Mayo Clinic Connect
Hello! I’m looking for any feedback from those that have attended the 3 week pain rehabilitation clinic and also which location you went to. Specifically for fibromyalgia and chronic fatigue syndrome. Thank you!
Liked by rwinney
@dk21 Thanks for posting this. I was to begin the Florida program in 2 days but travel restrictions from NY to FL, due to Covid, has made me have to reschedule in October. I have Small Fiber Polyneuropathy and suspected Central Sensitization. I too would love to hear personal experiences.
Liked by John, Volunteer Mentor
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I have appointments with the fibromyalgia and chronic fatigue clinic the week of July 6 and would love to know what they do.
Liked by John, Volunteer Mentor, rwinney
@dk21 @rwinney and @suzanne2, here is a success story of a Mayo Clinic Rehabilitation Center patient from last October that you might enjoy reading.
Champion Spotlight: Kelsey — https://connect.mayoclinic.org/page/mayo-clinic-advocates/newsfeed-post/champion-spotlight-kelsey/
Thank you John for digging this one up that I hadn't found yet. Reaffirms why I'm trying to go. However, I do have several diagnosis already with understanding, and feel for this young lady who apparently went 10 years of not being diagnosed. That's hard to believe and very unfortunate. Unacceptable, no matter the reasons. Anyhow, cheers to her on a great review and successful outcome!
Hi Suzanne- my appointments with fibromyalgia & cfs syndrome clinic consisted of an evaluation with a nurse and than a doctors appointment. The doctor said I had both and recommended the 2 educational classes. I found them very helpful. I left feeling very optimistic. The nurses are great and they provide a lot of information. Being back in the real world I am struggling. It’s really hard to juggle it all. It is overwhelming for me as these are new diagnoses that had never been brought up by any of my doctors and I knew nothing about them. I wish I could go back to class and ask so many more questions now. I was told the pain rehabilitation clinic helps fast track the retraining of the brain so I’m very interested in going for further help. Good luck at your appointments! I wish you well!
Thanks so much for the heads up. I will not feel so blind when going to my appointment. I was actually diagnosed 20 years ago. I used to have a support group that I started in my community but that fell by the wayside unfortunately.
@dk21 Welcome to connect . This is a good group of people with lots of information to pass on. Back in the 90's I was diagnosed with fibromyalgia and O.A. The class I went to gave information about isoteric exercises . They do help I found out and now since then I have found different things in my tool box that helps me with these 2 problems I have . If you need any information about my toolbox let me know . Take care and good luck with your class
@migizii I would be very interested in learning about what’s in your “tool box” if you’d share? Thanks so much for considering doing this.
@migizii Of course I'd be glad to . What I've learned is to say NO to a lot of things it is hard to do but for yourself it is necessary That's the most important . Pace yourself ,don't try to do it all at once . I use to get groceries in several places then the next day couldn't get out of bed . Hot water will ease your pain. Ice will help when you are swelled in that area. Epsom salts for feet and also in bath or washcloth . Heating pad, Muscle rubs, TENS unit for tight muscles . relaxes them and lets the nerve retain its path way in the body I tried all the Perscription drugs and they did' t agree with me so I use a 450mg Magnesium Malete Peanut oil rubs help or Hemp oil also . Massages I think that's about it . Hope this helps
Liked by dk21
@lioness Thank you so much for all these helpful tips! Now that covid came and so did being furloughed, when I am possibly asked back to work, I will be letting them know that I am opting to retire. Although this pandemic has been terrible in so many ways, it has given me the opportunity to reflect on what I need to improve my health and well-being. What I have discovered is that for too many years, I have sacrificed my health for the job (which I adored-clinical social work with high needs children/youth). I will grieve that loss while looking forward to being better able to take care of myself and help others in different ways.
Liked by lioness
@migizii We have to do tough things for our health . So you are at retirement age then . I found its easier to take care of my health when I retired . Since I had it in the 90,s it was harder on me when I worked that's when I learned to say no to extra duty . Then in 05 was forced to retire after my fracture . Good luck . Glad I could help with the tips
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