Polymyalgia Rheumatica (PMR), prednisone and Coronavirus COVID-19

Posted by asklizzie @asklizzie, Mar 11 3:46pm

I was wondering if we were more susceptible to getting sick than others since PMR is an autoimmune disease?

we may be more fortunate as we have known that we COULD BE more susceptible to virus and bacteria. We should have learned those basic rules of hygiene, as hand washing (often and well), being cautious of touching your face, nose, eye, etc, clean or avoid the surfaces that have been touched by others (door knobs), get adequate rest, eat your fruits and vegetables, remain hydrated, etc etc. Remember to get a flu shot each season……..

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Certainly Prednisone use can lower your immune system But I would think dosage and length of trine being treated would make a difference But is it safer to assume that it has It us difficult to know for sure
So just be aware , yes that is possible but take the right precautions Wash you Hands for 2x times times to Happy Birthday, stay away from anyone coughing , sanitize high touch surfaces.nCough into a tissue, then discard , or your arm If no tissues are available
Stay home if you are sick and do not let sick people visit you

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I was wondering the same thing.

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My GP says yes we are if we have been taking prednisone

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@ayjaydee

My GP says yes we are if we have been taking prednisone

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I was afraid of that.

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My Rheumatoid doc confirmed the same. I chose not to go on prednisone from the beginning so he told me that my immune system was not at risk. I need to follow rules of the general population.

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This Corona virus thing has me a bit on edge as prednisone is known to suppress the immune system. I'm only on 1 mg/day down from 2 mg/day taken for the past year and I havent tried stopping it completely yet. Anyone know if the immune system is heavily suppressed at this low dose?

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Hi @ayjaydee you may have noticed I moved your post to this existing discussion on PMR and Coronavirus so that you can have your posts on this topic in one place and also so you can connect with others who haves similar concerns.

I also have added this discussion to Mayo Clinic Connect's new group dedicated to COVID-19, https://connect.mayoclinic.org/group/covid-19/. The idea is to help Connect members cope and connect during these unprecedented times.

You may follow along with the COVID-19 group by clicking on +Follow. You're welcome to look at the discussions there and participate, including starting any new discussions on any COVID-19-related topic you'd like to talk about.

Back to you @ayjaydee, I thought @johnbishop, @bridgegoddess @maija and @mbm would be able to share their knowledge and thoughts on this topic. Have you had a chance to ask your doctor about this?

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@bridgegoddess

Certainly Prednisone use can lower your immune system But I would think dosage and length of trine being treated would make a difference But is it safer to assume that it has It us difficult to know for sure
So just be aware , yes that is possible but take the right precautions Wash you Hands for 2x times times to Happy Birthday, stay away from anyone coughing , sanitize high touch surfaces.nCough into a tissue, then discard , or your arm If no tissues are available
Stay home if you are sick and do not let sick people visit you

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One of important issues right now , is the shortage of hand sanitizer . Lots of home made recipes on line but not all are science based World Health has excellent information of home made sanitizer Remember if all else fails house bleach works Hands would be dry And smelly BUT Remember that Prednisone can thin the skin , so be careful Use the best web information you can. Mayo Clinic, Harvard , your National Health site, I am in Canada so I use Health Canada , BC Health , are all my go to sites
Beware of anyone telling you their secret is a homemade solution with a variety of organics, herbs, etc
Stay Safe The Convid 19 situation will be much worse in two weeks on the North American continent

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@ayjaydee

This Corona virus thing has me a bit on edge as prednisone is known to suppress the immune system. I'm only on 1 mg/day down from 2 mg/day taken for the past year and I havent tried stopping it completely yet. Anyone know if the immune system is heavily suppressed at this low dose?

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@ayjaydee, I think it's healthy to have a concern about the side effects of taking prednisone. I also think it would be a good idea to discuss it with your doctor – the benefits (no pain) vs any potential risk like suppressing your immune system. I think we are all concerned about becoming infected with COVID-19 but there is a lot we can do to lower our risks. Here are some guidelines issued by the CDC:
https://www.cdc.gov/coronavirus/2019-ncov/prepare/prevention.html

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Yes good advice , but remember most doctors may be overwhelmed in the next few weeks.
Staying away from people is a really important step That May include family members who could have been exposed ,

Make a plan to amuse yourself if in isolation I decided today to visit one country every day via the internet It can keep me interested for a long time , just enjoying the beauty of the land and the culture

Added stress right now is not a good thing Everyone on this side can use the internet
We are more fortunate than a lot of people our age who do not use this wonderful tool !

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@bridgegoddess I love your idea of visiting one county per day via computer! Do you look up certain things about a country, or just visit?

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@bridgegoddess

Yes good advice , but remember most doctors may be overwhelmed in the next few weeks.
Staying away from people is a really important step That May include family members who could have been exposed ,

Make a plan to amuse yourself if in isolation I decided today to visit one country every day via the internet It can keep me interested for a long time , just enjoying the beauty of the land and the culture

Added stress right now is not a good thing Everyone on this side can use the internet
We are more fortunate than a lot of people our age who do not use this wonderful tool !

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Hi @bridgegoddess, I second that. What a great idea. I'd like to ask you to start a discussion in the COVID-19 group to tell people about this idea. Perhaps you could post what country you're visiting and encourage others to join you. This way we can have a social connection while being social distanced.

Here's how:
1. Go to the COVID-19 group: https://connect.mayoclinic.org/group/covid-19/
2. Click the grey button START A DISCUSSION.
3. Enter a title that invites people to join you. Perhaps something like: Let's travel the world virtually: Join me on a trip?
4. Write your message about what you do, why, and how you do it. Then invite others to join you.

What do you think?

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@ethanmcconkey

Hi @ayjaydee you may have noticed I moved your post to this existing discussion on PMR and Coronavirus so that you can have your posts on this topic in one place and also so you can connect with others who haves similar concerns.

I also have added this discussion to Mayo Clinic Connect's new group dedicated to COVID-19, https://connect.mayoclinic.org/group/covid-19/. The idea is to help Connect members cope and connect during these unprecedented times.

You may follow along with the COVID-19 group by clicking on +Follow. You're welcome to look at the discussions there and participate, including starting any new discussions on any COVID-19-related topic you'd like to talk about.

Back to you @ayjaydee, I thought @johnbishop, @bridgegoddess @maija and @mbm would be able to share their knowledge and thoughts on this topic. Have you had a chance to ask your doctor about this?

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I got the feeling he didnt really know but he was supportive of a plan to get off it if possible so i will try going down to 1 mg tomorrow and 1/2 mg in a week etc. he told me to just watch to ensure the pain doesnt become unbearable

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@kathylovgren

What is the advice for taking prednisone to help reduce pmr symptoms versus reduced immune system and this virus?

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Hello @kathylovgren, Welcome to Mayo Clinic Connect. There is another discussion on your question already. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion where you can meet other members with PMR and COVID-19 questions.

> Groups > Polymyalgia Rheumatica (PMR) > PMR and Coronavirus
https://connect.mayoclinic.org/discussion/coronavirus-and-pmr/

You may also be interested in following the main PMR discussion here:
> Groups > Polymyalgia Rheumatica (PMR) > Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
https://connect.mayoclinic.org/discussion/polymyalgia-rheumatica-pmr-meet-others-share-your-story/

I also have PMR but it is currently in remission and I've been off of prednisone for close to 2 years now. I think you probably need to balance the benefits of taking prednisone – is it keeping you pain free, verses the risks – possible reduced immune system, which there are some things you can do to help reduce the risks. Have you had a chance to talk with your rheumatologist?

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