Mayo Clinic Hemophilia Treatment Center
Mayo Clinic Rochester's Hemophilia Treatment Center (HTC) provides specialty care to patients with a bleeding disorder. The center provides whole-patient care, including:
- Disease and symptom management
- Coordinated care with other Mayo Clinic specialties (if needed)
- On-site coagulation lab
- All tests can be done on site with quick results
- Fully integrated lab with the HTC
- Social worker consultation for any social aspect concerns (insurance, long-term care concerns, coping mechanisms, stress management, and more)
"Bleeding disorders are fairly rare, and can be complicated," says hematologist Rajiv Pruthi, M.B.B.S. "The general physician may not be familiar with how to look after these patients, and that is why we exist."
Bleeding disorders, such as hemophilia, are life-long diseases. Transitions of care are important during the different stages of life.
"We see patients across their lifespan," says Melinda Otto, L.S.W.. "They don't have to transition to a different social worker, or nurse, or doctor."
Patient, and family, education starts at the time of diagnosis and continues throughout every stage of life. HTC nurses also work with a patient's school and school nurses to help educate them about hemophilia.
Life expectancy for a patient with hemophilia is now considered normal with proper lifelong care and management. The HTC helps provide management strategies for a patient to take more control of their life so they can go to school, work, and make social arrangements with more confidence.
"I think it is important that patients with a bleeding disorder have contact they can count on and have confidence," says Amy Eckerman, R.N.. "The hemophilia center is that contact for our patients."
Want to meet others living with or caring for someone with a bleeding disorder? Join the Blood Cancers & Disorders group here on Connect and start a discussion.
More stories about bleeding disorders:
- Hemophilia: from Mayo Clinic patient, to employee, to Connect moderator
- Bleeding disorders in women
- Bleeding disorders in women: Complications
- Clotting disorders: Factor V Leiden and blood clots
- Hemophilia Camp: A Summer Destination for Children with Rare Bleeding Disorders