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Comments (2,410)

@jlmclain , Short answer: On chemo for the recurrence since late Jan 2023, and responding well....

https://connect.mayoclinic.org/comment/871738/

Much to my surprise, the GCA combo has ... started the original recommendation (GCA

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: Jun 3, 2023

My rheumatologist says it is "unlikely" that I will get off Actemra unless it stops working....

https://connect.mayoclinic.org/comment/1289092/

Stopping PMR/GCA in its tracks is something

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 3:59pm

Hi @lmz I developed PMR after injuring my ankle from exercising. At first, my ankle hurt....

https://connect.mayoclinic.org/comment/1078486/

I had GCA, confirmed by biopsy of the

Discussion: Doctors' confusion over diagnosis: Questions they should ask

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2024

Hello @nyxygirl, Welcome to Connect. New members are not allowed to share links for a short...

https://connect.mayoclinic.org/comment/866309/

make sure you also don't have GCA

Discussion: Question about PMR pain locations

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023

Hello @elderdiana, thank you for the private message. I thought I would answer it in this...

https://connect.mayoclinic.org/comment/299077/

Temporal Arteritis/Giant Cell Arteritis (GCA

Discussion: Polymyalgia Rheumatica (PMR), prednisone and Coronavirus COVID-19

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24, 2020

Hello, all... I had the first Covid infection last July 2023, then again was infected in...

https://connect.mayoclinic.org/comment/1034199/

, and I'm dealing with PMR and GCA ... I developed PMR, GCA and daily asthma ... joint flares, and developed PMR and GCA

Discussion: 20 month long Covid nearly cured by getting Covid a second time

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 15, 2024

Kevzara wasn't available for PMR when my rheumatologist wanted me to try a biologic for "refractory...

https://connect.mayoclinic.org/comment/1019670/

because it was FDA approved in 2017 for GCA ... work for PMR because of how PMR and GCA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21, 2024

I haven’t posted since August 2021 when all was well with my Grovers. I mentioned that...

https://connect.mayoclinic.org/comment/654070/

I mentioned that I had contracted GCA ... now have 3 rare diseases, Grover’s, GCA

Discussion: Grover's Disease: What works to help find relief?

Support Group: Skin Health

Posted: Nov 14, 2021

@valerie6062. @654321, @beaver and all...Wow, Valerie. You've been through the wringer with these autoimmune attacks. I'm...

https://connect.mayoclinic.org/comment/1009120/

I am very concerned about the GCA and ... I now wonder if GCA was creeping in

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Feb 3, 2024

Welcome to the forum. My rheumatologist would say you have a complicated set of conditions. I...

https://connect.mayoclinic.org/comment/1083256/

and later for other conditions and GCA

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 8, 2024

@cyclones30, @johnbishop, and all...I'm very uninformed about monoclonal antibodies and such, but am more up-to-date than...

https://connect.mayoclinic.org/comment/1003366/

Prednisone for treatment of PMR, GCA

Discussion: Anyone lucky enough to get Monoclonal Antibodies?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 25, 2024

Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...

https://connect.mayoclinic.org/comment/896964/

. --- GCA & PMR - Treat-to-target

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

@grammy82 Thank you again. I just looked up "GCA": I hope you will be all right...

https://connect.mayoclinic.org/comment/864627/

I just looked up "GCA": I hope

Discussion: Tired of living

Support Group: Just Want to Talk

Posted: May 22, 2023

@loribmt, @ktgirl, @kenyalama I forgot to mention, I use Desert Essence Coconut Oil Mouthwash and/or Desert...

https://connect.mayoclinic.org/comment/627161/

With my vision loss in one eye due to GCA

Discussion: Mouth irritation and sensitivity with autoimmune diseases

Support Group: Autoimmune Diseases

Posted: Aug 17, 2021

@joybringer I'm an 85 year old Canadian, living in an Assisted Living seniors' residence. I've got...

https://connect.mayoclinic.org/comment/335333/

I've got GCA, Diabetes, Neuropathy

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Mar 8, 2021

I hope I am handling this post correctly. I was diagnosed with PMR in March 2019....

https://connect.mayoclinic.org/comment/286596/

have since been told that I also have GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4, 2020

Hi John. I am only on 3 mg now, so hopefully I can take a small...

https://connect.mayoclinic.org/comment/211436/

Where the biopsy confirmed GCA.

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27, 2018

Yes. I was originally at 60 mgs of Prednisone last September for possible GCA along with...

https://connect.mayoclinic.org/comment/1078930/

Prednisone last September for possible GCA

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2024

I'm so sorry you've had to go through this too. That's funny about people asking how...

https://connect.mayoclinic.org/comment/1044952/

He has a really bad case of GCA that

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

I was told the same about taking more than one biologic --- no can do! Inflixamab,...

https://connect.mayoclinic.org/comment/1024592/

been shown to be efficacious for PMR/GCA

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2024