HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
May 8, 2020

The Fontan: Past, Present, and Future with Dr. Frank Cetta

By Brianna N. Tranby @briannatranby
  We often get questions about issues facing post-Fontan individuals. To learn more about the Fontan surgery, as well as the research being done by the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic, I talked to Dr. Frank Cetta. Along with being a pediatric [...]
The Fontan: Past, Present, and Future with Dr. Frank Cetta
Apr 29, 2020

Sending Hope, Healing, and Heart Hugs

By Brianna N. Tranby @briannatranby
Sisters by Heart was formed in 2010 by a group of heart moms who came together to support others on the journey of being a heart parent. The organization became a member of the HLHS Consortium in 2017, becoming the first advocacy group to join. Today, the mission of [...]
Sending Hope, Healing, and Heart Hugs
Apr 10, 2020

A Message from the HLHS Consortium Regarding COVID-19

By Brianna N. Tranby @briannatranby
  In December 2019, an outbreak of a new infectious disease occurred in China. The virus has been named "SARS-CoV-2" and the disease it causes has been called coronavirus disease 2019 (COVID-19). Since then, it has become a pandemic that has rapidly expanded worldwide, causing a respiratory infection [...]
A Message from the HLHS Consortium Regarding COVID-19
Mar 27, 2020

Dedicated to Delivering Hope

By Brianna N. Tranby @briannatranby
  FRIDAY, MARCH 27 -- What happens to clinical trials when an unprecedented global outbreak shuts down life as we've known it?  The answer, as with most things right now, is -- It depends.   The Todd and Karen Wanek Family Program for Hypoplastic Left Heart [...]
Dedicated to Delivering Hope
Feb 24, 2020

Organizations with Heart: An Inspiring Conversation for CHD Month

By Brianna N. Tranby @briannatranby
During CHD Awareness Month, we hear many families share stories of their journey in the heart world. The community is very tightly knit, and many families are inspired to give back and find ways to support others. This support can be as simple as posting reassuring comments on social [...]
Organizations with Heart: An Inspiring Conversation for CHD Month

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