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Comments (968)

FOR what its worth, I have CIDP, chronic inflammatory demialating polyneuropathy. I take a high dose...

https://connect.mayoclinic.org/comment/1062106/

, chronic inflammatory demialating polyneuropathy

Discussion: Neuropathy: What works and what are scams?

Support Group: Neuropathy

Posted: May 4 1:00pm

Hello Jack @medman18, No need to join the group, if you have neuropathy you are welcome...

https://connect.mayoclinic.org/comment/774374/

. -- Idiopathic Progressive Polyneuropathy ... /discussion/idiopathic-progressive-polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 17, 2022

A member shared this article with me and thought it might be of interest to others....

https://connect.mayoclinic.org/comment/698136/

April 11, 2022 The Global Burden of Polyneuropathy—In

Discussion: Idiopathic Small Fiber Neuropathy Research

Support Group: Neuropathy

Posted: Apr 11, 2022

My question is. I have had peripheral polyneuropathy for 15 years and the best thing I...

https://connect.mayoclinic.org/comment/330722/

I have had peripheral polyneuropathy

Discussion: Which prescription medication helps you best for peripheral neuropathy

Support Group: Neuropathy

Posted: Feb 11, 2021

Another excellent resource for EM is called: Erythromelalgia - Fight Fire With Fire. It is an...

https://connect.mayoclinic.org/comment/909435/

My small fiber polyneuropathy started

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Aug 8, 2023

do you have a list of pain reducing medications used in the USA mainly for pain...

https://connect.mayoclinic.org/comment/91865/

USA mainly for pain in idiopathic polyneuropathy

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 11, 2017

I also like Lazarus Naturals and have been using their full spectrum CBD tincture for about...

https://connect.mayoclinic.org/comment/997971/

tincture for about 5 years to help with polyneuropathy

Discussion: New gummy’s for neuropathy

Support Group: Neuropathy

Posted: Jan 15 7:36pm

@myrrh739 I have severe Polyneuropathy so I started gabapentin 2 weeks ago. I’m on a very...

https://connect.mayoclinic.org/comment/928260/

@myrrh739 I have severe Polyneuropathy

Discussion: Is anyone on Gabapentin?

Support Group: Chronic Pain

Posted: Sep 11, 2023

Thank you for this forum. I have not advised my family of my diagnosis of idiopathic...

https://connect.mayoclinic.org/comment/158611/

diagnosis of idiopathic progressive polyneuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 3, 2020

I am fighting polyneuropathy with no apparent help from the many doctors I've seen. They seem...

https://connect.mayoclinic.org/comment/157764/

I am fighting polyneuropathy with no

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 2, 2019

I just ran across these YouTube videos that I thought might be helpful for anyone new...

https://connect.mayoclinic.org/comment/786106/

Chronic Inflammatory Demyelinating Polyneuropathy

Discussion: Searching For Diagnosis. CIDP? Please Help Me

Support Group: Neuropathy

Posted: Dec 18, 2022

Does anyone know of a doctor or facility in metro NY area that will do the...

https://connect.mayoclinic.org/comment/860447/

anemia that may have caused or worsened polyneuropathy

Discussion: Pernicious anemia

Support Group: Autoimmune Diseases

Posted: May 15, 2023

ResearchGate has a number of peer-reviewed papers on autonomic polyneuropathy. One needs a login account to...

https://connect.mayoclinic.org/comment/1133217/

peer-reviewed papers on autonomic polyneuropathy

Discussion: Tips for Getting a Proper Diagnosis of an Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Aug 30 8:28am

I have Axonal Polyneuropathy and severe DJD in multiple joints. am also unable to take NSAIDS...

https://connect.mayoclinic.org/comment/812764/

I have Axonal Polyneuropathy and severe

Discussion: Pain Relievers Inaffective

Support Group: Bones, Joints & Muscles

Posted: Feb 17, 2023

@nbailey7uh2edu3 - Have you seen these articles? -- BCMA-CD19 bispecific CAR-T therapy in refractory chronic inflammatory...

https://connect.mayoclinic.org/comment/1152216/

chronic inflammatory demyelinating polyneuropathy

Discussion: Clinical Trials for Neuropathy

Support Group: Neuropathy

Posted: Oct 5 8:01am

I also have axonal polyneuropathy, Mayo in MN in 2020 gave me a diagnosis of both...

https://connect.mayoclinic.org/comment/1049270/

I also have axonal polyneuropathy, Mayo

Discussion: I’ve been diagnosed with mixed Polyneuropathy anyone else?

Support Group: Neuropathy

Posted: Apr 12 5:01am

I have idiopathic sensorimotor peripheral polyneuropathy diagnosed in 2000. On gabapentin 300 mg. t.i.d. mostly for...

https://connect.mayoclinic.org/comment/614747/

idiopathic sensorimotor peripheral polyneuropathy

Discussion: IS IT NEUROPATHY

Support Group: Neuropathy

Posted: Jul 7, 2021

@dk21 Thanks for posting this. I was to begin the Florida program in 2 days but...

https://connect.mayoclinic.org/comment/313514/

I have Small Fiber Polyneuropathy and

Discussion: Pain Rehabilitation Clinic

Support Group: Chronic Pain

Posted: Jun 16, 2020

Hi, Yes it can be from a neuropathy. I have it from autonomic polyneuropathy which can...

https://connect.mayoclinic.org/comment/1143616/

I have it from autonomic polyneuropathy

Discussion: Swallowing difficulties

Support Group: Neuropathy

Posted: Sep 18 3:48pm

Hi @mountaingirl1 I wanted to introduce you to fellow Connect member @stephenluptak. Although he is not...

https://connect.mayoclinic.org/comment/254254/

is not diagnosed with small fiber polyneuropathy

Discussion: Providers in Kansas City

Support Group: Neuropathy

Posted: Mar 9, 2019