ME/CFS – search | You searched for comments

My daughter was diagnosed with CFS in 2012 after a viral infection. She is alot better...

https://connect.mayoclinic.org/comment/1020982/

My daughter was diagnosed with CFS in ... I think its ME/CFS.

Discussion: Has anyone gone to Mayo Clinic to see a CFS specialist?

Support Group: Visiting Mayo Clinic

Posted: Feb 23, 2024

@phoenixlion, welcome to Mayo Clinic Connect. I'm sorry to hear about your fruitless search (so far)...

https://connect.mayoclinic.org/comment/650103/

encephalomyelitis/chronic fatigue syndrome (ME ... /CFS) is a serious, long-term illness

Discussion: Have Had Mono-Like/CFS Symptoms for 15 Months: Need Help

Support Group: Infectious Diseases

Posted: Oct 31, 2021

My new neurologist just prescribed Gabapentin but I refused to take it. I’ve been on Low...

https://connect.mayoclinic.org/comment/1348112/

LDN has worked well for me with all ... I also have severe ME/CFS and fibromyalgia ... Gabapention would be a disaster for me ... It took me 2 years to wean off Xanax

Discussion: Gabapentin - being linked to increased risk of dementia

Support Group: Neuropathy

Posted: Jul 14 1:01pm

Hi Kari, I'm just catching up. My life is pretty quiet except just had a crazy...

https://connect.mayoclinic.org/comment/131199/

I was focusing on ME/CFS because that ... they also knew I had MALS and told me ... I was left to manage my ME/CFS symptoms ... They had me mostly on a BRAT diet, then

Discussion: Median Arcuate Ligament Syndrome (MALS)

Support Group: Digestive Health

Posted: Mar 18, 2018

@2011panc , thank you for responding. My doctor is indeed compassionate and I value her. I...

https://connect.mayoclinic.org/comment/254279/

The doctor I have now diagnosed my ME ... /CFS two years ago and I'm trying

Discussion: How to talk to my doctor & share research/knowledge I have found?

Support Group: Just Want to Talk

Posted: Mar 14, 2019

@ arcuri24 I have been on low dose naltrexone (3mg) for 10 years. It does wonders...

https://connect.mayoclinic.org/comment/1361630/

pain but the pain associated with ME ... /CFS and fibromyalgia. ... have any pain, but that the LDN keeps me

Discussion: Has anyone found a treatment that helps with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 1 3:48pm

Hi Mark, I am in the process of diagnosis with Dr. Farhad at MGH for SFPN...

https://connect.mayoclinic.org/comment/210953/

David SYstrom at BWH for SFPN from the ME ... /CFS pulmonary angle.

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Feb 9, 2019

I developed gluten intolerance when I was diagnosed with ME/CFS in 1984. Over time, I seemed...

https://connect.mayoclinic.org/comment/1287296/

intolerance when I was diagnosed with ME ... /CFS in 1984. ... My ND told me about 00 soft wheat flour

Discussion: Long COVID and gluten sensitivity

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 22 7:46am

I'm responding to webdog and many others who have been in conversation about Myalgic Encephalomyelitis/Chronic Fatigue...

https://connect.mayoclinic.org/comment/792406/

/CFS) My journey has been long. ... /CFS. ... /CFS as she was doing medical research ... /CFS. ... /CFS.

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: Jan 4, 2023

Those sound very similar to the symptoms I had leading up to my diagnosis of ME/CFS...

https://connect.mayoclinic.org/comment/246664/

had leading up to my diagnosis of ME ... /CFS aka Chronic Fatigue Syndrome. ... getting better, my pediatrician sent me

Discussion: Teen with weird mono...or not?

Support Group: Infectious Diseases

Posted: Aug 14, 2019

I dont know how anyone COULD cope well with LC. It is terrible. Very few providers...

https://connect.mayoclinic.org/comment/967190/

my own ( I have had to do this for ME ... /CFS for yrs. as I am a 46 yr. ... SURVIVOR of ME/CFS and Fibro. ... ME/CFS and Fibro. ... It will get me thru this too.

Discussion: Help! Need coping strategies for long Covid diagnosis and symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 18, 2023

Hello Natashia @nastashian, I would like to add my welcome to Connect along with @Erinmfs. You...

https://connect.mayoclinic.org/comment/615537/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Misdiagnosed multiple times I need answers

Support Group: Autoimmune Diseases

Posted: Jul 10, 2021

I’m glad to hear you’re finding help with a new provider. My first appointment with a...

https://connect.mayoclinic.org/comment/911273/

experienced by people suffering from ME ... /CFS and Long Covid. ... - Women are affected by ME/CFS at

Discussion: PHQ-9 Screening: “ Little interest or pleasure in doing things?”

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 11, 2023

Most helpful in the understanding of why more help/answers are NOT forthcoming from the Medical Profession...

https://connect.mayoclinic.org/comment/96452/

viewing of "UNREST" a documentary about ME ... /CFS on INDEPENDENT LENS---Ch. 9.

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jan 9, 2018

This is so interesting. The med that really helps me is a 200 mg. tablet of...

https://connect.mayoclinic.org/comment/1373403/

The med that really helps me is a 200 ... nothing and low dose aspirin makes me ... But, I had ME/CFS for many years before

Discussion: Finally... Some answers

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 18 10:41am

Just realized I could've answered both in one and didn't. I so appreciate this additional information...

https://connect.mayoclinic.org/comment/1382613/

A friend with ME/CFS has been helpful ... - she helped me feel comfortable about

Discussion: Turning down invitations

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 30 10:51am

I'm so sorry - I live in south Jersey, and my PCP is in north Jersey...

https://connect.mayoclinic.org/comment/1039465/

willing to join an appointment with me ... She focuses on LC and ME/CFS.

Discussion: Multiple Strange and New symptoms after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 24, 2024

Hi. I am sorry you are going thru all of this. Have you had an endoscopy...

https://connect.mayoclinic.org/comment/751494/

I have ME/CFS which is a post viral ... might want to check out Long Covid or ME ... times but therapy and my faith bring me

Discussion: Running out of hope

Support Group: Just Want to Talk

Posted: Sep 19, 2022

I think you nailed it. Any person, website, institution or organization that promises a cure is...

https://connect.mayoclinic.org/comment/1235115/

causes the symptoms of Long Covid or ME ... /CFS or Long Lyme or any of the post-infectious

Discussion: This program helping me recover

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 12 9:40am

Yes. I have these. As far as I can tell these are caused my microclots that...

https://connect.mayoclinic.org/comment/794744/

Long-COVID parallels and seems identical to ME ... /CFS. ... Teitelbaum had recovered around 3,000 ME ... and get folks out of Long-COVID and ME ... /CFS.

Discussion: Long haul Covid tremors and muscle spasms

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 10, 2023