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651 total results
Comments (610)
@colleenyoung I decided to post here since there isn't a separate group for Myalgic myeloencephalitis/CFS. Was...
https://connect.mayoclinic.org/comment/612350/
group for Myalgic myeloencephalitis/CFS ... appropriate provider to diagnose and treat ME ... /CFS.
Gratefully, I am not incontinent. I often have to wait a bit and focus to urinate....
https://connect.mayoclinic.org/comment/1402967/
Also, 30 years of ME/CFS.
Elden @elden -- welcome to Connect. Fatigue can be crushing. Have you tried any treatments or...
https://connect.mayoclinic.org/comment/210922/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments
-- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
It absolutely does. Anyone who denies this should get mono and then have their life ruined...
https://connect.mayoclinic.org/comment/774249/
and then have their life ruined by CFS ... Please go to Solve ME/CFS and donate
I know just how you feel. Perhaps we have to form our own group somehow. Perhaps...
https://connect.mayoclinic.org/comment/690052/
Perhaps we have to reach out to other ME ... /CFS patients. ... ME/CFS may be a post-viral syndrome ... very Mayo Clinic site, there is no ME ... /CFS Connect site.
@law59 these symptoms are just so bizarre. My cardiologists gave me new diagnosis of inappropriate sinus...
https://connect.mayoclinic.org/comment/1427722/
My cardiologists gave me new diagnosis ... Next step is getting the ME/CFS and ... Showering has been challenging for me
Don’t go to Mayo for ME/CFS. They are way behind on the research. They still believe...
https://connect.mayoclinic.org/comment/212594/
Don’t go to Mayo for ME/CFS.
Hello. I too have long covid with intense fatigue. What has helped me is low dose...
https://connect.mayoclinic.org/comment/1236831/
What has helped me is low dose Naltrexone ... I got from the Stanford Long Covid/ME ... CFS clinic.
All that you say is true and I've experienced it all over the years. I am...
https://connect.mayoclinic.org/comment/1398813/
patient who they'd diagnosed with ME ... /CFS (Myalgic Encephalomyilits/Chronic ... It frustrated me to hear that, thinking ... why didn't you say something to me ... My issue had also been called ME/CFS
I too applied to SS disability and was denied. Long hauler since April 2021 but my...
https://connect.mayoclinic.org/comment/1005881/
2021 but my official diagnosis is ME ... /CFS because I was not able to get a ... my evaluation Social Security sent me ... doctor, who had never heard of LC or CFS
Colleen, Thank you for your recommendations. However, what I think those of us who have ME/CFS...
https://connect.mayoclinic.org/comment/691122/
what I think those of us who have ME ... /CFS are looking for is an ME/CFS connect
Hi @samsam3030, it can be long and exhausting road to find a diagnosis. While members of...
https://connect.mayoclinic.org/comment/613611/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Hi @venki welcome back to the group. I wished I had some answers for you and...
https://connect.mayoclinic.org/comment/156711/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments
-- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Wondering if others are also experiencing "crashes" after mild exercise. I find that even easy walking...
https://connect.mayoclinic.org/comment/1057392/
find that even easy walking can set me ... by my Physio that I may also have ME ... /CFS.
Hey- Can u maybe give us a past medical history of any pertinent virus or infections...
https://connect.mayoclinic.org/comment/234523/
a RN n have a MPH pre-illnesses ie ME ... /CFS, fibro, 6 sets steel
Dizziness caused by ME/CFS, neuropathies from the stenosis and having to take a medicine that adds...
https://connect.mayoclinic.org/comment/1004648/
Dizziness caused by ME/CFS, neuropathies
@vostie Its always good to hear LDN success stories. I’ve been on it for 10 years...
https://connect.mayoclinic.org/comment/1384983/
I’ve been on it for 10 years for ME/ ... CFS, arthritis, fibromyalgia, and severe
Welcome @mindfulness, I can't imagine how difficult it must be to have thermal allodynia and not...
https://connect.mayoclinic.org/comment/686813/
underlying mechanism of fibromyalgia, ME ... /CFS, and several other conditions.1 ... Distinct Type of Pain in Fibromyalgia and ME ... /CFS: https://www.verywellhealth.com
@z4pper as a last resort, it is not uncommon for people to post to online communities,...
https://connect.mayoclinic.org/comment/313558/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments ... months-and-doctors-dont-know-whats-wrong/
- IBS, CFS ... /
Let me know if you'd like your
Hello Nikki @nicoletta8, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but I...
https://connect.mayoclinic.org/comment/156813/
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments
— https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
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