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236 total results
Comments (204)
It’s primary progressive MS. Took almost 4 yrs to get the diagnosis.
https://connect.mayoclinic.org/comment/700800/
It’s primary progressive MS.
Welcome @kendoe, Sorry to hear that you aren't getting much help at UCSF. I am not...
https://connect.mayoclinic.org/comment/1396418/
mentioned being diagnosed with primary progressive ... MS to see if they may have some experience ... discussions on Connect that mention progressive ... MS. ... search=progressive%20MS.
Hi Yulander! I have also seen the effects of progressive MS with my mom! Now, I...
https://connect.mayoclinic.org/comment/118324/
I have also seen the effects of progressive ... MS with my mom! ... Now, I have Relapsing/remitting MS and
@colleenyoung , My 69 yr old husband has primary progressive MS with most of his lesions...
https://connect.mayoclinic.org/comment/118422/
My 69 yr old husband has primary progressive ... MS with most of his lesions on the
Hi I am 68 yrs old woman was diagnosed with Primary Progressive MS 5 yrs a...
https://connect.mayoclinic.org/comment/793029/
old woman was diagnosed with Primary Progressive ... MS 5 yrs a go. ... My MS specialist has not given any medications
@Marcelle Thank you for taking the time to explain it! This maybe helpful to both me...
https://connect.mayoclinic.org/comment/56662/
pain with MALS and my sister who has progressive ... MS.
@ydawson thank you for saying all MS cases are different. My sister was diagnosed with MS...
https://connect.mayoclinic.org/comment/118338/
@ydawson thank you for saying all MS ... My sister was diagnosed with MS 4 months ... ago and it is progressive. ... that you posted that your Mom has progressive ... MS also, how is she doing?
MGUS related Cryoglobulinemia Treatments Can someone share their experience with treatments/effectiveness? I have developed terrible neuropathy...
https://connect.mayoclinic.org/comment/1110975/
He was diagnosed with primary progressive ... MS when he was 40 and was non-ambulatory
My 69 yr old husband has primary progressive MS. The majority of his lesions are in...
https://connect.mayoclinic.org/comment/41730/
My 69 yr old husband has primary progressive ... MS.
I have read extensively about hyperbaric chambers. Unfortunately, it is not for people with Multiple Sclerosis,...
https://connect.mayoclinic.org/comment/1317808/
Multiple Sclerosis, even though my MS ... operate as I am 71 with secondary progressive ... MS. ... The recovery time for people with MS
hi, i'm 64, with secondary progressive ms, officially dx made in 94 but likely onset 89....
https://connect.mayoclinic.org/comment/816007/
hi, i'm 64, with secondary progressive ... ms, officially dx made in 94 but likely
All good comments and experiences we can learn from. Including the anger - - just let...
https://connect.mayoclinic.org/comment/1128739/
My wife of 53 years had Progressive ... MS (multiple sclerosis) for 20+ years
I do not have MS but have a close relative with it for decades, and a...
https://connect.mayoclinic.org/comment/204025/
MS can come and go. ... That is called relapsing remitting MS ... and is the most common form of MS. ... Progressive MS can also come and go ... in waves, but the general progression
I am a 68 year old male and have had MS for 23 years. As my...
https://connect.mayoclinic.org/comment/1163664/
am a 68 year old male and have had MS ... As my MS has progressed, I have increasing ... Progressive MS is a grim condition; ... effective drugs and aides for folks with MS
Hi @helenlodahl, welcome to Mayo Clinic Connect. We’re a community of members just like you who...
https://connect.mayoclinic.org/comment/607231/
There is an MS discussion group which ... and that it’s progressing. ... My sister has had Secondary Progressive ... MS for 34 years. ... /Types-of-MS/Secondary-progressive-MS
I have my next treatment of Ocrevus 2 weeks after the first one and then I...
https://connect.mayoclinic.org/comment/118373/
I was just diagnosed with primary progressive ... MS(PPMS) and they just came out with ... the first drug for this kind of MS
@camper - your sister is very lucky to have a twin sister like you, out there...
https://connect.mayoclinic.org/comment/118429/
learning about multiple sclerosis (MS ... camper, as you seek some answers on MS ... , how testing for MS is done, and also ... mentioned your husband has primary progressive ... MS.
Yes, I have exactly what you describe and it, also, is called SVT, I was, also,...
https://connect.mayoclinic.org/comment/665311/
Now I have a fully expressed MS but ... it is being called Secondary Progressive ... MS...I can't even walk without
I knew I had ms, I looked for 16 years. I have every symptom mainly falling....
https://connect.mayoclinic.org/comment/728978/
I knew I had ms, I looked for 16 years ... found a Dr after asking a woman with progressive ... ms, & saw him for 8 yrs. ... normal, he said you can still have ms ... told me she said I think you have ms
Don’t despair, Rameez! We are very fortunate these days that therapies/treatments available can keep CML ‘at...
https://connect.mayoclinic.org/comment/958220/
My own wife has secondary progressive ... MS, so I tell myself all the time I
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