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Prostate Cancer Support Group

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Discussion
Why I am glad I chose Proton Therapy (for now). Good, bad and ugly.
My Treatment Decision Journey – Surgery vs Radiation (Proton Therapy Experience) Making the decision about which prostate cancer treatment to pursue was agonizing. When I...
Support Group: Prostate Cancer
Last active: Jan 21 11:47am
Discussion
First PSA test after Proton therapy. Pre PSA: 17 Post PSA number??
My 21 treatment program finished early July. PSA of 17. 4 cores out of 12 positive...only one at 4+3. I chose to forgo hormone therapy....
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Discussion
Urologist not wanting to see you if you seek different provider
I have excellent care at my provider. However when diagnosed with prostrate cancer they did not offer proton radiation therapy that my primary doctor said...
Support Group: Prostate Cancer
Last active: Dec 22, 2023
Discussion
Photon Stereotactic Body Radiation Therapy (SBRT)
I am looking for individuals who have had PHOTON (not proton) beam SBRT to tell me about their experiences. Thank you in advance.
Support Group: Prostate Cancer
Last active: Dec 7, 2025
Discussion
Radiation treatment with endorectal balloons
Has anyone with hemorrhoids had radiation treatment (proton or photon) with endorectal balloons instead of Spaceoar gel? Experience?Thanks.
Support Group: Proton Beam Therapy
Last active: Jan 9, 2024
Discussion
Prostate calcifications and relationship to prostate cancer diagnosis?
Fifteen years (2010) ago proton radiation at Loma Linda Children's Hospital as it was named then. As most know, proton radiation began with children having...
Support Group: Prostate Cancer
Last active: Jan 23, 2025
Discussion
Support for wives with the Orgovyx tornado: Needing an olive branch
This spring, my husband will have been taking Orgovyx for 2 years. He was diagnosed a few months after a forced retirement, we sold our...
Support Group: Prostate Cancer
Last active: Feb 22 2:08pm
Discussion
Any good videos showing how to do Kegel exercises?
Starting 20 Prostrate Proton sessions in September and looking for tips to keep my bladder full for each treatment. No ATD/Hormone RX with treatment really...
Support Group: Prostate Cancer
Last active: Oct 28, 2025
Discussion
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Mar 1, 2025
Discussion
Long-term radiation side effects post surgery: Any experiences or data
Is anyone aware of any data involving long term side effects (10+ years after radiation treatment) of post Radical Proctectomy radiation (Proton or Photon) to...
Support Group: Prostate Cancer
Last active: Jul 24, 2024