HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Jun 17, 2019

Ochsner Hospital for Children Joins HLHS Consortium

By Brianna N. Tranby @briannatranby
NEW ORLEANS -- Mayo Clinic's Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) and Ochsner Hospital for Children are proud to announce their collaboration to prevent heart failure in HLHS, a rare and complex form of congenital heart disease. Ochsner's Pediatric and Adult Congenital [...]
Ochsner Hospital for Children Joins HLHS Consortium
Jun 7, 2019

Your Guide to Understanding Common Research Terms

By Brianna N. Tranby @briannatranby
                             Demystifying Clinical Trials -- Part 2 The clinical research world can sometimes seem confusing. Research teams have many people in different roles, and they may use words that are unfamiliar to people outside of research work. The guide below defines some commonly used words and phrases. Let us [...]
Your Guide to Understanding Common Research Terms
May 20, 2019

Demystifying Clinical Trials – Part 1

By Brianna N. Tranby @briannatranby
In honor of Clinical Trials day on May 20th, we’re kicking off a series that's designed to shed some light on the world of clinical research. Follow us on Facebook, Twitter, and Instagram and stay tuned for posts over the coming months about commonly confusing terms, questions to ask [...]
Demystifying Clinical Trials – Part 1
May 10, 2019

When a House becomes a Home: The Ronald McDonald House

By Brianna N. Tranby @briannatranby
  Many hypoplastic left heart syndrome (HLHS) and congenital heart defect families have experienced the love and support that overflow in Ronald McDonald Houses (RMH) around the world. With 368 houses in 64 countries, patients and families are thankful to call the House a home when medical care [...]
When a House becomes a Home: The Ronald McDonald House
Apr 15, 2019

FAQs on Umbilical Cord Blood Banking and Use

By Brianna N. Tranby @briannatranby
We get a lot of questions about banking umbilical cord blood (UCB).  Below, we answer some frequently asked questions on the different options that are available.  If you’d like more information on UCB, why it’s collected, and stem cells, you can read our blog post from September 2016. [...]
FAQs on Umbilical Cord Blood Banking and Use

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