HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Sep 21, 2017

Register by tomorrow for HLHS Feel the Beat 2017!

By Suzanne Ferguson @suzannerferguson
Registration officially closes tomorrow for the fifth annual HLHS Feel the Beat event held on October 14. It’s going to be a great day filled with inspiring guest speakers, updates on the ongoing HLHS research, and an exciting afternoon surprise! Read more about our featured guest speakers Brenton Ball, Erin [...]
Register by tomorrow for HLHS Feel the Beat 2017!
Sep 15, 2017

HLHS Feel the Beat 2017: Agenda

By Suzanne Ferguson @suzannerferguson
In addition to the phenomenal speakers we have at Feel the Beat this year, we also have a jam-packed day full of activities. Check out the day's agenda below. If you haven’t registered for Feel the Beat, make sure you do so before September 22. For those of you who [...]
HLHS Feel the Beat 2017: Agenda
Sep 8, 2017

HLHS Feel the Beat 2017: Diane Pickles and Annie Ritchings

By Suzanne Ferguson @suzannerferguson
(Diane Pickles and Annie Ritchings) Two more amazing guest speakers who will be at our Feel the Beat event on October 14 are Diane Pickles and Annie Ritchings. We are very excited to have them and can’t wait for you to also hear what they have to say. If you [...]
HLHS Feel the Beat 2017: Diane Pickles and Annie Ritchings
Aug 31, 2017

HLHS Feel the Beat 2017: Brenton Ball and Erin Borkowski

By Suzanne Ferguson @suzannerferguson
The theme for Feel the Beat 2017 is ‘inspiration,’ and we’re planning a terrific slate of speakers for it.  You’ll hear from inspiring HLHSers, parents, and doctors on October 14. (If you can’t attend in person, make sure you head over to Facebook to watch a live broadcast.) Here are [...]
HLHS Feel the Beat 2017: Brenton Ball and Erin Borkowski
Aug 24, 2017

What is HLHS Feel the Beat?

By Suzanne Ferguson @suzannerferguson
The HLHS Feel the Beat event is a family friendly event for anyone and everyone interested in learning more about hypoplastic left heart syndrome (HLHS) and the work the Todd and Karen Wanek Family Program for HLHS is doing. Feel the Beat was created in 2013 as team members from [...]
What is HLHS Feel the Beat?
Aug 17, 2017

Novel Stem Cell Treatment Means New Lease on Life

By Suzanne Ferguson @suzannerferguson
Halloween is an especially meaningful day for Jared Ausnehmer and his family. On Oct. 31, 2011, Jared's family saw a news story about a man who had had stem cells injected into his heart to reverse damage from a heart attack. Jared's mom, Patty Ausnehmer, wondered if this type of [...]
Novel Stem Cell Treatment Means New Lease on Life
Aug 16, 2017

Sisters by Heart joins Mayo Clinic and the HLHS Consortium

By Suzanne Ferguson @suzannerferguson
  Sisters by Heart, the largest hypoplastic left heart syndrome (HLHS) non-profit in the United States, has officially joined the HLHS Consortium created by Mayo Clinic’s Todd and Karen Wanek Family Program for HLHS. They become the third member of the HLHS consortium in addition to the Children’s Hospital of [...]
Sisters by Heart joins Mayo Clinic and the HLHS Consortium
Aug 14, 2017

You are invited to HLHS Feel the Beat 2017!

By Suzanne Ferguson @suzannerferguson
You are invited to the fifth annual Feel the Beat event on October 14, 2017 in Rochester, Minnesota! Sign up today and check back soon for more information on our featured guest speakers and the day's agenda.   ________________________________________________________________________ The Todd and Karen Wanek Family Program for Hypoplastic Left Heart [...]
You are invited to HLHS Feel the Beat 2017!
Jul 25, 2017

What is protein-losing enteropathy (PLE) and how it is related to HLHS?

By Suzanne Ferguson @suzannerferguson
Protein-losing enteropathy (PLE) is a rare and complicated disorder regarding the loss of proteins in the intestines. The signs and symptoms of PLE include bloating, diarrhea, edema, pleural effusions, ascites, and failure to thrive. In some situations, PLE can occur after the Fontan procedure. The Fontan procedure is typically the [...]
What is protein-losing enteropathy (PLE) and how it is related to HLHS?
Jun 28, 2017

Save the Date for Feel the Beat 2017!

By Suzanne Ferguson @suzannerferguson
  The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects [...]
Save the Date for Feel the Beat 2017!
Jun 6, 2017

What is ejection fraction and what does it measure?

By Suzanne Ferguson @suzannerferguson
Ejection fraction is a measurement of the percentage of blood leaving your heart each time it contracts. During each heartbeat pumping cycle, the heart contracts and relaxes. When your heart contracts, it ejects blood from the two pumping chambers (ventricles). When your heart relaxes, the ventricles refill with blood. No [...]
What is ejection fraction and what does it measure?
May 26, 2017

New study highlights the importance of genetics research

By Suzanne Ferguson @suzannerferguson
An exciting paper was recently published in Nature Genetics titled “The complex genetics of hypoplastic left heart syndrome”.  This elegant study was led by a research team at the University of Pittsburgh School of Medicine and highlights the creation of the first mouse models of hypoplastic left heart syndrome (HLHS). [...]
New study highlights the importance of genetics research
May 15, 2017

Share the Science: Strengthening the HLHS Heart with Cord Blood

By Suzanne Ferguson @suzannerferguson
Join Dr. Nelson, director of the Todd and Karen Wanek Family Program for HLHS, this Wednesday, May 17 at 2 p.m. CT to learn more about using umbilical cord blood stem cells to potentially strengthen the heart. The free webinar is hosted by Save the Cord Foundation and Mediware, Inc. [...]
Share the Science: Strengthening the HLHS Heart with Cord Blood
May 5, 2017

Mayo Clinic’s Fontan procedure study shows improvement in survival rates

By Suzanne Ferguson @suzannerferguson
Mayo Clinic recently published the largest single center study on the outcomes of the Fontan procedure. The goal of the study was to determine how well patients were doing 10, 20 and 30 years after a Fontan procedure at Mayo Clinic. The most promising result from the study shows that [...]
Mayo Clinic’s Fontan procedure study shows improvement in survival rates
Apr 17, 2017

Congratulations to the 2017 IMPACT Winners!

By Suzanne Ferguson @suzannerferguson
On March 18, the Innovative Minds Partnering to Advance Curative Therapies (IMPACT) program engaged over 200 undergraduate students from 23 different Minnesota colleges. IMPACT is a competitive program open to Minnesota undergraduate students that encourages them to submit hypotheses for different challenges. It is sponsored by Regenerative Medicine Minnesota and [...]
Congratulations to the 2017 IMPACT Winners!