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Prostate Cancer Support Group

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Husband not responding to ADT
My husband was diagnosed with aggressive and advanced prostate cancer in spring 2022. Started Orgovyx in July 2022, and did 25 radiation treatments. At appointment...
Support Group: Prostate Cancer
Last active: Jul 3, 2023
How long after stopping Orgovyx did you notice a difference?
I just got off Orgovyx . One of the benefits of Orgovyx is supposed to be quicker testosterone recovery. How long can I expect the...
Support Group: Prostate Cancer
Last active: Jan 18 6:08pm
Why is the experience of negative SE’s of ADT so variable…or are they?
Those of us who remain “treatment neophytes” are all about risk-reward, with heavy emphasis on zero risk. I’ve often wondered why some men seemingly breeze...
Support Group: Prostate Cancer
Last active: Jun 28, 2025
Here’s an interesting article about Lupron prices going up
This person was treated in the United States, but the cost of Lupron was over $35,000 and $38,000 for two injections in Chicago. https://kffhealthnews.org/news/article/bill-of-the-month-shot-prostate-cancer-drug-testosterone/
Support Group: Prostate Cancer
Last active: Jan 23 8:05pm
ADT, Brachytherapy, IMRT...done!
Just thought I'd share. Started this journey in spring 2024. Gleason 4+3. Decipher 0.78. PSMA scan negative outside of the prostate lesion. PSA 13.4 when...
Support Group: Prostate Cancer
Last active: Apr 28 9:14am
What tests and scans were ordered before you had your salvage RT ?
I have some general idea, but would like to hear your experience. I know that it depends of many factors but still, there must be...
Support Group: Prostate Cancer
Last active: May 22 11:03am
Difficulty with androgen deprivation (ADT): what helps?
I am taking Eligard for a year now and gained 25 lbs and have depression and fatigue. I have a friend taking degarilix and he...
Support Group: Prostate Cancer
Last active: Jan 17, 2024
Human Chorionic Gonadotropin (hCG) alternative to T supplement
"HCG" treatment for testosterone refers to Human Chorionic Gonadotropin (hCG), a hormone used to stimulate the body's own testosterone and sperm production.I had an interesting...
Support Group: Prostate Cancer
Last active: Jun 3 12:11pm
Can a short term of taking Orgovyx cause leg pain and weight gain?
I have been on ADT Orgovyx just for four months and half but did not gain any weight while I was on the drug nor...
Support Group: Prostate Cancer
Last active: Jan 12 11:00am
Die with one condition, live with other(s)
I received great news this week: after eighteen months of ADT treating my PSA 6.4, Gleason 7 (3+4, 4+3) PSMA PET three tumors in prostate...
Support Group: Prostate Cancer
Last active: May 28 9:43am
Persistent swelling, excess fluid and low creatinine
One of my kidney function indicators (creatine levels) has dropped below normal. I'm constantly experiencing swelling in my legs and fingers. Is this related to...
Support Group: Prostate Cancer
Last active: May 18 5:24pm
Alternate ADT drug shaking things up: Estrogen?
At my latest appointment with the oncologist who is managing my care during my 2 year ADT sentence, he said the prostate cancer specialists at...
Support Group: Prostate Cancer
Last active: Jan 4 3:38pm
Finished radiation therapy today, how will I know if it worked?
Finished 28 sessions of EBRT today, still taking Orgovyx. RO said he will schedule an appointment with him in about a month to determine what...
Support Group: Prostate Cancer
Last active: Apr 6, 2025
First blood test 3 months after initial ADT (Lupron) injection
Am slated for my first blood test this week after initial ADT injection of Lupron in early Oct. . Doc's order indicates test for PSA,...
Support Group: Prostate Cancer
Last active: Dec 19, 2025
Treatment options: radiation without ADT?
Researching treatment options.79 yr old, sexually active, good healthGleason 4+3, PSA 12.91 (tripled within last yr), Testosterone 435, PSMA PetScan No metastases, Decipher .95Radiation oncologist...
Support Group: Prostate Cancer
Last active: Sep 11, 2025
Bra or gynecomastia surgery?
I'm on a doublet protocol therapy (Lupron and Erleada) that has reduced my PSA to 0.0, and l'm very pleased with that. Predictably the loss...
Support Group: Prostate Cancer
Last active: Aug 17, 2025
Is this true?
I was starting to do a lot better but then I read that it can take 18 months to get my testosterone back to my...
Support Group: Prostate Cancer
Last active: Feb 13, 2025
Is sun exposure dangerous when you have prostate cancer?
Since my diagnosis, I've been trying to avoid sun exposure. My doctor said it's dangerous to travel to the southern regions.Is it true that sun...
Support Group: Prostate Cancer
Last active: Jan 19 7:06am
Stage 4 prostate cancer in my bones
I was on xtandi and presently on Relugulox My testosterone is staying low at 12, but my PSA continues to rise a point every three...
Support Group: Prostate Cancer
Last active: Oct 31, 2025
The Rx Coupon Game
While it's not quite The Squid Game, sometimes it seems equally corrupt. Prior to PCa, I don't recall ever paying for prescription drugs. Any drugs...
Support Group: Prostate Cancer
Last active: Jan 26, 2025