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Prostate Cancer Support Group

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Discussions (173)
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
Radiation treatment options at Mayo Clinic Jacksonville?
Does anyone know whether Mayo Jacksonville offer MRgRt (elekta Unity) and/or Proton therapy?
Support Group: Prostate Cancer
Last active: Oct 7, 2024
Additional prostate cancer-related tests/scans
Another anniversary —> After spending almost 9 years on active surveillance, 4 years ago today (4/19/2021), I started 28 sessions of proton beam radiation (+...
Support Group: Prostate Cancer
Last active: Apr 20, 2025
Prostate Cancer Treatment Options
Diagnosed with prostate cancer with Gleason score 3+4, PSA of 12, and a single lesion approximately 4-5 mm in size, confined to the prostate. Initially...
Support Group: Prostate Cancer
Last active: May 5, 2024
How quickly do you recover 'yourself’ after stopping Orgovyx?
Started Orgovyx Jan ‘25. Have SBRT Proton mid-September ‘25. Everything going reasonably well. I am planning a trip to France May 25. Was thinking of...
Support Group: Prostate Cancer
Last active: Mar 1 7:48pm
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18, 2024
Support for wives with the Orgovyx tornado: Needing an olive branch
This spring, my husband will have been taking Orgovyx for 2 years. He was diagnosed a few months after a forced retirement, we sold our...
Support Group: Prostate Cancer
Last active: Feb 22 2:08pm
radiation
So I started radiation today (9 Sept '25) 9 weeks -42 sessions.. It is photon ( IMRT and IGRT)... My approved providor-Urology Austin apparently does...
Support Group: Prostate Cancer
Last active: Oct 4, 2025
PSA at 3 months after radiation: Should it be lower?
PSA about 11.0 before Proton Beam radiation. Received 44 treatments. Now 3 months later PSA is 5.81. Should be lower?
Support Group: Prostate Cancer
Last active: Apr 12, 2024
Small PSA Rise: What might be the cause?
I completed proton beam therapy October 30th 2023 for one core Gleason score 3+6 and I took my third PSA test last week having a...
Support Group: Prostate Cancer
Last active: Apr 30, 2024
How soon should treatment start for aggressive cancer?
Hi everyone. I have Gleason 9 prostate cancer spread to pubic bone. My local urologist was unenthusiastic when I mentioned the possibility of pursuing proton...
Support Group: Prostate Cancer
Last active: May 16, 2024
Anyone had MRI-assisted radiosurgery (MARS) treatment?
Hello. I'm looking at varius treatmnt programs for prostae cancer. I'm leaning toward proton but I wonder has anyone had the MARS treatment? Thanks.
Support Group: Prostate Cancer
Last active: Aug 3, 2024
SpaceOAR causing issues
I just spoke with my urologist today and he indicated that the hospital affiliated with his practice is no longer using SpaceOAR. Doctors in various...
Support Group: Prostate Cancer
Last active: Aug 26, 2025
Calypso radiation
The Nebraska Med Center is using a new radiation procedure called Calypso has anyone had experience with this how does it compare to Proton? I...
Support Group: Prostate Cancer
Last active: Oct 10, 2023
Prostate Artery Embolization (PAE) with Prostate cancer
I have a meeting with a Dr at Moffitt in Tampa to discuss Prostate Artery Embolization (PAE) to improve urinary function prior to radiation treatment....
Support Group: Prostate Cancer
Last active: Nov 19, 2025
Looking for info on HDR Brachytherapy to ask Radiation Oncologist
I’m trying to decide on IMRT, Proton Therapy 5 fractions, or HDR for localized Gleason 4+4 PC. PSMA came back clean. I keep wavering. Looking...
Support Group: Prostate Cancer
Last active: May 28, 2025
Today’s PSA Test Results
Today was my 6-month PSA test (4-1/2 years after proton radiation treatment). As usual, I experienced a little anxiety when the MyChart text message popped...
Support Group: Prostate Cancer
Last active: Dec 16, 2025
What would be best course of treatment
My MRI: Large lowADC lesion throughout the right peripheral zone with extra prostatic extension and involvement of the right neurovascular bundle categorized as a PI-RADS...
Support Group: Prostate Cancer
Last active: May 31, 2025
PSA jumped from 2 to 2.4 after four years from treatment??
Does this jump in PSA from 2 to 2.4 a cause for alarm. Had 20 proton beam treatments nearly four years ago and it dropped...
Support Group: Prostate Cancer
Last active: Jun 5, 2024
Hyperbaric treatment to help with recovery
I had my last proton theraphy in December of 2023. I have been doing o.k. No side effects, except ED. I urinated blood clots on...
Support Group: Prostate Cancer
Last active: Mar 16 8:36am