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336 total results

Comments (311)

For those of you who have been admitted to Mayo from other states, like CA for...

https://connect.mayoclinic.org/comment/684566/

orofacial dsykinesia / oromandibular dystonia

Discussion: Movement disorder

Support Group: Brain & Nervous System

Posted: Feb 25, 2022

It took me about 7 1/2 months to taper off 1mg of Klonopin and I am...

https://connect.mayoclinic.org/comment/931768/

the day, a worsening of my laryngeal dystonia

Discussion: What is the best way to taper off Klonopin?

Support Group: Depression & Anxiety

Posted: Sep 18, 2023

I have abdominal dystonia. It began 2 years ago after extensive spine surgery. I also have...

https://connect.mayoclinic.org/comment/163078/

I have abdominal dystonia.

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Nov 20, 2020

Look at Myoclonus Dystonia disorder. Like me, you may need another diagnosis. Suggtest EEG and an...

https://connect.mayoclinic.org/comment/270910/

Look at Myoclonus Dystonia disorder.

Discussion: Periodic Limb Movement Disorder

Support Group: Sleep Health

Posted: Feb 10, 2020

Hello, I was diagnosed with a Movement Disorder/Cervical Dystonia after I was rear-ended while parked, 10...

https://connect.mayoclinic.org/comment/735156/

with a Movement Disorder/Cervical Dystonia

Discussion: Anyone else have cervical dystonia?

Support Group: Spine Health

Posted: Aug 8, 2022

Hi Beth, I'm sorry you are afflicted with a horrible ailment. The midsection spasms are familiar...

https://connect.mayoclinic.org/comment/287473/

specialist suspects I have abdominal dystonia

Discussion: undiagnosed movement disorder

Support Group: Brain & Nervous System

Posted: Dec 28, 2019

Good morning @kal12345678 Fifteen years is a long time to be dealing with Spasmodic Dysphonia and...

https://connect.mayoclinic.org/comment/791752/

spasmodic-dysphonia/ -Dealing with dystopia ... connect.mayoclinic.org/discussion/anyone-dealing-with-dystonia

Discussion: Type 2 Thyroplasty Surgery

Support Group: Ear, Nose & Throat (ENT)

Posted: Jan 3, 2023

Hi, I am 68, and I was diagnosed w/Parkinson's 3 yrs ago, after retirement. I recently...

https://connect.mayoclinic.org/comment/851810/

dealing w/dyskinesia alternating w/ dystonia

Discussion: Living with Parkinson's Disease - Meet others & come say hi

Support Group: Parkinson's Disease

Posted: Apr 30, 2023

Hi @melissa123, you may also be interested in these related discussions: - Essential tremors: Anyone experiencing...

https://connect.mayoclinic.org/comment/1110044/

(PD), multiple sclerosis (MS), or dystonia

Discussion: Husbands hands shake when he tries to do fine motor tasks

Support Group: Brain & Nervous System

Posted: Jul 22, 2024

Thank you for the helpful info. I've had trouble breathing for 2 years. Since then I...

https://connect.mayoclinic.org/comment/203075/

diaphragmatic myoclonus and abdominal dystonia

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 25, 2020

Cathy, Dr. Arce's number is 904-383-1022. He's with Shands, Univerity of Florida, in Jacksonville. Talk to...

https://connect.mayoclinic.org/comment/214479/

I got Dystonia from my Mom's side

Discussion: Monthly shaking episodes that continue to progress. Anyone else?

Support Group: Brain & Nervous System

Posted: Nov 16, 2018

Hi Gabe, I haven't and I don't know if I will post on CrowdMed, their fees...

https://connect.mayoclinic.org/comment/672294/

Because I have Dystonia as well, I am

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 18, 2022

Hello. I’m new here and wish to say thank you for being here. I guess I’m...

https://connect.mayoclinic.org/comment/1268098/

poor proprioception and trunk and leg dystonia

Discussion: Sensory Ganglionopathy help!!

Support Group: Neuropathy

Posted: Mar 27 2:13pm

Hello @d13 I see that you are interested in learning more about this rare disorder. Here...

https://connect.mayoclinic.org/comment/669768/

connect.mayoclinic.org/discussion/i-have-generalized-dystonia-and-hnpp-paraxial-vocal-cord-disorder-dysphagia-advanced

Discussion: Primary Progressive Aphasia

Support Group: Brain & Nervous System

Posted: Jan 10, 2022

I was given a tentative diagnosis last week of abdominal dystonia. When I stand erect, the...

https://connect.mayoclinic.org/comment/163077/

tentative diagnosis last week of abdominal dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Nov 12, 2019

I am happy to find this group. After over 6 years of seeking help, I was...

https://connect.mayoclinic.org/comment/200375/

consult with a new neuro: diagnosed with Dystonia

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: May 17, 2018

Hi Gabe, I just came across your post and read it thoroughly. I haven't read the...

https://connect.mayoclinic.org/comment/670121/

know if VCD is considered a type of Dystonia ... but I also have Dystonia. ... My Dystonia is "multifocal"

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 11, 2022

Thanks. Went down Dystonia path, I don't have that I believe. Or at least I had...

https://connect.mayoclinic.org/comment/992080/

Went down Dystonia path, I don't

Discussion: Functional Neurological disorder next steps

Support Group: Brain & Nervous System

Posted: Jan 5, 2024

Hi hope everyone is well, I haven't found many people on here with cervical dystonia. I...

https://connect.mayoclinic.org/comment/193098/

many people on here with cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Nov 20, 2020

Me too..super high blood pressure..in the 200 range..cant get it down..covid three times..last round september 2024....

https://connect.mayoclinic.org/comment/1230435/

hypotension, one dr said I probably had dystonia

Discussion: Long Covid & High BP when standing

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 6 3:59am