A month into my diagnosis with PMR
Hello everyone. I'm a 59 year old male diagnosed in mid August with PMR. I'm an active guy that played baseball (infield and pitches) twice a week. Im also a RN that walks almost 3-4 miles per shift. I last pitched June 11th, and by June 18th I could barely move. It started in both my hamstrings (which the doc said that they were both torn) and hips, and the pain moved to both my shoulders. Three MRIs, 3 ER visits, and a neuro team consult, plus orthopedic and GP appointments, and everyone was telling me that I'm just getting older and muscle tears happen from overuse at my age. It took almost 2 months of suffering with this before a friend, that's a teammate on my adult baseball team who happens to be a rheumatologist, diagnosed me because he heard I was having problems while he was out of town. I sent him a photo my MRI of my shoulders, and he called and asked what was going on? I told him, and he set up an appointment (New Orleans is where I live). He told me what I have, and he told me to look it up. Every freaking symptom that is listed I was experiencing. As a RN I'm not the best patient. I haven't worked since July because of the pain and not being able to move. I'm better than I was before steriods, but I'm not near where I was prior. Am I ever going to be able to move like previously before? The prednisone is insane…hunger and restlessness.
The photo is from the 1st day I was able to lift my arms over my head after starting the steroids.
My hips are and hamstrings are recovering but my shoulders.
I never heard of this as a nurse of 18 years of practice. Depression is no joke and not being able to lift a gallon of water at times is crazy.
Thank you for letting me vent. I'm not sure if I'm to the acceptance stage yet, I'm trying though.
I'm on 20mg a day and I take a delta-9 gummy to help with the sleep. It seems that 3 AM is a common time waking up from what I have read.
I'm just looking for answers and guidance.
I have just started Physical Therapy 2x a week too.