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Visiting Mayo Clinic Support Group

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Discussions (93)
Rochester Hotel rooms/kitchenette/grocery suggestions
I have my first appointment at Mayo Rochester in October (flying in) and was told to plan on one to two weeks of testing/appointments. I...
Support Group: Visiting Mayo Clinic
Last active: Oct 19, 2021
Will I have to repeat a kidney biopsy at Mayo Clinic visit?
Hi all,I’m new to the community and am visiting Mayo Clinic for the first time at the end of the month. Just seeing nephrology to...
Support Group: Kidney Conditions
Last active: Jun 12, 2023
Diagnosed in FL, but need the treatment in GA - 4hrs away
Hello - I am desperately trying to help a friend who has no family and people have pretty much given up on helping her. It...
Support Group: Visiting Mayo Clinic
Last active: Jan 23, 2025
Travel and connections while at Mayo
Hi all! Just joined and first post. I am 40 F I have been having vascular and circulation issues for a few months and being...
Support Group: Visiting Mayo Clinic
Last active: Jan 4 3:49pm
Help/Questions: Appointment Request Form Questionnaire
My rheumatologist recently sent a referral to Rochester under internal medicine after I had an onset of worsening, multiple body system symptoms and recent hospitalizations...
Support Group: Visiting Mayo Clinic
Last active: Nov 7, 2023
Mayo Rochester: My suggestion for lodging when having SURGERY
I had my first Mayo Rochester visit earlier this month. I had a surgery scheduled along with various other appts (ultrasound, biopsy, and virtual and...
Support Group: Visiting Mayo Clinic
Last active: Jul 13 3:44pm
Dec 30, 2025 - changes to traffic pattern downtown Rochester
The Mayo Clinic Concierge department has published an update on its Facebook page about upcoming traffic changes. https://www.facebook.com/share/p/16kAWBVKVY/ Mayo Concierge is a free service available...
Support Group: Visiting Mayo Clinic
Last active: Dec 18, 2025
Still trying to decide on Mayo - I feel too sick to get well
I am UN-well enough that I really don't have a normal life and no local doctors can find answers for me. I have a lot...
Support Group: Visiting Mayo Clinic
Last active: Apr 15, 2020
Adult Acquired Tracheomalacia
I was just denied by Mayo for a rare condition called adult acquired tracheomalacia following hemithyroidectomy--collapsed airway (with 20+ years estrogen deficiency that has caused...
Support Group: Visiting Mayo Clinic
Last active: Feb 19 6:41pm
LGS diagnosis and breakthrough seizure clusters, getting seen sooner
Hi. I am the father of a 27-year-old girl which was diagnoses with LGS over 2 years ago and started with Fy-Compa 4mg. She did...
Support Group: Epilepsy & Seizures
Last active: Feb 19, 2025
Desperate, want to see the Mayo Clinic, but skeptical
I have a longstanding issue (about 3 years) of pelvic pain which has received no help from two trial of PT, some lifestyle changes (I...
Support Group: Visiting Mayo Clinic
Last active: Feb 9, 2024
My Disappointing Experience at Mayo Clinic Rochester
I’ve debated whether to share this, but I feel a responsibility to let others know what happened to me at Mayo Clinic in Rochester. I...
Support Group: Visiting Mayo Clinic
Last active: Jan 18 4:48pm
Accepted for Cardiology, denied internal medicine, need collab team!
TL;DR: Denied by internal medicine, but then accepted by cardiology. I need doctors that communicate across specialties, how do I get appointments with other providers...
Support Group: Visiting Mayo Clinic
Last active: Aug 11, 2024