Still trying to decide on Mayo - I feel too sick to get well
I am UN-well enough that I really don't have a normal life and no local doctors can find answers for me. I have a lot of fatigue and weakness and my brain just feels like it is full of cotton or something – I can't think clearly. I have various pains in my body, but none severe. Mainly it is just weakness and fatigue and not being able to think. Doctors have tried various blood tests and some CT scans, etc. but since they don't have any idea what they are looking for, they don't seem to be finding it. I know that I have various virus antibodies in my body such as EBV, CMV, HSV and possibly lyme disease (depending on what doctor you talk to). My latest pain, which I have told several doctors, is that it feels like I was kicked in between the legs. Of course, a lot of my "holistic" friends have suggestions like Lyme disease or Mold toxicity or overall candida but traditional doctors don't seem to want to listen to those ideas.
One of my additional problems is that I am so weak, or maybe its just because my body is so sensitive, I can't tolerate most medicines and I can't really drive very far.
If I go to Mayo, do they do a test and then just send you back to your hotel to recover? I don't have anyone to go with me for tests so first of all, I need to get transportation. But I also feel like I need to be in a supervised setting for recovery, etc. Which means I will probably have to hire a nurse or some sort of caregiver to go with me. I'm only 63.
I Sooooo wish i didn't have to make the drive and go through the additional stress of having to travel to get well. But if I'm NEVER going to get well, I need to make arrangements for my future. I need to hire caregivers, etc. So I need some answers.
Anyway, I'm at a loss. I want to talk to my doctor one more time but I really don't think she believes that there is really anything wrong with me.