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Comments (2,424)

Thank you @mayblin. This is very helpful and addresses my questions and validates @gently's speculation! I...

https://connect.mayoclinic.org/comment/1185608/

I have systemic lupus (and very positive

Discussion: Does anyone have a solution to help manage Reclast side effects?

Support Group: Osteoporosis & Bone Health

Posted: Dec 6, 2024

I had double mastectomies in 2015 and bone loss from aromatase inhibitors (did you do an...

https://connect.mayoclinic.org/comment/1041009/

I have a lupus diagnosis and very high

Discussion: Mast Activation Syndrome and Osteoporosis

Support Group: Osteoporosis & Bone Health

Posted: Mar 27, 2024

Here are some ideas for understanding and treating Raynauds: Raynauds is associated with several autoimmune diseases....

https://connect.mayoclinic.org/comment/956077/

for years associated with systemic lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Oct 29, 2023

while Keytruda is an amazingly effective PD-1L targeted therapy, it's use may also cause "off-target" effects....

https://connect.mayoclinic.org/comment/953645/

autoimmune diseases such as psoriasis, lupus

Discussion: Adverse reaction to keytruda: Report any symptom change

Support Group: Esophageal Cancer

Posted: Oct 25, 2023

@dreamjean1958 did your doc say why you cannot do Forteo again or Tymlos? You have to...

https://connect.mayoclinic.org/comment/906907/

I have lupus and had cancer and my doc

Discussion: Has anyone stopped Evinity before a yr ?

Support Group: Osteoporosis & Bone Health

Posted: Aug 3, 2023

Have you had any previous abdominal surgeries that could have created adhesions in your abdominal area...

https://connect.mayoclinic.org/comment/760777/

to an internist who thought I had lupus

Discussion: Not being able to see an actual gastro doc at Mayo

Support Group: Visiting Mayo Clinic

Posted: Oct 13, 2022

@callalloo, hi there. I was wondering if you've ever had ultrasounds of your legs. When you...

https://connect.mayoclinic.org/comment/701573/

They have tested for lupus?

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: Apr 23, 2022

I first noticed joint pain and cracking and popping in my joints when I was an...

https://connect.mayoclinic.org/comment/692694/

to say fibromyalgia than they are lupus

Discussion: Fibromyalgia..Is It an autoimmune disease?

Support Group: Fibromyalgia

Posted: Mar 24, 2022

Hello, I just found this post and am having similar issues. Also the same age as...

https://connect.mayoclinic.org/comment/683577/

, 'weak positive' sjogrens/lupus

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Feb 22, 2022

Thank you, Dr. Goldstein, for your very helpful explanation regarding the vagaries of UCTD. Although I...

https://connect.mayoclinic.org/comment/264058/

I have 3 out of the 4 markers for Lupus

Discussion: UCTD, low MCV, low MCH and low neutrophils

Support Group: Autoimmune Diseases

Posted: Jun 7, 2019

Frankly, I do not think they know what causes the immune system to attack itself or...

https://connect.mayoclinic.org/comment/179989/

itself or what any one person has ie; lupus

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5, 2018

Hi, Amy. The kidneys should remove ALL mis-folded protein chunks, usually broken apart, from all blood...

https://connect.mayoclinic.org/comment/149853/

now dying of Crohns, Another with Lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 17, 2017

I went through this treatment the whole process has left me destroyed. Before the IV amakacin-Rifapin-Azithromicin-Clofazimine...

https://connect.mayoclinic.org/comment/1277916/

Ciprofloxacin which caused “drug induced lupus

Discussion: Inhaled Amikacin and Clofazimine

Support Group: MAC & Bronchiectasis

Posted: Apr 9 1:00pm

Hi Missey, I have: Encephalitis Rheumatoid Arthritis Sjogren’s Syndrome Lupus Hashimoto’s CVID Per literature, significant flares...

https://connect.mayoclinic.org/comment/1293358/

Rheumatoid Arthritis Sjogren’s Syndrome Lupus

Discussion: Prolia dangers for those with autoimmune disease

Support Group: Bones, Joints & Muscles

Posted: Apr 30 9:45am

Hi Lilynette, I had the same things for years. Nephrologist wanted to put me on rituximab...

https://connect.mayoclinic.org/comment/874493/

Nephrologist also suspected I had Lupus ... #39;t have any symptoms or signs of Lupus

Discussion: Fibrillary glomerulonephritis

Support Group: Kidney & Bladder

Posted: Jun 7, 2023

Hi Robin, To answer the question regarding the titanium fusion. Yes, it really worked. I had...

https://connect.mayoclinic.org/comment/73391/

Or secondary to lupus, R/A, Hashimoto's ... She should have the Lupus A and B profile

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Jul 13, 2012

Hello, I was also taking the same medications for both of the same diseases & others....

https://connect.mayoclinic.org/comment/735153/

I also have SLE/Lupus, Sjogrens, Cervical ... constant inflammation in my body from the Lupus

Discussion: Chronic pain - Let's talk

Support Group: Chronic Pain

Posted: Aug 8, 2022

Hello and welcome to our new group members. I want to tell you all the story...

https://connect.mayoclinic.org/comment/603836/

I also have discoid lupus that has been ... died from complications of systemic lupus

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 22, 2021

I’m so glad you posted and are part of this forum. There are many here who...

https://connect.mayoclinic.org/comment/1180646/

the symptoms and signs that go with lupus

Discussion: Since 2005 my ANA titre is 1:5147; docs can’t find which disease

Support Group: Autoimmune Diseases

Posted: Nov 27, 2024

@blessed09 Hi, Michele. I am going for my brain MRI this morning to rule out MS....

https://connect.mayoclinic.org/comment/1064603/

I may also have some lupus markers and

Discussion: neurologists and brain scans three doctors 2 different diagnosis help

Support Group: Brain & Nervous System

Posted: May 9, 2024