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364 total results

Comments (338)

klittr, Is your joint pain a new symptom? If so, it could also be attributed to...

https://connect.mayoclinic.org/comment/908650/

Some people research MCAS (mast cell

Discussion: Does anyone know of anyone who has gotten over Long Covid Condition?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 6, 2023

I totally get it. My most common symptom when my mast cells are angry is tremulousness,...

https://connect.mayoclinic.org/comment/773677/

Doctors still don't know all of MCAS

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 15, 2022

The itch is caused by histamines (Google mcas) so a low-histamine diet can help, but also...

https://connect.mayoclinic.org/comment/959505/

itch is caused by histamines (Google mcas

Discussion: Post covid itch and hives

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 5, 2023

Your symptoms sound very similar to mine… You may want to look into Mast Cell Activation...

https://connect.mayoclinic.org/comment/745246/

www.ehlers-danlos.com/wp-content/uploads/MCAS-Primer-for-the-Gastroenterologist.pdf

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Sep 4, 2022

Hi, good morning all. I have MCAS , post long Covid or vaccine injury... regardless I...

https://connect.mayoclinic.org/comment/1074823/

I have MCAS , post long Covid or vaccine ... long Covid for the 3rd time and big MCAS

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: May 26, 2024

Yes, I totally understand the desire to get back to some normality. I haven't seen my...

https://connect.mayoclinic.org/comment/603789/

insufficiency, diabetes and NAFLD, MCAS

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: May 22, 2021

Gosh - there are so many messages I'd like to respond to. But, quickly, I'll say...

https://connect.mayoclinic.org/comment/1377300/

with Mast Cell Activation Syndrome (MCAS

Discussion: Finally... Some answers

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 23 9:56am

I don't do social media. My husband and I shut down all of that before we...

https://connect.mayoclinic.org/comment/1240827/

I have MCAS, H-EDS, POTS, laryngospasm ... who supposedly is experienced with MCAS ... PCP's know so very little about MCAS

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Feb 19 1:38pm

I have no info to share about your questions since I don't have any answers. Not...

https://connect.mayoclinic.org/comment/730252/

It has escalated to GI MCAS (intestinal ... The MCAS may be the direct result of ... Now, if I could just get my MCAS and

Discussion: Asymptomatic Atrial Fibrillation: How do you monitor?

Support Group: Heart Rhythm Conditions

Posted: Jul 24, 2022

There are lots of people who have healed themselves. Feel free to track my comments (if...

https://connect.mayoclinic.org/comment/904901/

You can also research MCAS (mast cell

Discussion: Long-Covid symptoms help

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 31, 2023

Hi, I’ve only tried replying a couple of times, so I hope this works. When I...

https://connect.mayoclinic.org/comment/217559/

June when bingo I was diagnosed with mcas

Discussion: Extreme brain fog after mono. Autoimmune? MS?

Support Group: Autoimmune Diseases

Posted: Sep 23, 2018

No answers or suggestions yet. Your situation is similar but different. I've got low BP but...

https://connect.mayoclinic.org/comment/735684/

mastocytosis which has escalated to MCAS

Discussion: Asymptomatic Atrial Fibrillation: How do you monitor?

Support Group: Heart Rhythm Conditions

Posted: Aug 9, 2022

Hello yes i totally understand you! I have MCAS My symptoms are slightly different skin rashes...

https://connect.mayoclinic.org/comment/134289/

I have MCAS My symptoms are slightly

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: May 3, 2017

I have MCAS and there is no test available sadly. I learned to follow Naturopaths Esp...

https://connect.mayoclinic.org/comment/776906/

I have MCAS and there is no test available

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 24, 2022

Neuromodulation for the health of the vagus nerve and brain/gut axis stuff has recently become a...

https://connect.mayoclinic.org/comment/787954/

day of productive life (I also have MCAS

Discussion: Any new treatments for vagus nerve injury? Link to gastroparesis?

Support Group: Digestive Health

Posted: Dec 23, 2022

Hello again, I also wanted to recommend you read about mast cell activation syndrome (MCAS) and...

https://connect.mayoclinic.org/comment/1285275/

about mast cell activation syndrome (MCAS

Discussion: Head feels like it will explode daily. Severe cognitive difficulties

Support Group: Brain & Nervous System

Posted: Apr 19 9:36am

Live a low to no, histamine life……thats how to stop it. Also Singular and Pepcid AC...

https://connect.mayoclinic.org/comment/886549/

Educate yourself on MCAS to make sure

Discussion: Continued Post-Nasal Drip and Constant Mucus in Throat

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 28, 2023

Hi….that is so scary….for both of you!. I had repetitive migraines and used Imetrex to quiet...

https://connect.mayoclinic.org/comment/793537/

I just wanted to share that due to MCAS ... ….MCAS is about inflammation as the

Discussion: Migraine headache: What helps you cope?

Support Group: Headache & Migraine

Posted: Jan 7, 2023

I have learned to go back to the Serenity Prayer nearly daily in my life…..keeping track...

https://connect.mayoclinic.org/comment/813999/

literally sweat, as it always backs my MCAS ... So while the EDS and MCAS and POTS slightly

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Feb 19, 2023

Hi Everyone, I am looking for any help, ideas or support. I feel so defeated. Still...

https://connect.mayoclinic.org/comment/134311/

will not make a clear diagnosis of MCAS ... that deal with difficult cases of MCAS ... experiences very few doctors know about MCAS ... everyone can relate because cases of MCAS

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2017