leaned down to pick something off the floor and same thing happened in the back of my left thigh talk about painful!!..today I went out on the porch with dog and.damn I took a step and once again felt that same thigh muscle kind of rip again. I was so mad. Ever since I was sent on a fast.pred reduction I have been in so much pain and so exhausted that I am not doing much. So have any of you experienced this? I know pred is hard on your body…and so is PMR… Duh! But …. I take.magnesium everyday and have do so for.more than a year. I take a multi vitamin as well. So…any experience, ideas, treatments…pls let me know. Also anyone heard of MSM? And last…I am thinking of increasing fr 20 for a bit to see if I can get more than two decent hours in a day….not including my muscle rip days. Thanks everyone.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) group.

Hi @njtodctode, The tapering game with PMR can be the pits especially if you try to taper too fast. Sorry to hear you are struggling with managing the symptoms. In another discussion where we connected you mentioned you were going to try again at 20 mg to see how you felt. Did you already go back to 20 mg and then taper down again?

I'm wondering if the following discussion might be helpful to read through a few of the posts and see if you can make a connection that helps.
— PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/

I've never tried MSM but others may have some experience. I did find this information that might provide some insight:

— 8 Science-Backed Benefits of MSM Supplements:
https://www.healthline.com/nutrition/msm-supplements

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@johnbishop

Hi @njtodctode, The tapering game with PMR can be the pits especially if you try to taper too fast. Sorry to hear you are struggling with managing the symptoms. In another discussion where we connected you mentioned you were going to try again at 20 mg to see how you felt. Did you already go back to 20 mg and then taper down again?

I'm wondering if the following discussion might be helpful to read through a few of the posts and see if you can make a connection that helps.
— PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/

I've never tried MSM but others may have some experience. I did find this information that might provide some insight:

— 8 Science-Backed Benefits of MSM Supplements:
https://www.healthline.com/nutrition/msm-supplements

Jump to this post

Hi John…I told you I was crazy…lol
Yes
I started 20 Monday. So we will see. I just realized that when this all started in May and she put me on 20 I was already on 3 —
had been for years for sjogrens RA. So maybe I really need to go to 23. Anyway…the post was really more about the muscle tears. I gave the background to help with answers. Anyway just curious it is not fun
..my leg is not happy this am.
Thanks John for the links. As always I am grateful for your feedback and info.

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For sure you are reducing much too quickly. I did 1 mg per month.

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Boy, you are having a rough trip. As to MSM, I have had lots of experience- for myself and dogs and horses. (And they don't have the placebo effect.) I take about 3 grams a day, with juice. I just use the same stuff I give my horses but they package it for prople, too. They have not found a toxic dose for it so it seems safe. It has been shown to down regulate IL6 which is implicated in PMR so seems like a good idea to me. (But not a doctor so do your own research.) It is the first thing I give an older horse (or dog) that has arthritis and it helps them move better. So, give a look and maybe a chance. (BTW: My vet approves of it for the horses.)

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I am so sorry you are having these issues. I have not encountered this, but have had constant pain or pain reoccurring by the end of the day. I have taken 2.5mgs of pred one day and 25 mgs of diclofenac the next day. That appears to work for me better than pred every day.
I hoped it might help with side effects as well.
Diet appears to be a big thing also. I can only drink water. Coffee, even unsweetened, does not work for me. I am off white bread, red meat, as much sugar as possible, and low salt. I eat a lot of salmon and green veggies and fruits.
Wish I could offer help with the muscle issues.

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I have not had a feeling of muscles tearing but I have had sudden stabbing pains in my biceps and thigh. This leads me to a question which maybe I should have started another thread on. Someone, I think here and perhaps one of the moderators, posted a link to some new research on the cause of PMR. The research showed that it may be inflammation of the sheaths around the muscles rather than in tendons and bursae that leads to PMR. I should have saved the link but did not. If that's the case it could explain a tearing sensation and also many of the symptoms I have had that seem muscular, not in the joints.

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New research into the cause of PMR? I too, would be very interested in following that link.

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