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Transplants Support Group

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Discussions (43)
Is there an age limit is for a lung transplant?
Does anyone know what the age limit is for a lung transplant at Mayo Clinic? I have Idiopathic Pulmonary Fibrosis diagnosed in April of 2020....
Support Group: Transplants
Last active: Oct 28, 2025
Wait time for lung transplant at Mayo Jax.
I know there are many variables in waiting for a compatible lung . But does anyone know the average wait time to be transplanted?
Support Group: Transplants
Last active: Jun 3, 2023
Lung transplant: investigating the pros and cons of double transplant
I am at the beginnings of investigating the pros and cons of a double transplant. My pulmonary dr and I have been talking about it...
Support Group: Transplants
Last active: Dec 16, 2021
Does anyone regret getting a lung transplant?
My husband had Covid a year ago that resulted in pulmonary fibrosis in the bottom third of both lungs. Despite being on prednisone and cell...
Support Group: Lung Health
Last active: Feb 28, 2023
Lung Transplant: What can I expect?
I would like to know more about the procedure for Lung Transplant. My insurance approved my referral to UCLA. What can I expect?
Support Group: Lung Health
Last active: Jul 27, 2025
Questions about Husband's possible double lung transplant
Hi. My name is Amanda. My husband and I found out yesterday that my husband has two options on what he can do for his...
Support Group: Caregivers
Last active: 3 hours ago
Pulmonary fibrosis worsening. Need info about lung transplant
Had a CT scan last week and my pulmonary fibrosis has moderately worsen since 2024, should I start researching or get on a list for...
Support Group: Transplants
Last active: Mar 14 2:41pm
Looking for a Lung Transplant support group: Want to connect
Im looking for a post transplant group I cant talk with and listen. Does anyone the information for that?
Support Group: Transplants
Last active: Oct 16, 2025
Has anyone here had a lung transplant? What's it like?
Has anyone here had a lung transplant? I had a bad case of pneumonia and RSV which coded me. After intubation and Days in the...
Support Group: Transplants
Last active: Nov 15, 2025
Any pointers, we meet with pulmonologist regarding lung transplant?
We will be meeting via phone with Mayo pulmonologist on Thursday to discuss a lung transplant for my husband. If you have any pointers or...
Support Group: Transplants
Last active: Nov 9, 2025
How do you get in the loop for a possible lung transplant?
74 years old.. Rode a bike @2000 miles a year since 2006- Got Double Pnemonia-hospital for 5 days.. presently on 5 liters of 02 for...
Support Group: Transplants
Last active: Oct 15, 2023
What can I Expect for my Lung Transplant Review?
my name is Kevin. im coming into Mayo tomorrow. Im sraying at Gabriel's House. Im coming in for a Lung Transplant review. Ive been told...
Support Group: Transplants
Last active: Sep 20, 2019
I've been told I need a double lung transplant
I have stage 3 emphysema. I m 40 years old and have been told I need to have a double lung transplant. I have been...
Support Group: Transplants
Last active: Sep 15, 2024
Lung Transplant Post-op? would like to hear positive stories
My son is six years post kidney transplant this month! He is 21 now and was 12ish when diagnosed with HDR syndrome. Vanderbilt never confirmed...
Support Group: Transplants
Last active: Sep 7, 2022
Recent double lung transplant patient - need to hear others stories
Hello friends, My father had a double lung transplant surgery over two weeks ago. He was doing well and for the last week now has...
Support Group: Transplants
Last active: Nov 17, 2024
I am 71 been disqualify for the lung transplant due to age and others
factors I wander Mayo Clinic Transplant department would be re-evaluation of the fact, I am living with Interstitial Lung Disease at my state here cut...
Support Group: Transplants
Last active: Sep 28, 2025
I would like to hear from anyone who has had a lung transplant
I would like to hear from anyone who has had a lung transplant. Would you do it again? I know it's a very difficult procedure...
Support Group: Transplants
Last active: Feb 7, 2025
Which hospitals accept Workers Comp for transplant?
Does anyone know who takes Workers Comp/Sedgwick in Southern California. I have thier approval/authorization for a double lung transplant and UCLA does not accept this...
Support Group: Transplants
Last active: Aug 15, 2023
Training my Dog to be a Service Dog - Post Transplant
Hey everyone! I am 24 years old and new to this website! I was wondering if anyone here had any experience in starting the process...
Support Group: Transplants
Last active: Aug 24, 2023
Lung transplants and wait times
Is there an average wait time for being on a transplant list? I have been on one for over 2 years and I think I...
Support Group: Transplants
Last active: Nov 8, 2018