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Multiple Sclerosis (MS) - please introduce yourself
Let's talk about living with multiple sclerosis (MS).
The Mayo Clinic Connect moderation team have noticed people have been talking about MS, but those discussions have been scattered throughout the community. So, the team decided to start this support group just for multiple sclerosis to bring all those with this diagnosis or whose loved one has MS — or wondering if they or a loved one has MS — together. This also provides a great opportunity for those who have questions for those who share this diagnosis.
This MS support group is intended to be a welcoming, safe place for people to connect and share experiences; ask questions about doctor visits, symptom relief, the diagnostic process and available treatments; and encourage and check in on others in similar situations.
To be part of the MS group, you can:
- Follow the group. Following this group will allow you to receive regular updates in your Connect Daily Digest about group activity.
- Browse the discussion topics. From the group's home page, look through the discussion titles and see where you may have tips or ideas to contribute or a question to ask others.
- Use the group search to find discussions that interest you. If you want to find a specific, MS-related topic, this is the quickest way to see what's available in the group discussions.
- Introduce yourself. Giving a brief background on yourself, when and how you were diagnosed, and what treatments you've had so far will help others in the group get to know you and determine what they might ask you about your MS experiences.
Regardless of where you may be on your journey with MS today, you’re invited to join this group and connect with others.
Why not start by introducing yourself? What has your MS experience or the experience of your loved one been like? What symptoms and treatments have you or your loved one had, and have they helped? Do you have any questions you'd like to ask others who have MS or who've walked alongside someone with the disease?
Grab a cup of tea, iced coffee, or beverage of you choice, and let's chat.
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HugInterested in more discussions like this? Go to the Multiple Sclerosis (MS) Support Group.
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I have MS on March 1st 13 years. On 2/24 I woke up with the worst headache & I never get. I did have a active brain lesion. I couldn't see & did everything I was suppose two. My left eye is better but still can't see out of my right eye. I have become so weak. I won't know what to do until Monday & I just keepi panicking. Any one else have this happened ?
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1 ReactionHi @stacy36,
I can only imagine how frightening these new symptoms must be. It's hard not to panic. But of course, it doesn't help, does it?
I've searched the discussions and haven't found specific conversations where people with MS are talking about sudden sight loss. However, I would like to introduce you to a few Connect members and conversations.
In these threads, you'll meet @jessejames4534 @carolyns and @lal2
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It's been a few hours since you first posted this message. Has there been any change? Do you have an appointment to see a doctor tomorrow?
Hi @anisha1232 @ricksraleigh @chefbrown @tlgreg60 @rockypoint67 @sebley12 @manysilver @jessejames4534 @carolyns and @lal2 I'd like to invite you to the new discussion about multiple sclerosis to make it easier for you to meet other Connect members living with and talking about MS. Pull up a chair and tell us a bit about yourself.
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3 ReactionsHello my name is Yulander I have an autoimmune diseases called Multiple Sclerosis. I have been a healthcare provider over 20+ years and I have seen how Multiple Sclerosis have crippled people throughout my career. Today they have no cure but the good thing is the medicine they have helped keep people alive and to continue to work with relapsing and remission. Next week I will be starting my new medication with the ability to continue to work. However, Multiple Sclerosis is a demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. This damage disrupts the ability of parts of the nervous system to communicate, resulting in a range of signs and symptoms, including physical, mental, and sometimes psychiatric problems.
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6 ReactionsHi Yulander, welcome to Connect.
I'm so glad you found us. I actually moved your message to the Brain & Nervous System group so that you could meet others talking about MS. Just a few days ago @ricksraleigh joined our community looking to connect. What perfect timing.
Yulander, when were you first diagnosed with MS? How do you manage work and relapses?
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1 ReactionHi Yulander! I have also seen the effects of progressive MS with my mom! Now, I have Relapsing/remitting MS and continue to be a fighter! WE WILL OVERCOME THIS DISEASE!
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6 ReactionsHi my name is Yulander!
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1 ReactionYes we wil overcome this disease!
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2 ReactionsHi Yulander, Welcome to Connect. Can you share what the new medication is?
I don't have MS but do have an autoimmune disease - small fiber peripheral neuropathy which was diagnosed this past March. A book that I found interesting that is written by someone who has MS started me on my journey of possible diet and nutrition changes that I can make to help my autoimmune disease and slow down progression. You may find it interesting also - http://terrywahls.com/about/about-terry-wahls/.
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3 ReactionsHi John, Tysabri this medication treat MS and Crones disease!
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