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sunshineme
@sunshineme

Posts: 9
Joined: Aug 09, 2016

Burning skin on waking

Posted by @sunshineme, Aug 9, 2016

I experience excrutiating burning skin on waking only releived slightly with meds. Tried all topical/reviewed intollerances/allergies etc. Wondered if anyone else has this as am wondering if connected to chronic Lyme’s.this followed treatment for suspected lyme’s but blood tests came back negative.

REPLY

I have been experiencing sunburn pain upon waking every morning for over 2 years. I have fibromyalgia & this nerve sensation of sunburn pain without being in the sun is one of many daily issues I deal with. Maybe talk to a neurologist to see what is causing your nerves to give you this sensation. I hope this is helpful! 🙂

@sherids

I have been experiencing sunburn pain upon waking every morning for over 2 years. I have fibromyalgia & this nerve sensation of sunburn pain without being in the sun is one of many daily issues I deal with. Maybe talk to a neurologist to see what is causing your nerves to give you this sensation. I hope this is helpful! 🙂

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Goodness, that is a long time! Mine has been a few months. I was diagnosed with Fibromyalgia 15 years ago and this is a recent symptom. Thank you for your reply, it has been helpful. I’m finding it very difficult to cope with as very severe all over, even my scalp. I hate to say this but it makes me cry it is so intense.
I do hope yours clears up as I cannot imagine having this long term.
Thank you so much again.

@sherids

I have been experiencing sunburn pain upon waking every morning for over 2 years. I have fibromyalgia & this nerve sensation of sunburn pain without being in the sun is one of many daily issues I deal with. Maybe talk to a neurologist to see what is causing your nerves to give you this sensation. I hope this is helpful! 🙂

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I completely understand your pain & confusion on what is going on. 2 yrs prior to my diagnosis I had shingles all under my hair on the back of my head,,,,it too was excruciating. Best wishes on getting in to see a neurologist & finding out what is causing your pain….there are many possibilities out there :/

Thank you. That must have been extremely challenging for you. All I’ve I been told is that it is not skin related. Brain sending wrong messages to my body. Total nightmare without a solution at the moment.

Hi @sunshineme, I’m sorry to see you’re having trouble resolving this pain. I saw that you said you’ve had fibromyalgia for 15 years but this is a new symptom. I found some information on fibromyalgia that says “symptoms sometimes begin after a physical trauma, surgery, infection or significant psychological stress. In other cases, symptoms gradually accumulate over time with no single triggering event.” http://www.mayoclinic.org/diseases-conditions/fibromyalgia/basics/definition/con-20019243

Since symptoms can accumulate over time, you may want to take @sherids suggestion and check in with a neurologist. Have you considered seeing a specialist about this?

Hello, thank you for replying. I have for the past 8-10 months been suffering from psychological distress due to a childhood trauma which has come to the fore. I did wonder as to whether there was a connection between that and my excruciating burning on waking. Dermatology said it was nothing to do with my skin. I haven’t seen a neurologist for a while.
I also suffered a medical trauma whereby I was awake throughout general anaesthesia and felt the operation but was unable to a ake anyone aware of my distress. This was some years before becoming unwell with Fibromyalgia.
Thank you so much for this, I really appreciate your help as your website information suggests this is the link as to the cause.

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