Mayo Clinic Rochester's Hemophilia Treatment Center (HTC) provides specialty care to patients with a bleeding disorder. The center provides whole-patient care, including:
"Bleeding disorders are fairly rare, and can be complicated," says hematologist Rajiv Pruthi, M.B.B.S. "The general physician may not be familiar with how to look after these patients, and that is why we exist."
Bleeding disorders, such as hemophilia, are life-long diseases. Transitions of care are important during the different stages of life.
"We see patients across their lifespan," says Melinda Otto, L.S.W.. "They don't have to transition to a different social worker, or nurse, or doctor."
Patient, and family, education starts at the time of diagnosis and continues throughout every stage of life. HTC nurses also work with a patient's school and school nurses to help educate them about hemophilia.
Life expectancy for a patient with hemophilia is now considered normal with proper lifelong care and management. The HTC helps provide management strategies for a patient to take more control of their life so they can go to school, work, and make social arrangements with more confidence.
"I think it is important that patients with a bleeding disorder have contact they can count on and have confidence," says Amy Eckerman, R.N.. "The hemophilia center is that contact for our patients."
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