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Discussions (17)
Narcolepsy/Migraines/OCD interactions?
I'm wondering if anyone has any experience with the interaction of Narcolepsy, OCD, and Migraines. My wife has been diagnosed with all three, and for...
Support Group: Sleep Health
Last active: Mar 5, 2021
Anyone with Narcolepsy Losing Memory?
4 or 5 months ago I started losing working memory (and cognitive functioning) at alarming rate. That's the memory that supports what you are currently...
Support Group: Sleep Health
Last active: Sep 27, 2023
Tried Xywav Narcolepsy / Hypersomnia Med?
I'll be starting this drug shortly. I just found out I am positive for the DQA1*01:02 gene which suggests the possibility of Narcolepsy (I don't...
Support Group: Sleep Health
Last active: Feb 27 6:43am
What is the best type of doctor for Narcolepsy?
I think I do have Narcolepsy. I must sleep 11-17 hours a day. I fall asleep very easy. Have lunch I fall asleep, I work...
Support Group: Sleep Health
Last active: Jan 9 9:03pm
Is it common to have both narcolepsy and dysautonomia?
People who have been diagnosed with Narcolepsy, do you also have an autonomic disorder like POTS?I have Narcolepsy type 2, which isn't as well understood...
Support Group: Sleep Health
Last active: Feb 23, 2023
What happens as you become older with Narcolepsy?
I am now 67. I've had narcolepsy most of my adult like but it wasn't diagnosed until I was in my 40's. I'd be curious...
Support Group: Sleep Health
Last active: May 13, 2025
Good information sources on Ritalin for adults for narcolepsy?
At the age of 56, I've been prescribed the generic version of Ritalin for narcolepsy. It seems to be working, but, unfortunately, it also seems...
Support Group: Sleep Health
Last active: Apr 2, 2021
Narcolepsy Type 1 and connection with Kleine-levin syndrome?
Hi there. After years of unexplained symptoms, my daughter was finally diagnosed with narcolepsy type 1, aka narcolepsy with cataplexy. I too suffer from hypersomnia,...
Support Group: Sleep Health
Last active: Aug 4, 2025
18 hours a day in bed. Dx narcolepsy. Something else?
I am being treated for narcolepsy based on symptoms (i could not finish my MSLT test due to not being able to go off certain...
Support Group: Sleep Health
Last active: May 10 6:44am
Can’t stay awake throughout the day, have narcolepsy. Suggestions?
I have Narcolepsy, Arachnoid cyst on my brain, Pulmonary artery aneurysm, Heart murmur, Bulging disc in my neck, Failed lumbar fusion, Sjögren’s, Anemia and the...
Support Group: Sleep Health
Last active: Feb 16, 2025
Anyone have Kleine-Levin Syndrome? Any advice?
My 16 year old son was recently diagnosed with Kleine-Levin Syndrome (KLS). This has been an on going battle for over 3 years now. I...
Support Group: Brain & Nervous System
Last active: Dec 6, 2019
~ Need Input on Falling Asleep Whenever I Sit Down ~
Whenever I sit down, TV, reading, anything, I fall asleep. I don't know if this is from my medications or if it's narcolepsy. Can anyone...
Support Group: Sleep Health
Last active: May 23, 2019
Hypnagogic Hallucinations: Worrisome? Thoughts?
Hi, ive probably had sleep problems most of my life. This year started to experience heavy Hypnagogic hallucinations. Ive been through two sleep studies, the...
Support Group: Sleep Health
Last active: Feb 27, 2025
Anyone with a full beard able to use a CPAP mask?
Hi, I am struggling with using a CPAP because I have a full beard and I can't keep my mouth closed. I also have narcolepsy...
Support Group: Sleep Health
Last active: Apr 5, 2024
Frequent awakenings, no restful sleep. Need guidance
So for the last (almost) 11 years I have suffered from frequent awakenings and lack of restful sleep. I sleep maybe an hour to an...
Support Group: Sleep Health
Last active: Jan 13, 2025
Teen experiencing night panic attacks and doesn't remember them
So I have 15-year twins, both girls, and one of them has serious issues with sleep and panic attacks. The problem is that after the...
Support Group: About Kids & Teens
Last active: Aug 11, 2021
Concern About Extended Appointment Triage Delay +Prior ER misrouting(s
Hi everyone I am hoping to hear from others who have been through the Mayo intake process, especially when the appointment triage stage takes longer...
Support Group: Sleep Health
Last active: Apr 27 3:51pm