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Comments (2,410)

GrandmaR, your story of your shingles experience is quite stunning. I'm so sorry this happened to...

https://connect.mayoclinic.org/comment/257377/

and was diagnosed with PMR and the GCA

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 22, 2021

What biologic was tried?? The only biologic that I'm aware of and the only one that...

https://connect.mayoclinic.org/comment/319117/

only one that is FDA approved for GCA

Discussion: PMR coming back?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2020

Hello. 4 years ago, started losing eyesight in my rt. Eye for temporarily, then returns after...

https://connect.mayoclinic.org/comment/197295/

I was 77 when I got GCA, and I am now

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 10, 2019

For now, I am happy to know that Actemra can be easily stopped. Prednisone can't be...

https://connect.mayoclinic.org/comment/1289200/

PMR/GCA relapses do occur when Actemra

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 7:22pm

I don't have the time to research when I last wrote but, short story, had Grover's...

https://connect.mayoclinic.org/comment/683474/

Then in 2020 I developed GCA, went on ... husband's death brought on the GCA

Discussion: Grover's Disease: What works to help find relief?

Support Group: Skin Health

Posted: Feb 22, 2022

@windyshores This is very helpful information and something I was wondering about. We're so new to...

https://connect.mayoclinic.org/comment/1073283/

He then developed GCA (giant cell arteritis ... The other illnesses, PMR and GCA, though

Discussion: Improve bone density and strength without medication?

Support Group: Osteoporosis & Bone Health

Posted: May 23, 2024

@nyxygirl, mtr2601, @linda7, @johnbishop, and all... I'm late to the conversation, but as a PMR and...

https://connect.mayoclinic.org/comment/1203876/

the conversation, but as a PMR and GCA

Discussion: What do you all think of #Social Media Listening ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 3:24pm

I am 80 year old woman and I was first diagnosed with PMR in 2015 ....

https://connect.mayoclinic.org/comment/1008626/

developed classic symptoms of LCA or GCA

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Feb 2, 2024

Unfortunately in my experience over the last 1 1/2 years with PMR there are many different...

https://connect.mayoclinic.org/comment/990361/

to protect me from going blind with GCA

Discussion: Is actemra for GCA worth all the side effects ? Also PA vs MD?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 2, 2024

You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...

https://connect.mayoclinic.org/comment/891301/

blood tests are very near my pre-PMR/GCA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

@shivb Sorry, I try to be faithful with my responses...but somehow, I missed this. My brain...

https://connect.mayoclinic.org/comment/874488/

Primidone and Clonazepam until I got GCA

Discussion: Have you successfully weaned off Depakote?

Support Group: Epilepsy & Seizures

Posted: Jun 7, 2023

@munchie, I really don't think anyone doctor or patient really knows the answer to your question....

https://connect.mayoclinic.org/comment/286894/

for symptoms and signs suggestive of GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2021

"I was on 5 mg and two days ago had a big flare up of my...

https://connect.mayoclinic.org/comment/1224893/

days ago had a big flare up of my GCA

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 3:57pm

I can only speak to my case...my GCA diagnosis was missed for over nine months, and...

https://connect.mayoclinic.org/comment/882115/

I can only speak to my case...my GCA

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2023

Good luck with Actemra and I hope it works for you. It will take some time...

https://connect.mayoclinic.org/comment/836001/

flares" which may or may not be PMR/GCA

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2023

Regarding the relationship between COVID vaccinations and the incidence of PMR, I think the jury is...

https://connect.mayoclinic.org/comment/886493/

remains superior to the risk of PMR or GCA

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

@windyshores Oh, Windy, you are so knowledgeable!! I am so glad I asked!!! We have settled...

https://connect.mayoclinic.org/comment/1104493/

with a rheumatologist for his PMR and GCA

Discussion: STOP! Don't do this if you have osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Jul 12, 2024

Wow. So many aspects of this that are totally new to me (GCA especially). I agree,...

https://connect.mayoclinic.org/comment/1066113/

of this that are totally new to me (GCA

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2024

@cpd54, @johnbishop, and all...I'm amazed at the activities some of you can continue even with PMR...

https://connect.mayoclinic.org/comment/983974/

When PMR and GCA hit me hard in October

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2023

For anyone considering vaccines, I will share my story in case anyone finds it helpful...I have...

https://connect.mayoclinic.org/comment/941383/

predisposition as my grandmother had PMR/GCA

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2023