IS IT NEUROPATHY

Posted by Jazzman @sciscented, Jun 21 8:41am

Fours ago I started feeling somewhat unbalanced. Seeing as I have had a few episodes of VPBP I thought it was another one of those. But this one had a peculiarly different feeling. I saw my doctor and he tested me for balance. The sole of my feet were not responding as they should have. Knowing that I was a drinker he said it was probably caused by alcohol and suggested I stop drinking which I didn’t.

Three years later I had an AFib situation and was rushed to ER. When I was released the cardiologist told me bluntly to stop drinking, and I did. It’s been three years now.
Stopping drinking I thought this loosing balance thing would go away. It didn’t and got worse over time. I don’t have any pain at all except for a light burning sensation. I need to use a mobility scooter or a walker when going out. Most days are bearable but some days are really bad.

I’m still waiting for an appointment with the neurologist.
I’m just wondering if this is alcoholic or idiopathic neuropathy, or something else.

Any thoughts?

The first sign of my idiopathic polyneuropathy was instability. Like you, I have good and bad days. Balance exercises seem to help a bit.

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@stefspad

The first sign of my idiopathic polyneuropathy was instability. Like you, I have good and bad days. Balance exercises seem to help a bit.

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Thank you for your comments.

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Hello @sciscented and welcome to Mayo Clinic Connect. First, congratulations on your sobriety! Three years is wonderful and a daily choice for a better life and health. Regardless of where you are today, you are far better off!

Here is some information on the difference between peripheral neuropathy and idiopathic neuropathy.

– Peripheral Neuropathy: Symptoms and Causes
https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
While I am not a medical professional, I am curious if you feel your balance issues stem from a lack of feeling/sensation in your feet or if it is something more like light-headedness or dizziness?

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Hello @sciscented, I would like to add my welcome to Connect along with @amandajro and others. I'm happy to hear that you've taken the first step to learning more about your neuropathy condition and possible treatments. Here are a few references for more learning more about neuropathy:

— Understanding and treating alcoholic neuropathy: https://www.medicalnewstoday.com/articles/321858
— Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
— Neuropathy Commons: https://neuropathycommons.org/

There are a couple of other discussions on Connect you may want to view and learn what others have shared:
— Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
— Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

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@amandajro

Hello @sciscented and welcome to Mayo Clinic Connect. First, congratulations on your sobriety! Three years is wonderful and a daily choice for a better life and health. Regardless of where you are today, you are far better off!

Here is some information on the difference between peripheral neuropathy and idiopathic neuropathy.

– Peripheral Neuropathy: Symptoms and Causes
https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
While I am not a medical professional, I am curious if you feel your balance issues stem from a lack of feeling/sensation in your feet or if it is something more like light-headedness or dizziness?

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Thank you for reaching out.
Actually I lose balance when my feet touch the ground. It feels like there is a delay with the message from the feet touching ground and the brain.
I can’t walk around on the sidewalk without a mobility walker, and even then I can’t walk for too long because my legs feel weak.
When I sleep I feel totally normal with no pain. It just feels like I’m wearing socks.

I get dizzy only when I have a sporadic Benign Paroxysmal Positional Vertigo event.
I’m still waiting for the neurologist appointment.

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@johnbishop

Hello @sciscented, I would like to add my welcome to Connect along with @amandajro and others. I'm happy to hear that you've taken the first step to learning more about your neuropathy condition and possible treatments. Here are a few references for more learning more about neuropathy:

— Understanding and treating alcoholic neuropathy: https://www.medicalnewstoday.com/articles/321858
— Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
— Neuropathy Commons: https://neuropathycommons.org/

There are a couple of other discussions on Connect you may want to view and learn what others have shared:
— Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
— Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

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Thank you for the info. Appreciate it.

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@amandajro

Hello @sciscented and welcome to Mayo Clinic Connect. First, congratulations on your sobriety! Three years is wonderful and a daily choice for a better life and health. Regardless of where you are today, you are far better off!

Here is some information on the difference between peripheral neuropathy and idiopathic neuropathy.

– Peripheral Neuropathy: Symptoms and Causes
https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061
While I am not a medical professional, I am curious if you feel your balance issues stem from a lack of feeling/sensation in your feet or if it is something more like light-headedness or dizziness?

Jump to this post

I have idiopathic sensorimotor peripheral polyneuropathy diagnosed in 2000. On gabapentin 300 mg. t.i.d. mostly for avoidance of paresthesia and dysesthesia. No chronic pain issues as long as I don't overdo. Resting every afternoon a recent thing for chronic fatigue. We (my service dog Rusty and I) get by.

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@helenwheels

I have idiopathic sensorimotor peripheral polyneuropathy diagnosed in 2000. On gabapentin 300 mg. t.i.d. mostly for avoidance of paresthesia and dysesthesia. No chronic pain issues as long as I don't overdo. Resting every afternoon a recent thing for chronic fatigue. We (my service dog Rusty and I) get by.

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Hello @helenwheels, Welcome to Connect. There are a few other discussions you may be interested in viewing.

— Axonal Sensorimotor Polyneuropathy: Looking for someone to relate: https://connect.mayoclinic.org/discussion/someone-to-relate/
— Chronic Illnesses of Millions of Women Left Untreated: https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

Not overdoing it when participating in activities is a great tip for all of us. Do you have any other tips that have helped you?

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