Dystonia – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

319 total results

Comments (299)

Hi Beth, I'm sorry you are afflicted with a horrible ailment. The midsection spasms are familiar...

https://connect.mayoclinic.org/comment/287473/

specialist suspects I have abdominal dystonia

Discussion: undiagnosed movement disorder

Support Group: Brain & Nervous System

Posted: Dec 28, 2019

Good morning @kal12345678 Fifteen years is a long time to be dealing with Spasmodic Dysphonia and...

https://connect.mayoclinic.org/comment/791752/

spasmodic-dysphonia/ -Dealing with dystopia ... connect.mayoclinic.org/discussion/anyone-dealing-with-dystonia

Discussion: Type 2 Thyroplasty Surgery

Support Group: Ear, Nose & Throat (ENT)

Posted: Jan 3, 2023

Hi, I am 68, and I was diagnosed w/Parkinson's 3 yrs ago, after retirement. I recently...

https://connect.mayoclinic.org/comment/851810/

dealing w/dyskinesia alternating w/ dystonia

Discussion: Living with Parkinson's Disease - Meet others & come say hi

Support Group: Parkinson's Disease

Posted: Apr 30, 2023

Thank you for the helpful info. I've had trouble breathing for 2 years. Since then I...

https://connect.mayoclinic.org/comment/203075/

diaphragmatic myoclonus and abdominal dystonia

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jun 25, 2020

Hi @melissa123, you may also be interested in these related discussions: - Essential tremors: Anyone experiencing...

https://connect.mayoclinic.org/comment/1110044/

(PD), multiple sclerosis (MS), or dystonia

Discussion: Husbands hands shake when he tries to do fine motor tasks

Support Group: Brain & Nervous System

Posted: Jul 22 2:54pm

Cathy, Dr. Arce's number is 904-383-1022. He's with Shands, Univerity of Florida, in Jacksonville. Talk to...

https://connect.mayoclinic.org/comment/214479/

I got Dystonia from my Mom's side

Discussion: Monthly shaking episodes that continue to progress

Support Group: Brain & Nervous System

Posted: Nov 16, 2018

Hi Gabe, I haven't and I don't know if I will post on CrowdMed, their fees...

https://connect.mayoclinic.org/comment/672294/

Because I have Dystonia as well, I am

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 18, 2022

Hello @d13 I see that you are interested in learning more about this rare disorder. Here...

https://connect.mayoclinic.org/comment/669768/

connect.mayoclinic.org/discussion/i-have-generalized-dystonia-and-hnpp-paraxial-vocal-cord-disorder-dysphagia-advanced

Discussion: Primary Progressive Aphasia

Support Group: Brain & Nervous System

Posted: Jan 10, 2022

I am happy to find this group. After over 6 years of seeking help, I was...

https://connect.mayoclinic.org/comment/200375/

consult with a new neuro: diagnosed with Dystonia

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: May 17, 2018

I was given a tentative diagnosis last week of abdominal dystonia. When I stand erect, the...

https://connect.mayoclinic.org/comment/163077/

tentative diagnosis last week of abdominal dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Nov 12, 2019

Hi Gabe, I just came across your post and read it thoroughly. I haven't read the...

https://connect.mayoclinic.org/comment/670121/

know if VCD is considered a type of Dystonia ... but I also have Dystonia. ... My Dystonia is "multifocal"

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Jan 11, 2022

Hi hope everyone is well, I haven't found many people on here with cervical dystonia. I...

https://connect.mayoclinic.org/comment/193098/

many people on here with cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Nov 20, 2020

kadelmaz, With my own "just getting older problems" added to chronic pain from two recreational accidents,...

https://connect.mayoclinic.org/comment/1135647/

Dystonia , per your neurologist starts

Discussion: Dystonic tremor. What am i facing?

Support Group: Brain & Nervous System

Posted: Sep 3 2:09pm

Thanks. Went down Dystonia path, I don't have that I believe. Or at least I had...

https://connect.mayoclinic.org/comment/992080/

Went down Dystonia path, I don't

Discussion: Functional Neurological disorder next steps

Support Group: Brain & Nervous System

Posted: Jan 5 4:50pm

I do not want this to influence your decision. I have a Stimwave in my upper...

https://connect.mayoclinic.org/comment/234656/

Seizure or dystonia type activity began

Discussion: Has anyone had the Stimwave spine stimulator installed?

Support Group: Spine Health

Posted: Mar 25, 2021

Lisa, When I was teaching I was not depressed or anxious. I loved teaching and enjoyed...

https://connect.mayoclinic.org/comment/152028/

developed anxiety and head tremor (dystonia

Discussion: Working with an employer once diagnosed with depression

Support Group: Depression & Anxiety

Posted: Feb 21, 2020

Yes, think that's it. I was concerned that the tubing caring the dulatid to his neck/shoulder...

https://connect.mayoclinic.org/comment/255359/

He has dystonia, pain all over his body

Discussion: Pain pump, I have one, how about one for you?

Support Group: Chronic Pain

Posted: Dec 5, 2020

I took clonazepam 1mg at bedtime for almost 20 years. As soon as I turned 65,...

https://connect.mayoclinic.org/comment/1007619/

sleepless nights, anxiety, and my focal dystonia

Discussion: Trazadone use for insomnia for seniors

Support Group: Depression & Anxiety

Posted: Feb 1 7:24am

Hi Nancy, I'm sorry to hear of your difficulty with muscle spasms. It seems that the...

https://connect.mayoclinic.org/comment/287476/

It seems that the dystonia diagnosis

Discussion: undiagnosed movement disorder

Support Group: Brain & Nervous System

Posted: Dec 29, 2019

Hi, I was diagnosed with Spasmodic Torticollis in 1992, at the Medical College of GA. I...

https://connect.mayoclinic.org/comment/163061/

Howard Thiel, president of Dystonia ... uncles and many cousins show signs of Dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Jun 1, 2018