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Prostate Cancer Support Group

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Discussions (192)
Urologist not wanting to see you if you seek different provider
I have excellent care at my provider. However when diagnosed with prostrate cancer they did not offer proton radiation therapy that my primary doctor said...
Support Group: Prostate Cancer
Last active: Dec 22, 2023
Photon Stereotactic Body Radiation Therapy (SBRT)
I am looking for individuals who have had PHOTON (not proton) beam SBRT to tell me about their experiences. Thank you in advance.
Support Group: Prostate Cancer
Last active: Dec 7, 2025
Radiation treatment with endorectal balloons
Has anyone with hemorrhoids had radiation treatment (proton or photon) with endorectal balloons instead of Spaceoar gel? Experience?Thanks.
Support Group: Proton Beam Therapy
Last active: Jan 9, 2024
Prostate calcifications and relationship to prostate cancer diagnosis?
Fifteen years (2010) ago proton radiation at Loma Linda Children's Hospital as it was named then. As most know, proton radiation began with children having...
Support Group: Prostate Cancer
Last active: Jan 23, 2025
Anal SCC
Hello, Following a routine colonoscopy two years ago I was diagnosed with anal squamous cell carcinoma a few months ago after two exploratory surgeries over...
Support Group: Prostate Cancer
Last active: 4 days ago
Urinating burning 6 months post radiation 2 rounds antibiotics culture
I am post 27 rounds of proton prostate radiation and getting burning issues urinating 2 rounds of antibiotics still occurring anybody have same what have...
Support Group: Prostate Cancer
Last active: Jun 14 10:49am
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Mar 1, 2025
Long-term radiation side effects post surgery: Any experiences or data
Is anyone aware of any data involving long term side effects (10+ years after radiation treatment) of post Radical Proctectomy radiation (Proton or Photon) to...
Support Group: Prostate Cancer
Last active: Jul 24, 2024
Upcoming Radiation: Any advice about process, prep, time commitment?
I’m looking at an upcoming radiation treatment. Hopefully it will be the proton beam type radiation, which I’ve heard is less invasive with fewer side...
Support Group: Prostate Cancer
Last active: Jun 22 10:54pm
Trial
Just curious on how you feel about this trial from a top cancer hospital. Also includes short course of ADT. Explained below: Proton Therapy and...
Support Group: Prostate Cancer
Last active: May 21 6:00pm
Prostate Cancer Treatment Options
Diagnosed with prostate cancer with Gleason score 3+4, PSA of 12, and a single lesion approximately 4-5 mm in size, confined to the prostate. Initially...
Support Group: Prostate Cancer
Last active: May 5, 2024
What does Mayo say about MRgRT (e.g. MRIdian)?
Do they have a Viewray or an Elekta Unity? I can't find a reference to it online if they do. So do they just try...
Support Group: Prostate Cancer
Last active: Jun 23 12:22pm
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20, 2025
Radiation treatment options at Mayo Clinic Jacksonville?
Does anyone know whether Mayo Jacksonville offer MRgRt (elekta Unity) and/or Proton therapy?
Support Group: Prostate Cancer
Last active: Oct 7, 2024
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
Transperineal vs. transrectal: Which is worse?
In preparation for proton therapy I am having a spacer and fiducial markers placed on Monday. I just learned that it will be done trasnperineal...
Support Group: Prostate Cancer
Last active: Jun 16 3:15pm
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18, 2024
Anyone had MRI-assisted radiosurgery (MARS) treatment?
Hello. I'm looking at varius treatmnt programs for prostae cancer. I'm leaning toward proton but I wonder has anyone had the MARS treatment? Thanks.
Support Group: Prostate Cancer
Last active: Aug 3, 2024
radiation
So I started radiation today (9 Sept '25) 9 weeks -42 sessions.. It is photon ( IMRT and IGRT)... My approved providor-Urology Austin apparently does...
Support Group: Prostate Cancer
Last active: Oct 4, 2025
PSA at 3 months after radiation: Should it be lower?
PSA about 11.0 before Proton Beam radiation. Received 44 treatments. Now 3 months later PSA is 5.81. Should be lower?
Support Group: Prostate Cancer
Last active: Apr 12, 2024