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2,652 total results

Comments (2,420)

Hi, I am new to this board. 4 years ago I was dx with SPS after...

https://connect.mayoclinic.org/comment/49589/

everything from fibromyalgia, RA, and lupus

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Sep 7, 2019

Hi @kspiel, I don't have a lot of experience with autoimmune diseases (with the exception of...

https://connect.mayoclinic.org/comment/145055/

year-long battle with drug-induced lupus

Discussion: Undiagnosed, debilitating health condition

Support Group: Autoimmune Diseases

Posted: Mar 27, 2017

Shane, Good morning. My name is Andrew. I was diagnosed with Moyamoya about half a year...

https://connect.mayoclinic.org/comment/1283191/

and chronic fatigue, they ruled out lupus

Discussion: Moya Moya ( Let talk) struggle's, Hope and Recovery

Support Group: Stroke & Cerebrovascular Diseases

Posted: Apr 16 10:00am

Hi Deb! It’s a big decision moving forward with a bone marrow transplant. However, from my...

https://connect.mayoclinic.org/comment/1133459/

system it may also take care of your lupus

Discussion: Struggling with decision to move forward with Allogeneic Transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 30, 2024

I had two shots on 12/26 and on 2/1 I declined the second. I believe the...

https://connect.mayoclinic.org/comment/1010996/

several health conditions including lupus

Discussion: My Experience on Evenity for Treating Osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Feb 7, 2024

I have had difficulty swallowing for years that I tried to ignore but it is so...

https://connect.mayoclinic.org/comment/860415/

I have MS and Lupus for 23yrs but this

Discussion: Esophageal junction outflow obstruction (EGJOO)

Support Group: Digestive Health

Posted: May 15, 2023

I am dealing with a similar situation. I just had lumpectomy for Grade I invasive ductal...

https://connect.mayoclinic.org/comment/758091/

My cousin on my mom's side has lupus

Discussion: Fear of radiation after lumpectomy

Support Group: Breast Cancer

Posted: Oct 6, 2022

Thank you so much for the advice @lisag03! Because my diverticulitis is uncomplicated, even though I've...

https://connect.mayoclinic.org/comment/724153/

But, with the EDS, the MCAS, the lupus

Discussion: Problems months after colon resection surgery: What Helps?

Support Group: Colorectal Cancer

Posted: Jul 6, 2022

@collegeprof Your description of kidney disease is "right on", as us oldsters would say! I first...

https://connect.mayoclinic.org/comment/721440/

autoimmmune disease called Systemic Lupus

Discussion: Stage 3 Kidney Disease and Diet: What can I eat?

Support Group: Kidney & Bladder

Posted: Jun 27, 2022

I am a 56 year old female who has been experiencing symptoms of neuropathy since February...

https://connect.mayoclinic.org/comment/703012/

Celiac, Celiac panel, brain MRI, RA, Lupus

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Apr 27, 2022

I have been in your shoes, but for different reason! You’re right it hurts! The first...

https://connect.mayoclinic.org/comment/1224480/

I am living with lupus!

Discussion: Guilt Towards Family Due To Mental Illness

Support Group: Mental Health

Posted: Jan 29 8:48am

Did you know that the NIH and many other institutions started trialing PAXLOVID on Jan. 23rd,...

https://connect.mayoclinic.org/comment/896538/

viruses in patients...HIV, herpes, lupus

Discussion: Did PAXLOVID also relieve your arthritis and autoimmune symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 16, 2023

Was diagnosed Nov 2023. I was sent to Boston Mass General as my GI dr. hadn't...

https://connect.mayoclinic.org/comment/1295427/

shrinking bile duct, bridging fibrosis, lupus

Discussion: hair thinning

Support Group: Autoimmune Diseases

Posted: May 3 1:05am

What I have learned about auto immune disease from my experience is that there isn't one...

https://connect.mayoclinic.org/comment/90078/

Rheumatoid Arthritis and Systemic Lupus

Discussion: I have Lichen Planopilaris

Support Group: Skin Health

Posted: Mar 25, 2016

My son had a roux en y (which may have been a roux en o- which...

https://connect.mayoclinic.org/comment/933488/

It is misdiagnosed as MS, Lupus, etc

Discussion: Bariactric surgery complications

Support Group: Bariatric Surgery & Weight Loss

Posted: Sep 20, 2023

I was diagnosed July 2024 with anal rectal cancer. Went through 6 weeks of chemo and...

https://connect.mayoclinic.org/comment/1280262/

be over, unfortunately, I also have Lupus

Discussion: Anyone else have Anal cancer: What treatments did you have?

Support Group: Colorectal Cancer

Posted: Apr 12 2:57pm

What 43 years of MCTD has given me and I'm still smilingI am not posting this...

https://connect.mayoclinic.org/comment/938237/

withSystemic Scleroderma - Pain, fatigueSLE Lupus

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Sep 28, 2023

Hi am am now 42 years old I was less than a month from my 40th...

https://connect.mayoclinic.org/comment/1043009/

positive Ana and was told it wasn’t lupus ... previous been diagnosed with discoid lupus

Discussion: Cerebral venous sinus thrombosis (cvst)

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 31, 2024

With tears in my eyes I thank you from the bottom of my heart for taking...

https://connect.mayoclinic.org/comment/930634/

business home and learn how to live with Lupus ... replacement and need to do the other because lupus

Discussion: Pain and Loss of Self Worth

Support Group: Chronic Pain

Posted: Sep 15, 2023

Uctd? I have battled the after effects of Grave's disease for almost 20 years since I...

https://connect.mayoclinic.org/comment/56556/

Raynard's, My cousin and Aunt have Lupus ... I know Lupus has swollen lymph nodes ... My allergy Dr did a test for lupus and

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Dec 16, 2018