HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Jun 28, 2017

Save the Date for Feel the Beat 2017!

By Suzanne Ferguson @suzannerferguson
  The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects [...]
Save the Date for Feel the Beat 2017!
Jun 6, 2017

What is ejection fraction and what does it measure?

By Suzanne Ferguson @suzannerferguson
Ejection fraction is a measurement of the percentage of blood leaving your heart each time it contracts. During each heartbeat pumping cycle, the heart contracts and relaxes. When your heart contracts, it ejects blood from the two pumping chambers (ventricles). When your heart relaxes, the ventricles refill with blood. No [...]
What is ejection fraction and what does it measure?
May 26, 2017

New study highlights the importance of genetics research

By Suzanne Ferguson @suzannerferguson
An exciting paper was recently published in Nature Genetics titled “The complex genetics of hypoplastic left heart syndrome”.  This elegant study was led by a research team at the University of Pittsburgh School of Medicine and highlights the creation of the first mouse models of hypoplastic left heart syndrome (HLHS). [...]
New study highlights the importance of genetics research
May 15, 2017

Share the Science: Strengthening the HLHS Heart with Cord Blood

By Suzanne Ferguson @suzannerferguson
Join Dr. Nelson, director of the Todd and Karen Wanek Family Program for HLHS, this Wednesday, May 17 at 2 p.m. CT to learn more about using umbilical cord blood stem cells to potentially strengthen the heart. The free webinar is hosted by Save the Cord Foundation and Mediware, Inc. [...]
Share the Science: Strengthening the HLHS Heart with Cord Blood
May 5, 2017

Mayo Clinic’s Fontan procedure study shows improvement in survival rates

By Suzanne Ferguson @suzannerferguson
Mayo Clinic recently published the largest single center study on the outcomes of the Fontan procedure. The goal of the study was to determine how well patients were doing 10, 20 and 30 years after a Fontan procedure at Mayo Clinic. The most promising result from the study shows that [...]
Mayo Clinic’s Fontan procedure study shows improvement in survival rates
Apr 17, 2017

Congratulations to the 2017 IMPACT Winners!

By Suzanne Ferguson @suzannerferguson
On March 18, the Innovative Minds Partnering to Advance Curative Therapies (IMPACT) program engaged over 200 undergraduate students from 23 different Minnesota colleges. IMPACT is a competitive program open to Minnesota undergraduate students that encourages them to submit hypotheses for different challenges. It is sponsored by Regenerative Medicine Minnesota and [...]
Congratulations to the 2017 IMPACT Winners!
Apr 10, 2017

Dr. Nelson featured on "Heart to Heart with Anna"

By Suzanne Ferguson @suzannerferguson
Dr. Nelson was recently featured on the radio show “Heart to Heart with Anna” to discuss the work our program is doing to delay and prevent heart failure for individuals with HLHS. Dr. Nelson and Anna discuss the clinical trial using umbilical cord blood as well as the clinical trial [...]
Dr. Nelson featured on
Mar 13, 2017

Mayo Clinic to host undergraduate students at IMPACT Symposium on March 18

By Suzanne Ferguson @suzannerferguson
The Innovative Minds Partnering to Advance Curative Therapies (IMPACT) Program at Mayo Clinic will hold their fourth annual IMPACT Symposium this Saturday, March 18 from 9:00 a.m. until 5:00 p.m. at Mayo Clinic in Rochester, Minnesota. The IMPACT Symposium is a daylong conference for students to pitch their innovative hypotheses [...]
Mayo Clinic to host undergraduate students at IMPACT Symposium on March 18
Feb 21, 2017

HLHS Program is now able to collect and store umbilical cord blood

By Suzanne Ferguson @suzannerferguson
Here at the Todd and Karen Wanek Family Program for HLHS we are excited to announce that we are now able to collect, process, and store umbilical cord blood (UCB) from HLHS babies to be potentially used for clinical trials in the future. After a baby is born and the [...]
HLHS Program is now able to collect and store umbilical cord blood
Feb 7, 2017

CHD Awareness Week February 7-14

By Suzanne Ferguson @suzannerferguson
Congenital Heart Defect (CHD) Awareness Week starts today and goes through the 14th of February. CHD Awareness Week is a special week dedicated to raising awareness and support for individuals with CHDs. In honor of the week, our program will be sharing information on social media about research findings, helpful [...]
CHD Awareness Week February 7-14
Feb 1, 2017

#AsktheMayoMom Facebook Live Tomorrow at 10 am CT

By Suzanne Ferguson @suzannerferguson
Join us tomorrow at 10 am CT for an #AsktheMayoMom Facebook Live session about hypoplastic left heart syndrome (HLHS) with Dr. Angela Mattke, pediatrician, and Dr. Timothy Nelson, pediatric cardiologist and director of the Todd and Karen Wanek Family Program for HLHS. http://mayocl.in/2jVbQu0   The Todd and Karen Wanek Family [...]
#AsktheMayoMom Facebook Live Tomorrow at 10 am CT
Dec 20, 2016

Helping the HLHS Heart Grow Stronger

By Suzanne Ferguson @suzannerferguson
Our main goal at the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome(HLHS) is to delay and prevent heart failure for individuals with HLHS. The video below discusses how we are using stem cells to grow the heart stronger. https://www.youtube.com/watch?v=X45CDIrntuc&feature=youtu.be For any questions, please email us at [...]
Dec 1, 2016

HLHS Pullovers

By Suzanne Ferguson @suzannerferguson
*Update: We have received many requests to reopen the ordering for the pullovers. Please see the information below.* We received quite a few requests regarding our HLHS pullovers so we have now made them available for purchase. Make sure to place your orders by December 9!   To order pullover [...]
HLHS Pullovers
Nov 29, 2016

HLHS Health Journal – New App to Keep Track of Health

By Suzanne Ferguson @suzannerferguson
The Todd and Karen Wanek Family Program is excited to announce a new collaboration with Sisters by Heart and Empatheia to provide the HLHS Health Journal, a new app for individuals and families to help keep track of important daily vitals and improve clinical care. HLHS Health Journal makes it [...]
HLHS Health Journal – New App to Keep Track of Health
Nov 16, 2016

HLHS Survivors Come Together in Annual Celebration of Life

By Suzanne Ferguson @suzannerferguson
Once upon a time, "happily ever after" wasn't a phrase associated with hypoplastic left heart syndrome, or HLHS. For many years, parents were simply advised to make the most of their brief time with children born with the rare heart defect. That's one of the reasons the annual "Feel the [...]
HLHS Survivors Come Together in Annual Celebration of Life