scleroderma – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

523 total results

Comments (478)

Well, im 61 and lived with autoimmune disease. I have PBC and Bronchiectasis, along with AT3...

https://connect.mayoclinic.org/comment/1362039/

(Not cancer) Esphogeal scleroderma.

Discussion: ANA of 1:320, chronic symptoms… anticlimactic bloodwork?

Support Group: Autoimmune Diseases

Posted: Aug 2 10:27am

This is concerning to me. I have several autoimmune disorders, scleroderma, endometriosis, pernicious anemia, Raynaud’s,etc. This...

https://connect.mayoclinic.org/comment/91060/

have several autoimmune disorders, scleroderma ... conditions have been caused by my scleroderma

Discussion: Has anyone been diagnosed with Central Sensitization?

Support Group: Chronic Pain

Posted: Mar 21, 2019

Reviewed by Barbara Goldstein, MD (February 01, 2016) Undifferentiated connective tissue disease (UCTD) is a systemic...

https://connect.mayoclinic.org/comment/264055/

connective tissue diseases include lupus, scleroderma ... diseases, such as lupus, Sjögren's or scleroderma

Discussion: UCTD, low MCV, low MCH and low neutrophils

Support Group: Autoimmune Diseases

Posted: May 31, 2019

I burn all over during waking. This has been happening to me for over 20 years....

https://connect.mayoclinic.org/comment/972311/

I have limited scleroderma, monoclonal

Discussion: Burning skin on waking

Support Group: Skin Health

Posted: Nov 29, 2023

@naomid I cannot keep track of threads sometimes. Is there any med you would be willing...

https://connect.mayoclinic.org/comment/876366/

I have lupus and probable scleroderma

Discussion: Has anyone improved bone density without meds?

Support Group: Osteoporosis & Bone Health

Posted: Jun 11, 2023

Thanks for all your information. I really appreciate it. My fibrosis is caused by my rheumatoid...

https://connect.mayoclinic.org/comment/1164935/

caused by my rheumatoid arthritis or scleroderma

Discussion: Afib and compression vest

Support Group: Heart Rhythm Conditions

Posted: Oct 29, 2024

I have had technical CKD stage 3 for a long time. I never paid any attention...

https://connect.mayoclinic.org/comment/870516/

longstanding but just got a test back for scleroderma ... they didn't notice the positive scleroderma

Discussion: Stage 3a kidney disease: looking for info

Support Group: Kidney Conditions

Posted: Jun 1, 2023

I am tapering off of Prednisone started in 15mg in February now on 6mg reducing by...

https://connect.mayoclinic.org/comment/1104506/

I also have Raynaud’s disease and Scleroderma

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12, 2024

Hello @leerow60, Welcome to Connect. I can't begin to imagine how difficult your journey with GCA,...

https://connect.mayoclinic.org/comment/1043905/

difficult your journey with GCA, PMR, Scleroderma

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2024

@justanotherphoenix and @johnbishop thank you so much for bringing this up. I have had neuro symptoms...

https://connect.mayoclinic.org/comment/1043283/

and highly positive antibodies for scleroderma

Discussion: Looking for an article by Mayo Clinic doctors.

Support Group: Autoimmune Diseases

Posted: Mar 31, 2024

Well acquainted with skin discomfort. I have PMR and the Morphea form of scleroderma. The skin...

https://connect.mayoclinic.org/comment/1014926/

I have PMR and the Morphea form of scleroderma

Discussion: PMR Flare with New Issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13, 2024

Hello @gkuntz114hayden and welcome to Mayo Clinic Connect. I wanted to quickly connect you with others...

https://connect.mayoclinic.org/comment/878566/

have moved your post here: - Limited Scleroderma

Discussion: Limited Scleroderma or CREST Syndrome: What helps?

Support Group: Autoimmune Diseases

Posted: Jun 14, 2023

Hello @marthajean. Your instinct to consult with your physician before trying any new supplement or medication...

https://connect.mayoclinic.org/comment/257974/

various types of arthritis, ulcers in scleroderma

Discussion: Dimethyl sulfoxide (DMSO), an organic sulphur compound

Support Group: Joint Replacements

Posted: Apr 10, 2019

Some of the doctors thought it may be something rheumatology should look at. They thought I...

https://connect.mayoclinic.org/comment/156274/

They thought I had lupus, MS, Scleroderma

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 20, 2017

I have had scleroderma and raynauds for approximately five years. I am struggling at the moment...

https://connect.mayoclinic.org/comment/1191136/

I have had scleroderma and raynauds

Discussion: Scleroderma and Raynauds

Support Group: Autoimmune Diseases

Posted: Dec 15, 2024

@ktgirl I have a lupus diagnosis and very high antibodies for limited scleroderma. Not to create...

https://connect.mayoclinic.org/comment/1164967/

and very high antibodies for limited scleroderma

Discussion: Afib and compression vest

Support Group: Heart Rhythm Conditions

Posted: Oct 29, 2024

A post script to my scleroderma post..I'd remove it if I could..I am currently trying to...

https://connect.mayoclinic.org/comment/1340891/

A post script to my scleroderma post

Discussion: Scleroderma (Systemic Sclerosis): Anyone else?

Support Group: Autoimmune Diseases

Posted: Jul 4 9:57am

I have had the same problem for many years. Been through so many tests over 9...

https://connect.mayoclinic.org/comment/1059619/

So far, it's Scleroderma, Lupus,

Discussion: Internal vibration with "nerve firing"

Support Group: Brain & Nervous System

Posted: Apr 30, 2024

I developed high ANA post covid too, but anticentromere antibodies. However, I've been diagnosed with diffuse...

https://connect.mayoclinic.org/comment/1383473/

been diagnosed with diffuse systemic scleroderma

Discussion: Possible high-titer ANA due to Covid-19? Long shot?

Support Group: Autoimmune Diseases

Posted: Aug 31 12:19pm

Ask one of your providers to add a FLAG to your chart that says "no IV's...

https://connect.mayoclinic.org/comment/784523/

know very little to nothing about scleroderma

Discussion: IV placement in hands when you have Scleroderma and Raynaud's?

Support Group: Autoimmune Diseases

Posted: Dec 13, 2022