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Comment
@jessie59, I add my welcome along with @gardenlady1116. I also added your discussion to the Neuroendocrine...
also added your discussion to the Neuroendocrine ... Tumors (NETs) support group here: https ... ://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... does your cancer team monitor your NETs
Posted: Feb 5, 2023
Comment
Mike, I'm sorry to hear that you added another condition on your already full plate. Not...
searched for other discussions on NETs ... search=Neuroendocrine%20Tumors%20(NETs ... a good start for information: -- Neuroendocrine ... Tumors (NETs) Q&A with a NETs Expert ... /connect.mayoclinic.org/discussion/neuroendocrine-tumors-nets-qa-with-a-nets-expert
Comment
@pcbeach, I added your discussion to the Neuroendocrine Tumors (NETS) support group as well https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ Mayo...
pcbeach, I added your discussion to the Neuroendocrine ... Tumors (NETS) support group as well ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... / Mayo has good NETs specialists.
Support Group: Esophageal Cancer
Posted: Dec 19, 2025
Comment
Hi @banks, because pheochromocytoma is a type of neuroendocrine tumor, I have also added your question...
because pheochromocytoma is a type of neuroendocrine ... tumor, I have also added your question ... to the Neuroendocrine Tumors (NETs) ... https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets
Comment
Welcome, @lchaney1951. I moved your question to the Neuroendocrine Tumors (NETs) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ where...
I moved your question to the Neuroendocrine ... Tumors (NETs) support group here: https ... ://connect.mayoclinic.org/group/neuroendocrine-tumors-nets ... can meet others with lung carcinoid tumors
Posted: Feb 25, 2024
Discussion
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
Kendi and Medical/NET oncologist Dr. ... new golden standard for imaging of neuroendocrine ... tumors (NETs). [68Ga] DOTATATE PET ... the first line imaging choice for NETs ... FDA and was made available to the NET
Last active: Feb 1, 2025
Discussion
Carcinoid NET changed to carcinoma: What's the difference?
Carcinoid NET changed to carcinoma: ... Lungs Nets biopsy typical Neuroendocrine ... carcinoid tumours., in 2023. ... Oncologist refers to them now Neuroendocrine ... carcinoma tumors!!!!
Last active: Feb 13, 2025
Discussion
Appendiceal (NET) - Recommendation for a right hemicolectomy
incidentally diagnosed with an appendiceal neuroendocrine ... tumor (NET) after an appendectomy performed ... findings were: * Well-differentiated neuroendocrine ... tumor (NET G1) * Tumor size: 1.9 cm ... I was evaluated at a major neuroendocrine
Last active: Jun 27 6:50pm
Discussion
What makes a reliable NET Specialist... Doctor?
stated in his profile that he was a Neuroendocrine ... needed to see someone who worked with a tumor ... and whose main proficiency was in Neuroendocrine ... them to notice subtle patterns in tumor ... Direct Access to a Multidisciplinary Tumor
Last active: 18 minutes ago
Discussion
Anyone had PRRT treatment for liver metastasis NETS?
PRRT treatment for liver metastasis NETS ... receptor radionuclide therapy for neuroendocrine ... tumors of the liver?
Last active: Apr 18 6:46am
Newsfeed Post
Paying forward the kindness of strangers: Meet @lindabees
diagnosed with stage 4 pancreatic neuroendocrine ... (NET) cancer in 2008, became a patient ... always been involved in various online NET ... in 2008, there were very few online NET ... @lindabees: Neuroendocrine Tumors (NETs
Teresa, Volunteer Mentor | @hopeful33250
Published: Oct 2, 2025
Newsfeed Post
Be honest. Be realistic. Be happy. Be grateful: Meet @dbamos1945
@dbamos1945: A neuroendocrine tumor ... (also called NETs or carcinoid cancer ... We NET patients share the same basic ... Primarily I post in the Neuroendocrine ... Tumors (NETs) support group.
Teresa, Volunteer Mentor | @hopeful33250
Published: May 16, 2025
Newsfeed Post
Giving it All You've Got: Meet @ahtaylor
Eventually I moved to the Neuroendocrine ... Tumors (NETs) support group, which
Teresa, Volunteer Mentor | @hopeful33250
Published: Feb 27, 2023
Newsfeed Post
Why not me? Meet @vinnie694
gastroenterologist discovered the tumors ... After the neuroendocrine cancer diagnosis ... Clinic Connect I take part in the Neuroendocrine ... Tumors (NETs) support group. ... meaningful moments, especially since neuroendocrine
Teresa, Volunteer Mentor | @hopeful33250
Published: Feb 13, 2025
Newsfeed Post
The world ain't all sunshine and rainbows: Meet @tomrennie
learn about my cancer (pancreatic neuroendocrine ... tumors that have spread to my liver ... @tomrennie: I participate in the Neuroendocrine ... Tumors (NETs) support group.  ... cancer let alone become an expert in NETs
Teresa, Volunteer Mentor | @hopeful33250
Published: May 22, 2024