We often get questions about issues facing post-Fontan individuals. To learn more about the Fontan surgery, as well as the research being done by the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic, I talked to Dr. Frank Cetta. Along with being a pediatric [...]
Sisters by Heart was formed in 2010 by a group of heart moms who came together to support others on the journey of being a heart parent. The organization became a member of the HLHS Consortium in 2017, becoming the first advocacy group to join. Today, the mission of [...]
In December 2019, an outbreak of a new infectious disease occurred in China. The virus has been named "SARS-CoV-2" and the disease it causes has been called coronavirus disease 2019 (COVID-19). Since then, it has become a pandemic that has rapidly expanded worldwide, causing a respiratory infection [...]
FRIDAY, MARCH 27 -- What happens to clinical trials when an unprecedented global outbreak shuts down life as we've known it? The answer, as with most things right now, is -- It depends.
The Todd and Karen Wanek Family Program for Hypoplastic Left Heart [...]
During CHD Awareness Month, we hear many families share stories of their journey in the heart world. The community is very tightly knit, and many families are inspired to give back and find ways to support others. This support can be as simple as posting reassuring comments on social [...]