HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Feb 14, 2018

Today is Congenital Heart Defect Awareness Day!

By Suzanne Ferguson @suzannerferguson
February 14 marks Congenital Heart Defect Awareness Day. It’s a special day dedicated to raising awareness and support for children born with heart defects. It’s also a time to celebrate our little heart inspirations. CHDs are the most common birth defect. Each year, approximately 40,000 children are born with CHDsand [...]
Today is Congenital Heart Defect Awareness Day!
Feb 9, 2018

#AsktheMayoMom Facebook Live Tomorrow at 10 am CT

By Suzanne Ferguson @suzannerferguson
Join us today at 8:30 CT for an #AsktheMayoMom Facebook Live session with Drs. Timothy Nelson and Yasir Qureshi to learn more about hypoplastic left heart syndrome (HLHS) and the research the Todd and Karen Wanek Family Program for HLHS is doing to find solutions to HLHS.       The Todd [...]
#AsktheMayoMom Facebook Live Tomorrow at 10 am CT
Feb 6, 2018

Children's Hospital Los Angeles joins HLHS Consortium

By Suzanne Ferguson @suzannerferguson
Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Hospital Los Angeles are collaborating to prevent heart failure for hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child's heart is severely underdeveloped. Children's Hospital Los [...]
Children's Hospital Los Angeles joins HLHS Consortium
Dec 19, 2017

Research collaboration gives hope for future of babies with rare heart defect

By Suzanne Ferguson @suzannerferguson
  "He's amazing," Andrea Sexton says, beaming about her infant son. "He is the strongest little boy ... If you were just looking at him, you'd never know anything was wrong." Sexton and her husband, Heath Sexton, never imagined that would even be possible for their son Ryals after he [...]
Research collaboration gives hope for future of babies with rare heart defect
Dec 18, 2017

Roman Rubeck and Family - Pioneering the way for patients with hypoplastic left heart syndrome

By Suzanne Ferguson @suzannerferguson
  Congenital heart disease has a robust history of patient pioneers – the first people willing to take a chance on medical options or to find treatments not currently available to combat the reality of being born with a severe heart defect. History doesn’t always remember the names of those [...]
Roman Rubeck and Family - Pioneering the way for patients with hypoplastic left heart syndrome