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Discussions (15)
Narcolepsy Type 1 (Narcolepsy with Cataplexy)
Hi there. After years of unexplained symptoms, my daughter was finally diagnosed with narcolepsy type 1, aka narcolepsy with cataplexy. I too suffer from hypersomnia,...
Support Group: Sleep Health
Last active: Aug 4, 2025
Narcolepsy and Dysautonomia
People who have been diagnosed with Narcolepsy, do you also have an autonomic disorder like POTS? I have Narcolepsy type 2, which isn't as well...
Support Group: Sleep Health
Last active: Feb 23, 2023
Xywav Narcolepsy/Hypersomnia Med
I'll be starting this drug shortly. I just found out I am positive for the DQA1*01:02 gene which suggests the possibility of Narcolepsy (I don't...
Support Group: Sleep Health
Last active: Feb 27 6:43am
Ritalin for adults for narcolepsy
At the age of 56, I've been prescribed the generic version of Ritalin for narcolepsy. It seems to be working, but, unfortunately, it also seems...
Support Group: Sleep Health
Last active: Apr 2, 2021
Narcolepsy/Migraines/OCD interactions?
I'm wondering if anyone has any experience with the interaction of Narcolepsy, OCD, and Migraines. My wife has been diagnosed with all three, and for...
Support Group: Sleep Health
Last active: Mar 5, 2021
Anyone with Narcolepsy Losing Memory?
4 or 5 months ago I started losing working memory (and cognitive functioning) at alarming rate. That's the memory that supports what you are currently...
Support Group: Sleep Health
Last active: Sep 27, 2023
What is the best type of doctor for Narcolepsy?
I think I do have Narcolepsy. I must sleep 11-17 hours a day. I fall asleep very easy. Have lunch I fall asleep, I work...
Support Group: Sleep Health
Last active: Jan 9 9:03pm
What happens as you become older with Narcolepsy..
I am now 67. I've had narcolepsy most of my adult like but it wasn't diagnosed until I was in my 40's. I'd be curious...
Support Group: Sleep Health
Last active: May 13, 2025
Kleine-Levin Syndrome
My 16 year old son was recently diagnosed with Kleine-Levin Syndrome (KLS). This has been an on going battle for over 3 years now. I...
Support Group: Brain & Nervous System
Last active: Dec 6, 2019
Hypnagogic Hallucinations
Hi, ive probably had sleep problems most of my life. This year started to experience heavy Hypnagogic hallucinations. Ive been through two sleep studies, the...
Support Group: Sleep Health
Last active: Feb 27, 2025
~ Need Input on Falling Asleep Whenever I Sit Down ~
Whenever I sit down, TV, reading, anything, I fall asleep. I don't know if this is from my medications or if it's narcolepsy. Can anyone...
Support Group: Sleep Health
Last active: May 23, 2019
My Memory Problem and Symptoms
I have been following my memory symptoms for almost two years, and I'm witing a paper on my experience. The paper will explain the character...
Support Group: Sleep Health
Last active: May 13, 2025
Anyone with a full beard able to use a CPAP mask?
Hi, I am struggling with using a CPAP because I have a full beard and I can't keep my mouth closed. I also have narcolepsy...
Support Group: Sleep Health
Last active: Apr 5, 2024
Frequent awakenings, no restful sleep. Need guidance
So for the last (almost) 11 years I have suffered from frequent awakenings and lack of restful sleep. I sleep maybe an hour to an...
Support Group: Sleep Health
Last active: Jan 13, 2025
Can’t seem to stay awake throughout the day!
I have Narcolepsy, Arachnoid cyst on my brain, Pulmonary artery aneurysm, Heart murmur, Bulging disc in my neck, Failed lumbar fusion, Sjögren’s, Anemia and the...
Support Group: Brain & Nervous System
Last active: Feb 16, 2025