HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Dec 5, 2017

Mayo Clinic, Children’s Minnesota announce rare congenital heart defect collaboration

By Suzanne Ferguson @suzannerferguson
ROCHESTER, Minn.— Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Minnesota are collaborating to prevent heart failure for hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child's heart is severely underdeveloped. [...]
Mayo Clinic, Children’s Minnesota announce rare congenital heart defect collaboration
Nov 28, 2017

Understanding FDA approved or allowed stem cell therapies

By Suzanne Ferguson @suzannerferguson
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is running clinical trials using stem cells derived from the individuals themselves (called autologous stem cells).  All of the clinical trials are being studied in accordance with the U.S. Food and Drug Administration (FDA). What are stem [...]
Understanding FDA approved or allowed stem cell therapies
Nov 8, 2017

Thank YOU for attending Feel the Beat 2017!

By Suzanne Ferguson @suzannerferguson
We had a fantastic event on Saturday, October 14 here at Mayo Clinic for the fifth annual Feel the Beat event! There were over 270 attendees from 12 states and Canada who traveled all the way to Rochester, Minnesota. We had a great lineup of speakers from Karen Wanek, Brenton [...]
Thank YOU for attending Feel the Beat 2017!
Oct 26, 2017

Three reasons why the flu shot is important

By Suzanne Ferguson @suzannerferguson
The flu shot helps prevent against the flu. The flu shot is a vaccine that helps prevent against certain strains of the Influenza virus – the virus that causes flu. It takes two weeks after receiving the shot for the body to build up immunity, and it is important to [...]
Three reasons why the flu shot is important
Oct 3, 2017

What do we know about the genetics of HLHS?

By Suzanne Ferguson @suzannerferguson
  One of the main goals of The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is to find the genetic cause of the congenital heart disease (CHD). Here’s what we know so far: There is no single gene that causes HLHS. There are many unique [...]
What do we know about the genetics of HLHS?